Re: Hello, New guy, same bad pancreas

[Guest guest]

Hi Mike, welcome aboard. You certainly have been through a lot.

You had a total pancreatectomy? I'm just trying to understand. It

did not give you any relief at all? How long ago did you have it?

I also had a total, about 9 weeks ago, I think. I had mine done in

Cincy. Feels like it has been an eternity, like its been months and

months and months. I am going nuts sitting around the house all the

time and am just aching to go back to work. Every once in a while I

will turn a certain way, or strain a bit and will get this really

super sharp pain. It scares me sometimes but I just try to relax

and let it subside.

I think I still have a lot of surgical healing going on in there. I

have heard a lot of people say that it takes up to a year before our

bodies get settled in with all the changes that the surgery leaves.

But I still find that I need some narcotics from time to time,

unfortuneatelty.

I'm sure you will have lots to share with the members of this

board. I hope you feel better soon.

Warmly,

Chrissy

[Guest guest]

Welcome Mike!

All I can say to this is that I hope you give your mother a big hug every day!

What a blessing it was that she finally made sure that you went somewhere

where you could get someone to believe you. It's hard to imagine that you

were having to endure that kind of pain for so long.

You've been fortunate, too, not to have had any problems with diabetes,

considering how little pancreas you had left for all that time. When was the

surgery done where they removed the spleen, diseased pancreas and gall

bladder?

After just receiving notification that I'm going to be receiving SSDI disability

after a grueling two year struggle and all the initial denials, too, I can

understand how frustrating that whole experience has been for you. Isn't it

just such a relief to have that over and know that you're going to have the

benefits that you're entitled to? I'm still a bit in awe about the whole thing.

I hope you can find the support and friendship here, Mike, that you're looking

for. We have a wonderful group of caring, unselfish people here who are

always willing to help each other with their problems and questions, or to

share a laugh with. Feel free to join in whenever you wish.

With love, hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina State Rep.

South Eastern Regional Rep., PAI

Note: All comments or advice are from personal experiences or opinion only,

and should not be a substitute for consultation with your medical professional.

[Guest guest]

Mike,

I can't speak for anyone else, but I like the way you write. You

tell about your experiences in your own way. It makes sence and

thanks for sharing with all of us.

Clayton

[Guest guest]

Thanks Clayton, I mean that. I am a different type of person than

most, humor and fun are who I am. The terms I use are not the ones

the dr.'s use or the medical people, I leave that to them and my

wife, lol. Some think I like to ramble on a bit, I agree, Love to

talk. My problem now is I get no outside life day to day, only

conversations I get are with people younger than 10, I get to win

most, and my wife loves it when she gets home and I don't shut up for

a few hours, she nods and hopes I run out of air. Caller ID has hurt

me too, people she my name on the phone and all I get to do is fill

the answering machine up with one message. Good thing I can't type

better or this site would need more bandwidth. If I get out of hand,

please tell me to be quite, I'll understand and tellyou so in a few

minutes, lol. What was this thread about again?

Mike

>

> Mike,

>

> I can't speak for anyone else, but I like the way you write. You

> tell about your experiences in your own way. It makes sence and

> thanks for sharing with all of us.

>

> Clayton

[Guest guest]

Mike,

Don't worry, the meds do funny things to many of us.....I ALWAYS like to talk

or write too much, too, so I don't think I can blame it on the meds....lol!

It's good that you kept pushing for your disability. I've heard stories just

like

yours about the Dr.'s that are working for the SSDI.....it's their mission to

find

" some " kind of job, no matter how menial, or that it's not something that's

even available in your area. As long as they can place you into some

catagory, then they can say you're still qualified and could work. My attorney

warned me about this, too, saying that there would be a Vocational Counselor

at my hearing and that the man would find " something " , like sitting watching

TV monitors at a mall or something. When I protested that I can't sit for

longer than an hour or so, my attorney said, " yes, I know, but that doesn't

matter, he'll find something! " So I'm so grateful for the early decision so I

didn't have to face that.

I've heard that most of the judges are well experienced in knowing what a

person with CP and the other related medical problems can and cannot do,

and are usually sympathetic and knowledgeable enough to award the

benefits, you just have to get by all the inexperienced doctors and other

reviewers along the way that don't know beans about it.

You were fortunate to have so much help from your parents during those

times when you couldn't do anything yourself. I've heard stories from a lot of

people who were fighting for disability that lost everything they owned in the

process of getting it, or came so close that they had financial difficulties for

years afterward. It's really a shame that the system is so hard for these

people, yet I do understand that they do have to keep the scammer's out of

the SSDI treasury, and there are a lot of people who go for it when they really

don't have the rights to.

Glad you're here, just let us know if there's anything we can do for you.

With love, hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina State Rep.

South Eastern Regional Rep., PAI

http://www.pancassociation.org/anthology#Heidi.html

Note: All comments or advice are from personal experiences or opinion only,

and should not be a substitute for consultation with your medical professional.

[Guest guest]

Mike,

live with it! So you like to chat, talk and communicate? I'd say

that is a good thing. I do about the same thing too! Infact, I get

paid to talk, (I am a salesman/consultant). So I can relate.

Clayton