liver/ LA/pred use for long periods of time

[Guest guest]

Hi ,

My liver tests (blood test for liver enzymes) came back bad a lot when on meds for RP. I too had the liver scan, also pancreas, gall bladder, everything in that area. Test came back all fine. Hopefully yours will too. RP meds came really get your liver out of whack, but ultra sound is very helpful in determining if there is or is not a problem.

I have been on lots of different meds for RP and pred was a major one for quite a few years.

Also, do want to mention that Angie was told she would never be able to totally go off of the Pred because she had been on it for so long. If you have been on it for many many years, you also might not ever be able to go off of it, but you can still reduce the dose so that it is only doing what your adrenal gland did before the pred. I'm talking 3 to 10 mgs of pred. very small dose. Just wanted to mention this because I know some of you are getting so discouraged when you can't go down far enough without a flare of some kind.

Your adrenal gland may not ever be able to be "jump started" back up again, BUT you can still get the dose very low where it is only doing the job the gland did before it stopped working and not have all the bad side effects.

Please try not to worry about the scan. I pray everything will be fine for you.

W

>>>>>>>>>>>>>>>>>>>>

i finally got my ultra sounds scheduled-they are thursday at 9:30am, Also I go my blood test back from my general practioner he said I had a mild inflammation on two liver functions. Also, I have my appt. with the uroligists on thurs, so I guess we will see. I am currently on 30 mgs of Pred. and life still hasn't gotten any better. Thanks for the prayers-

michelle

[Guest guest]

, glad your ultra sound of your kidneys came back okay. Let us know about this next test too. It is always a relief to know the tests are normal, but doesn't help the way we feel. sometimes I know I hope for just a small, really small thing to show up so they can fix it. Hang in there and know we are all here for you. 30mg is so much better then 80mg of pred so you are doing something right.

Hope you enjoy your weekend.

hugs