Re: SCD and ammonia- explanation from gastroenterologist

[Guest guest]

>

> I assume you are working with a metabolic specialist if your child

has hyperammonemia. What does the specialist say about SCD and that

condition?

>

> -

The other specialist we consult with is a gastroenterologist in Boston

who specializes in children with autism. I cannot cut/paste anything

of his for you, but I'll try to summarize as best as I can what he

said to me.

Doc said: " Your sons' diet created an alkaline environment (and it

did...I monitored urine pH with strips and was happy that they were

consistently alkaline) which is good for keeping yeast at bay, but is

an environment that certain types of bacteria thrive in. It can also

cause a build up of ammonia, which is exacerbated by the overgrowth of

the bacteria. If you acidify the gut, it will create an unfriendly

environment for the bacteria. Die off from the bacteria may help your

efforts to lower the ammonia levels. Your son has high levels of the

bacteria pseudomonas and high blood ammonia levels. Let's try Flagyl,

followed by Lactulose. "

That is what he said to me as best as I can retell it. He said once I

got the bacteria under control, the yeast would likely subside as

well. He also said that once I lowered the ammonia level, I might see

" the fog " lift. Billy is definitely in a thicker fog than ever

before. I hope he will recover with the use of these drugs. If not,

I am curious if anyone in this group who may have encountered the

problem found another way to lower the ammonia.

Janice

[Guest guest]

I would call in a metabolic specialist as well to get their take. It seems like

they should be able to give you an exact protein count for your child & maybe

have a dietician write up the diet with the proper ratios. HBOT removes excess

ammonia & other metabolic waste.

I assume Dr. Buie is the specialist you are referring to -- if so, does he put

patients on SCD himself?

-

Janice Crabtree wrote:

>

> I assume you are working with a metabolic specialist if your child

has hyperammonemia. What does the specialist say about SCD and that

condition?

>

> -

The other specialist we consult with is a gastroenterologist in Boston

who specializes in children with autism. I cannot cut/paste anything

of his for you, but I'll try to summarize as best as I can what he

said to me.

Doc said: " Your sons' diet created an alkaline environment (and it

did...I monitored urine pH with strips and was happy that they were

consistently alkaline) which is good for keeping yeast at bay, but is

an environment that certain types of bacteria thrive in. It can also

cause a build up of ammonia, which is exacerbated by the overgrowth of

the bacteria. If you acidify the gut, it will create an unfriendly

environment for the bacteria. Die off from the bacteria may help your

efforts to lower the ammonia levels. Your son has high levels of the

bacteria pseudomonas and high blood ammonia levels. Let's try Flagyl,

followed by Lactulose. "

That is what he said to me as best as I can retell it. He said once I

got the bacteria under control, the yeast would likely subside as

well. He also said that once I lowered the ammonia level, I might see

" the fog " lift. Billy is definitely in a thicker fog than ever

before. I hope he will recover with the use of these drugs. If not,

I am curious if anyone in this group who may have encountered the

problem found another way to lower the ammonia.

Janice

---------------------------------

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[Guest guest]

That's probably great advice. All of our metabolic results are not in

yet, so we've been waiting on those to decide if we need to see a

metabolic specialist. in the meantime, we've added in metabolic

supports like CoQ10, ATP, Carnitine, etc.

We tried 40 sessions of HBOT/hard chamber and saw no improvement in

ammonia, yeast, bacteria, language or fine motor skills. (We did see

some improvement in gross motor coordination) In fact, he was worse

overall when we were done. If it weren't for bad luck, we'd have no

luck. Hmmm, too negative!! Let's say, we are still searching for the

perfect interventions for Billy (Colby, too). I refuse to give up; I

just know there's a way to make them feel better.

Thanks so much for your input.

Janice

Mom to Billy (4-classic autism) and Colby (3-ASD)

> >

> > I assume you are working with a metabolic specialist if your child

> has hyperammonemia. What does the specialist say about SCD and that

> condition?

> >

> > -

>

> The other specialist we consult with is a gastroenterologist in Boston

> who specializes in children with autism. I cannot cut/paste anything

> of his for you, but I'll try to summarize as best as I can what he

> said to me.

>

> Doc said: " Your sons' diet created an alkaline environment (and it

> did...I monitored urine pH with strips and was happy that they were

> consistently alkaline) which is good for keeping yeast at bay, but is

> an environment that certain types of bacteria thrive in. It can also

> cause a build up of ammonia, which is exacerbated by the overgrowth of

> the bacteria. If you acidify the gut, it will create an unfriendly

> environment for the bacteria. Die off from the bacteria may help your

> efforts to lower the ammonia levels. Your son has high levels of the

> bacteria pseudomonas and high blood ammonia levels. Let's try Flagyl,

> followed by Lactulose. "

>

> That is what he said to me as best as I can retell it. He said once I

> got the bacteria under control, the yeast would likely subside as

> well. He also said that once I lowered the ammonia level, I might see

> " the fog " lift. Billy is definitely in a thicker fog than ever

> before. I hope he will recover with the use of these drugs. If not,

> I am curious if anyone in this group who may have encountered the

> problem found another way to lower the ammonia.

>

> Janice

>

>

>

>

>

>

> ---------------------------------

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> with theYahoo! Search movie showtime shortcut.

>

>