Re: Re: SCD and ammonia

[Guest guest]

Janice,

Is your child eating a lot of protein foods? High ammonia is not a common

problem, in my experience here.... except in kids who are limited on fruit and

prefer large quantities of meat, and don't like veggies, so eat few of them.

Patti

Re: SCD and ammonia

Hi ,

How have you made out with your ammonia issues? Which treatments of

those that were recommended did you try?

I had my sons on SCD foods for five months and found they had the most

beautiful stools and they were willing to eat a wider variety of foods

than they had been willing to eat, but their urine smelled horrid. I

didn't realize that this was ammonia building up until it was too

late. I had only been giving the kids SCD foods for five months when

I found the high ammonia level, but I've been working for seven months

now to lower the ammonia levels.

Dr. Yasko's protocols were mentioned by Colleen. Those have not

budged my sons' ammonia levels. My son had major regression from the

ammonia build up, and I am going to try Lactulose. I know another

poster mentioned that she had heard of other ASD kids not doing well

with this drug, but we are out of options. My son's cognitive level

has plummeted and his autistic symptoms have escalated. He even had

to be placed in a different school.

Is there anybody on this list who had success with Lactulose? I have

tried tons of lactobacillus already; I continue to use it, although

it does not lower the ammonia. We cannot use the yogurt; it appears

to make my younger son slur his speech and the kind people of this

group recommended that I not use it for that reason. Is there any

other agent anybody's had success with in lowering ammonia?

Janice

Mom to Billy (4) and Colby (3)

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[Guest guest]

I assume you are working with a metabolic specialist if your child has

hyperammonemia. What does the specialist say about SCD and that condition?

-

Janice Crabtree wrote:

Hi ,

How have you made out with your ammonia issues? Which treatments of

those that were recommended did you try?

I had my sons on SCD foods for five months and found they had the most

beautiful stools and they were willing to eat a wider variety of foods

than they had been willing to eat, but their urine smelled horrid. I

didn't realize that this was ammonia building up until it was too

late. I had only been giving the kids SCD foods for five months when

I found the high ammonia level, but I've been working for seven months

now to lower the ammonia levels.

Dr. Yasko's protocols were mentioned by Colleen. Those have not

budged my sons' ammonia levels. My son had major regression from the

ammonia build up, and I am going to try Lactulose. I know another

poster mentioned that she had heard of other ASD kids not doing well

with this drug, but we are out of options. My son's cognitive level

has plummeted and his autistic symptoms have escalated. He even had

to be placed in a different school.

Is there anybody on this list who had success with Lactulose? I have

tried tons of lactobacillus already; I continue to use it, although

it does not lower the ammonia. We cannot use the yogurt; it appears

to make my younger son slur his speech and the kind people of this

group recommended that I not use it for that reason. Is there any

other agent anybody's had success with in lowering ammonia?

Janice

Mom to Billy (4) and Colby (3)

>

> Hello

>

> We did SCD for several months laat year and I am sure it really helped

> Tom's gut. Proper stools for the first time in years and rosy face

> with no dark circles. HOwever, he lost weight and he's tiny already,

> he's been about 42lbs for the past year and in that time he's grown

> upwards by 2 inches. In consultatoin with his school we stopped it and

> reverted to GF/Cf. But we know he craves things like rice cakes which

> seem to just show immediately on his face as dark eye circles. It's a

> very precarious exercise trying to feed him up whilst not overloading

> his ammonia. He had a major impaction in the summer - which we think

> we've now cleared.

>

> We're really keen to try SCD again but now discover that he has high

> ammonia. So we're assuming that SCD would be a real no no. Is there a

> way round this? I want that healthy faced boy back but preferably with

> more weight on his bones and not exacerbating his aggression which we

> think is triggered by ammonia.

>

> Any thoughts?

> thanks

>

> , UK mum of Tom, 8, finally making great progress but getting

> really aggressive from time to time.

>

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