update

[Guest guest]

Well, yes I am still here, but it looks like it might not be for long.

It seems like I have these two extra problems working against me. The

GI stuff has come back. I used to get backed up so much when I was a

teen, and I had to drink go-litely all the time. Now it's back and so

is the go-litely. I so drank that and it cleared me out a bit, not

all. The way I learned to combat the problem of obstructions was to

work out. A brisk 30 minute walk always helped me clear stuff out.

But since I've been in here and unable to move I got blocked up, it

seems obvious to me. The doctor is not convinced by that and keeps

giving me the go-litely. Drinking that stuff night after night is

horrible. I can't do it for ever. So yesterday I decided that I am

going to try to work out, here. I feel safe in the hospital, so if

anything went wrong I would be here. I did a 30 minute brisk walk

around the halls - and it was great. My legs are weak, but my lungs

really did well. My saturation stayed up, and I felt really good.

really strong. Then, an hour later (like magic) I went to the washroom

and everything is fine. So I have learned a lot about listening to my

own body, and that sometimes I need to do my own thing to get better.

No more go-litely. That stuff is horrid.

The other issue I have (new) is a build up of bile in my liver that

they have to drain. They are going to try to give me a pill to do

that, and if it does not work, they have this procedure that you are

out for where they stick something up your nose to drain it. I'm

hoping for the pill!!!!

So until this is all cleared up I am staying here, but since my lungs

are good, a FEV1 30% (but I am feeling really strong) once this other

stuff is clear I am free to go home. Fingers crossed nothing else

comes up.

Natalia

24 w CF