Re: why aren't more people having TP/ICT?

[Guest guest]

, I know how you feel about the feeding tube. I had one also and I

hated it. I had to have it for a month. I had my TP/ICT on Sept. 24, 2004

and it was the best thing that I have done. I feel absolutely great now. I

am off all narcotics and got my life back. I waited 2 1/2 years since my

diagnosis of chronic pancreatitis to have it done. I wish I would have done

it sooner. I only received 105,000 islet cells so I am type 1 diabetic. I

had tried everything else and the TP/ICT was my only hope. It worked for me.

Not too many places offer this service though. I had mine done by Dr.

Sutherland at Fairview Medical Center in Minneapolis, MN. He was absolutely

excellent!

Darren

[Guest guest]

Oh my! I have never heard of having to have feedings all day like that! How

horrible that must be. Can you go anywhere or do anything? I am so sorry! Why

did you have to have that done if you don't mind my asking? Did they remove

your pancreas? My prayers are with you! Hang in there!

Angie in SC

" The happiest of people don't necessarily have the

best of everything; they just make the best of everything that comes along

their way. "

[Guest guest]

,

just an fyi, you asked why many of us haven't had the TP/ICT. I

personally haven't had it because I don't qualify for the surgery

because I am already diabetic, so there are no islet cells left to

retransplant into me. If I had a total pancreatectomy I would need a

full pancreas transplant and that means taking immunosuppressive drugs,

which I really don't want to do and probably wouldn't be able to afford

once I go on medicare in about 5 months from now. I'm sure there are a

number of us who have similar situations as mine.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.