RE: Re: Aspergillus culture

[Guest guest]

Patti (3 wcf) calls her magnesium " cup medicine. " Part of her taking it has to

do with picking out the " Pooh Bear Juice " (usually the apple and white grape

mix) and the kind of dixie cup she wants. People who see us in Wal Mart when we

are buying cups must think I'm nuts when I pull down all the different boxes and

let her pick the pictures she wants. :-)

The two choices she does have, have made her ok with my choice to make her take

the magnesium.

Dawn mom of 4, 8 and under, the youngest wcf

Re: Aspergillus culture

,

Please let your nutritionist or doctor which magnesium type you want them to

use.

Compounding pharmacies must follow doctor's orders, and if doctors doesn't

know the differences in magnesium

types, they might ask pharmacists for the most common type -- and if the

pharmacist says, " magnesium oxide, "

then the doctor might go with that instead of doing his/her homework.

Remember, you don't want magnesium salts, as this could result in loose

stools, making Mg deficiency worse.

After all, ' Milk of Magnesia -- the old time panacea for constipation

-- is simply 400 mg. magnesium oxide

per teaspoon.

Over a year ago, I checked with a couple compounding pharmacies (one was Bev's

CF pharmacy). Each

compounding pharmacy told me they'd have to make the 'script based on doctor's

recommendation. When I

asked about magnesium creams and how you could determine a " mg " dose, they

told me that they'd mix the

magnesium with a carrier cream, then likely put it into premeasured syringes.

Then you'd just squirt out so

many cc's to get the dose and rub the cream into the skin.

For those who have aversions to swallowing pills, you can try the following:

1) crush Solgar magnesium glycinate into a powder to add to fruit smoothies,

fruit sauces, warm cereals or into

a feeding tube. Dawn (mom of Patti) crushes the Solgar tablets and mixes it

with grape juice and confectioner's

sugar to form a paste; she says Patti doesn't have a problem eating this to

get her magnesium.

2) you can make your own magnesium creams and lotions (I've got a recipe

around here somewhere)

3) you can soak in a warm tub of epsom salts for about 20 minutes (add a few

drops tea tree oil for added

benefit to lungs and sinuses in the steamy bath -- just don't let little ones

splash or drink the bath water.).

Magnesium *is* absorbed through the skin and I've seen a couple references

showing that after soaking for

20 minutes in epsom salts (magnesium sulphate), magnesium levels were

measurably elevated.

As for the crock pot and TTO, I'd put it as near the head of the bed as

possible -- but make sure it's out of reach

of curious little hands and that pets don't accidently mistake it for drinking

water.

You could also put a drop or two on a cotton ball and wave it under the nose

for as long as they'll sit still for it.

Good luck with the aspergillus culture. I was heartbroken when cultured

it. I'm glad we got rid of it so

quickly!

Kim

> My son's culture came back showing he has Aspergillus. I know this topic

has been discussed before but I have a few questions I'd

appreciate so help with. He is four years old and inhaling tea tree oil mist

isn't his thing right now. I picked up a little crock pot to use

in his room at night and this is where my questions come in.

> 1. How many drops of tea tree oil have others been using when doing the

" crock pot " method?

> 2. Have you been letting the crock pot run all night or just for a few

hours?

> 3. Do you put the crock pot near the bed or assume that as long as the

room smells like tea tree oil, he will inhale sufficient

amounts to do the job?

> 4. How many times a week do you do this?

>

> My other question pertains to magnesium supplements. I found a compounding

pharmacy in our area that can make a liquid

magnesium supplement for us (since Matt doesn't swallow pills yet and doesn't

eat " gummy bear " textures - we're still dealing with

texture issues as a result of being intubated very early in life). The

pharmacy needs a prescription from the CF Clinic, though, and our

nutritionist is willing to work with us on doing this. The magnesium concerns

are not something our clinic has not worked with a lot

but she is willing to do some research. I'm just curious to see how much

others are supplementing to their young ones. I'm not

exactly comfortable assuming that the RDA quantity is enough considering he

does not eat a balance diet at all. If you all wouldn't

mind sharing with me what you are doing it will give me a little guidance when

I talk to the nutritionist again.

>

> Thanks in advance for your input!

> Sincerely,

> R, mom to Matt, 4 with CF and really into trains & planes

>

>

[Guest guest]

I have four kids. The oldest, youngest, and second to youngest think they

are hard to swallow. My second oldest swallows them just fine. My oldest

chews it and complains about having to eat soap. My second youngest wants

me to push it down her throat, which I do. And the youngest is the one who

gets it pasted up in the cup along with some of her other meds. I don't

paste up the oldest's because she can swallow anything BUT a pill whole. I

don't buy it. ;-) If she can swallow hot tamales and m & m's she can swallow

a pill.

I basically give one to my older three, they don't have cf, but from time to

time have some asthma issues. I give two to my youngest. One in the

morning and one around three in the afternoon.

Dawn mom of 4, 8 and under, the youngest wcf

[Guest guest]

Hi Kim,

Solgar's mg gives me loose stools. I have cut it back to one daily. I am still

taking a Calcium/Mg/Zinc mix so I will not get that again. It wasn't giving me

the problem though, it just started when I got the Solgars. Should I toss the

Ca mix and just take a plain Ca and the Solgars?

love,

[Guest guest]

DEAR KIM,

Do have a wonderful time in the " sun " :)HEE

Love ya LOTS!!

BEV

Re: Aspergillus culture

Omg... I just now went back to read my response to . Heck, I

do know proper grammar but no one would know it by my post!

And it took forever for me to write my response -- I kept backspacing

and rewriting and backspacing some more because I wanted to be sure I

didn't mess up. I wrote it while heavily influnced by massive doses

of ibuprofen! Yesterday on the way home from work, I was striding

along and rammed my left foot into the cement in the uneven sidewalk,

crashing chin down right to the cement. The gaping hole under my chin

wouldn't stop bleeding so I ended up in the ER where they superglued

my chin wound and after an x-ray, told me I broke a bone in my foot.

But that's *not* stopping me from flying to Phoenix tomorrow morning

for six days of pampering in the sun!

Sorry for the awkward post, . But I duz no how 2 speak and

spel.

Kim

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