Re: oral gsh in cf - not good

[Guest guest]

Your kindergarten explanation is excellent. Thank you , I

could not explain it, at all.

> From reading the Sharktank list on yahoo groups, my understanding

is

> that people with cf should not take gsh orally.

> The rationale is that there is already too much gsh INSIDE cf

cells,

> not enough on the outside, and a problem getting it to the

outside.

> Taking it orally may increase the gsh inside the cells, which is no

> good.

> I have also read that oral NAC is bad for people with cf to take,

> because it may help make more gsh in the cells, a bad thing.

> In case it isn't obvious from my kindergarten explanation above, I

> will go ahead and mention that I am not a doctor or a scientist,

and

> that any medical advice you get should come from someone who is.

>

> ~

[Guest guest]

In a message dated 2/9/2004 6:03:16 PM Central Standard Time,

ma8169@... writes:

From reading the Sharktank list on yahoo groups, my understanding is

that people with cf should not take gsh orally.

The rationale is that there is already too much gsh INSIDE cf cells,

not enough on the outside, and a problem getting it to the outside.

Taking it orally may increase the gsh inside the cells, which is no

good.

I have also read that oral NAC is bad for people with cf to take,

because it may help make more gsh in the cells, a bad thing.

In case it isn't obvious from my kindergarten explanation above, I

will go ahead and mention that I am not a doctor or a scientist, and

that any medical advice you get should come from someone who is.

~

So why is my daughters show so much improvement???? Deb A

[Guest guest]

> So why is my daughters show so much improvement???? Deb A

>

>

Ah, well, THAT I don't know. (This goes along with my not being a

scientist or a doctor, and not being a good candidate to hand out

any medical advice.)

Why does my son do so well with Mannacleanse? It's not supposed to

fix his digestion problems, can't figure out how any of the

ingredients in it could make him digest his food better, and yet...

it just works for him.

I just thought I'd pass on the information that I'd seen on

sharktank about oral gsh and nac not being good in cf, since there

had been some discussion here about people using gsh. We all know

that each individual is different, even in reactions to prescription

medications given by specialists.

I have no clue why it works for your daughter, but I'm glad it does!

~

[Guest guest]

In a message dated 2/10/2004 5:29:59 PM Central Standard Time,

kimpayne@... writes:

One way to be sure you keep your GSH levels high is to be sure you

get enough magnesium. Remember, studies show that if you're deficient

in magnesium then you will be deficient in antioxidants A, C, E,

coenzyme Q10, selenium, GSH and GSH substrates.

Is it coincidental that these are the very antioxidants that are low

in CF? I don't think so, but again... just my guess.

Kim

Oh yes Kim we are taking our magnesium faithfully!!! And thanks for your

thoughts on this I always feel better know you say that it is OK because you

know

so much about all of these vitamin. The magnesium has been wonderful for us so

far. My hubby is doing better too! He was having kidney stones for the last

two years and this year he didn't! I contribute it to the magnesium! Thanks

again!! Deb A

[Guest guest]

Deb,

I think (not sure but it sounds like a sound guess) that not everyone

is created equal -- even everyone with CF.

My son did well -- actually, great -- when he took oral GSH. However,

some people may not do well with oral or even inhaled GSH. Everyone

is different. And while some people do better inhaling the buffered

GSH, I know at least one mom who says her daughter does better using

the " old " unbuffered GSH.

I realize that most fellow Sharktankers indicate that oral GSH is not

a good thing. But if you pin them down, they'll concede that it's

only a theory based on what's known about GSH getting trapped inside

the cell. All this science is still new territory, though we've been

looking at it for several years.

GSH is manufactured by the body and for various reason, some

populations (not just CF) don't have enough outside the cell. As we

get older, our GSH stores decline. Two and a half years ago, I tried

taking 500 mg. per day oral GSH; in two days I ended up with a really

bad case of constipation. That's not fun when you have IBS, believe

me! So I stopped.

One way to be sure you keep your GSH levels high is to be sure you

get enough magnesium. Remember, studies show that if you're deficient

in magnesium then you will be deficient in antioxidants A, C, E,

coenzyme Q10, selenium, GSH and GSH substrates.

Is it coincidental that these are the very antioxidants that are low

in CF? I don't think so, but again... just my guess.

Kim

> So why is my daughters show so much improvement???? Deb A