Guest guest Posted September 14, 2002 Report Share Posted September 14, 2002 , When I first found out I had RP thats all I ever thought about but as time goes by and you get RP under control it will get better. Its always in the back of my mind if I get a pain or whatever, I think,, Wonder if thats RP starting again. You will begin to know the difference in pains and always try and get alot of rest and dont get run down. Stress does alot too, Im sure you will hear from Heidi, She will tell you what to do HAHAHAHA\ Just hang in there, Like people in this group says...... Theres no cure yet but it is treatable. Carol A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2002 Report Share Posted September 14, 2002 , this is not a strange question at all. RP is a big part of my life. The roles it plays in my life have changed a few times. At first I was scared to death and it was always on my mind... I just wanted it to go away. Then I just wanted to get it under control..with the proper meds. I did that. I accepted it and was happy that I did have it under control and finally had the right drs to work with me. THEN, it was an obsession to help get the word out. To help others find the proper treatment. I didn't think about myself alot as far as ME having RP. Then the heart valve threw me.. Since it was silent, I didn't realize that the RP was still with me. I thought I had it in hiding. Now I feel confident that I have it under control again. I guess it is just a vicious circle. I think sometimes I push it too far back in my mind. It's not denial, I can't explain it. When I do feel a flare coming, I treat it agressively and have been lucky that way. I have been fighting chronic pain for so long and fatigue, that I think I have finally just made it part of my daily life. Don't get me wrong... I still have down days, days of frustration, depression, anger and all the rest. But they are getting farther and fewer between. I think most of my anger and hurt comes from seeing others have to suffer and go through so much more than I am. boy I have rambled on and I apologize. I hope some of this makes sense... Just know you are not alone and we are all here for you. (guess that'a all I needed to say in the first place. LOL) . hugs << Ok, this will sound strange, but I'm seriously wondering about this. Does RP ever quit being primary in your life? I mean, it's always " with me " . >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2002 Report Share Posted September 15, 2002 Sqeek, First, I love your mice! The one you've chosen lately is very cute! It's nice to know I'm not the only one with the " sidecar " . I hope we both are able to disengage it in the near future. Take care and I hope you're feeling better than you were! M Quote Link to comment Share on other sites More sharing options...
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