Re: OMG its back again:(:(:(:(

[Guest guest]

Patty,

Poor little Tyler. I am sorry to hear that he is having trouble. I

also feel bad for you. It's hard to juggle family and a sick child.

Does your husband compete with the kids for your attention? My dad

gets jealous if my mom spends too much time caring for a great

grandchild. I think that he likes having her focus the majority of

her attention on him.

Good Luck,

Gale

> OMG can you believe after Tyler had iv timentin and tobramycin in

dec

> i have a VERY strong suspicion that damned psuedomonas is back, or

> worse, still there.

> Hes on tobi every other 28 days now and this is his on month.Using

> albuterol, pulmozyme, and the tobi along with the vest daily.

> I CANT have another iv treatment, may marriage cant sustain the

> pressure of me being away, (and him having to actually be

responsible

> with out my acting as his mother).I cant believe this.Ty threw up

> mucus in the morning....what am i doing wrong???

> Swear if he coughs anymore his lungs will shoot out clear across

the

> room!!!!!!!!

> OMG!Im beside myself.

> This disease has consumed our lives....

> Cf is so on my brain 24/7 with no end i care to face.

> PLEASE, any advice?(before i lose my mind)

>

> Patty, mom to ty8wcf that just never lets up, and 2 wocf

[Guest guest]

Patty,

I am so sorry to hear that Tyler is coughing so much. used to throw up

mucus a lot when she was sick. If he has a sinus thing going on, it could just

be that he is swallowing it instead of spitting it out. the nasty mucus will

make his tummy upset. That stuff is better out than in.

Do you think you could do IV treatment at home if it is necessary? Any time

that you have to go into the hospital with your child is hard on everyone

involved.

You are NOT doing anything wrong. You are doing everything that the doc's are

telling you. You are doing your best and that is what will help. Keep it up.

How many doses of neb/chest pt are you doing now? has the doc recommended that

you increase?

I hope that Ty is feeling better soon.

mom of 5 with CF

OMG its back again:(:(

OMG can you believe after Tyler had iv timentin and tobramycin in dec

i have a VERY strong suspicion that damned psuedomonas is back, or

worse, still there.

Hes on tobi every other 28 days now and this is his on month.Using

albuterol, pulmozyme, and the tobi along with the vest daily.

I CANT have another iv treatment, may marriage cant sustain the

pressure of me being away, (and him having to actually be responsible

with out my acting as his mother).I cant believe this.Ty threw up

mucus in the morning....what am i doing wrong???

Swear if he coughs anymore his lungs will shoot out clear across the

room!!!!!!!!

OMG!Im beside myself.

This disease has consumed our lives....

Cf is so on my brain 24/7 with no end i care to face.

PLEASE, any advice?(before i lose my mind)

Patty, mom to ty8wcf that just never lets up, and 2 wocf

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The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

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