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Re: Is this typical?

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Debbie,

Constipation is fairly common in the beginning.

Have you tried the electrolyte drink? I keep hearing people reporting that it

helps so much with constipation.

Does he take the magnesium and vit C on a daily basis? Or do you only use those

in large doses when he's constipated? I was just wondering if maybe a little

bit higher daily dose would keep it from getting so bad. You've probably already

thought of that.

Cooked apples and ripe bananas are both.... reportedly.... considered to be

" binding " . In other words, they tend to firm up the stool... so they are good

foods for someone who has diarrhea. Might not be good in his case.

Do you mix any pureed veggies into his meat patties? This is one way to hide

them.

When you say he " doesn't tolerate " zucchini, butternut squash or pumpkin... what

do you mean by that? What happens?

Patti

Is this typical?

My son has been on SCD since late October. He is still on stage one

eating organic meat patties, peeled and cooked golden delicious

apples and peaches, goat yogurt, one or maybe two ripe bananas, and

squash buttons made with egg whites and acorn squash. Here is the

problem - he will do really well for about a week with his bm's going

each day with them being from soft to formed without us having to

give him anything to get him to go. This is a huge improvement from

before SCD. But, then he will go for several days without having a

bm and we will end up having to give him magnesium citrate and

vitamin C in large doses to get him going again. We haven't changed

his diet, the poor kid eats pretty much the same thing every day. He

has now gone for several days without having a bm. It is so

frustrating that we can't seem to get him regulated long enough for

me to try to add in some new foods. Everytime I think he is on track

and I can maybe add something new, he does this and I don't want to

add anything until I get him going again. Is this a typical cycle

that people see at the beginning? I'm also struggling with what to

add in next. I know he needs more veggies, but getting him to eat

them is nearly impossible, and then finding some he will tolerate

adds another problem. He doesn't tolerate zucchini, butternut,

avocado, pumpkin. I bought some yellow squash, but I'm not sure how

to fix it in a way he might try it. I'm just getting frustrated

because I'm seeing so much improvement, and then we seem to take a

couple of steps backwards.

Debbie, mom to Carson 4 ASD, SCD 10/06

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Patti,

>

> Constipation is fairly common in the beginning.

> Have you tried the electrolyte drink? I keep hearing people

reporting that it helps so much with constipation.

I've tried it, but he won't drink it even when I mix his juice in

with it to make it taste better. I've also tried the constipation

protocol, but prune juice gives him horrible rashy cheeks and he gets

wild running around stimming, hyper, etc.

> Does he take the magnesium and vit C on a daily basis? Or do you

only use those in large doses when he's constipated? I was just

wondering if maybe a little bit higher daily dose would keep it from

getting so bad. You've probably already thought of that.

I think that he is reacting to the magnesium now. Every time I give

it to him he has problems at school and he seems to be more stimmy.

The vitamin C makes his bm's total liquid. That is why I don't give

these daily anymore. After 3 days of giving him these, he is hyper,

not focues, verbally stimming, visual stimming, etc. That is why we

are praying that this diet will heal his gut enough to keep him from

having this C problem so we don't have to mess him up by giving him

stuff to get him to have a bm.

> Cooked apples and ripe bananas are both.... reportedly....

considered to be " binding " . In other words, they tend to firm up the

stool... so they are good foods for someone who has diarrhea. Might

not be good in his case.

I've taken these out of his diet off and on over the past couple of

years and it doesn't seem to make a difference in causing his C, it

seems like he does better with the banana in his diet than without

it. Like I said in my earlier post, he will have a week or more of

eating these foods and having good bm's daily without any stuff to

make him go, then without a reason we can determine, he stops going.

> Do you mix any pureed veggies into his meat patties? This is one

way to hide them.

I keep trying. He is very very picky about the texture of his meat

patties, so it has been hard.

> When you say he " doesn't tolerate " zucchini, butternut squash or

pumpkin... what do you mean by that? What happens?

He gets rashy red cheeks and I see some behavior changes. The same

thing with egg yolk and lots of other foods.

Debbie

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Patti,

>

> Is it the phenols in those foods that cause the hyper-stimminess

and the red cheeks?

I'm not sure. The red cheeks are more like eczema, not just the

feverish red cheeks that tend to be more from phenol.

> What about digestive enzymes? Have you ever tried them?

I have the No-Fenol, but can't seem to get on a regular system for

it. I also want to start adding in other digestive enzymes. I've

just been trying to get him on a group of foods I know I can trust,

then I wanted to add them in. I think I should probably start adding

them in though and they may help him tolerate more things.

>

> I see that you're not using any nuts. Do those cause problems for

him? I'm just thinking that adding in a little pecan flour in a

muffin might help with constipation just a bit.

He does fine with pecans, hazelnuts, and macadamia nuts, but he

doesn't seem to like the nut muffins I've made. We were SCD for a

year a little over a year ago and he only liked the peanut butter

waffles or muffins I would make. I started peanut butter way too

early last time and gave him way too much, and that is why I think we

didn't do as well on SCD as we could have. I think he might like the

nut muffins if I could get some other flavor in them that would mask

some of the nutty flavor.

>

> I'm just really uncomfortable with a kid not having a BM for

several days. I'm sure he is, too!

I hate it too. Some of his behavior could be not having a bm for so

many days.

Debbie, mom to Carson 4 ASD, SCD 10/06

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>

> Instead of using peanut butter in the waffles and muffins, you can

try cashew butter / almond butter. Same texture, yet much easier to

tolerate.

>

He can't tolerate the almond butter, but I thought the cashew butter

was supposed to be used later also.

Debbie, mom to Carson 4 ASD, SCD 10/06

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