Re: i was just wondering

[Guest guest]

Susie,

My GI told me that it is still possible to have sludge in the ducts

once the gallbladder has been removed. That was one of his possible

suggestions as to why I still experienced panc attacks after

surgery, although it wasn't my gb that was the problem, but it got

removed anyway due to the surgery I was having.

[Guest guest]

thank you so much w. im so worried. we are leaving for disney with the

kids next saturday and im so afraid of having attacks while we are away. i

dont have to tell you how bad the pain is and it seems to happen more often

when i am stressed. Its good to know that i am not alone. I have felt for the

past year that i am in this alone and no one seems to understand. Everyone in

my family seems to also believe that its my nerves and that is very

dissappointing to me to feel that i dont really have anyones support. I thank

the lord

that i have found this group thanks to a wonderful woman that lives in New

Mexico that you all know and love also!!! What causes this problem??? Did i

have my gallbladder removed unnecessarily???????? What can they do to treat

this

problem?????

thank you again,

susie - south jersey

[Guest guest]

thank you Pam. Its so hard to find a good doctor around here. My GI doctor

is very kind but he did tell me that all my problems would go away after i had

my gallbladder removed and they didnt. i did have sludge so i guess it was

diseased but it seemed like after they removed it, the attacks got worse and

became more frequent. im hoping after the holidays when he starts doing all the

tests that he will have some better insight on whats going on and how to get

it under control.

your friend in south jersey,

susie

[Guest guest]

:

Eventhough i had sludge in my gallbladder that may have not been the

problem????? I just received and email telling me that the attacks could be

fatal.

is this true??? im very scared now. How do i know whether i should go to the

hospital the next time i have an attack????? i just curl up in a little ball

and stick it out. should i not be doing this????????

[Guest guest]

Dear :

Thank you so much for setting me straight. I do not drink, im funny enough

without the alcohol!!! (LOL) or so i am told!!!! If you knew me you would be

suprised that i would be worried about my health at all!! im always doing fun

things with my family, i love my family so much. i love my children and their

friend and i look forward to the times when my husband and I are just

enjoying eachothers company. I have been doing my best not to even tell them

when im

having an attack, eventhough my daughter is very open to that sort of thing,

she knows me so well and she is so helpful when im not feeling very well. im

just not used to this being sick and i dont like it!!! i hate it that the

doctors make me feel like im faking or that its my nerves, i definately dont

need

to waste time at the hospital it i dont have to, there are lots of other

things id rather be doing, like playing Dance dance revolution with my 13 year

old

daughter!!! im only 41, im too young to feel old. I just want to know as

much as i can about this illness so i can start living again. its already taken

a year from my life and i dont want that to continue. Now that you've put my

mind at ease i know i will take it easy but i can still go on the roller

coaster, i just may have to take a break in between!!! again, thank you.

susie - south jersey

[Guest guest]

Susi,

It is rare for an attack to be fatal, however it can happen. The

reason it can be dangerous is that when one has a pancreatitis

attack, toxins can leak into the bloodstream and cause major organs

to shut down. I believe from what Heidi mentioned (I think it was

her), that is more common in one who drinks alcohol a lot or

constantly and doesn't stop drinking because of the attacks, but we

all know this is not to rule, it is just a more likely scenario.

I myself wondered how a doctor could tell me to try and outlast the

attacks at home using pain meds through a pain management doctor

rather than spending all my time in hospital, but my attacks were

always so severe that I was unable to stay at home.

There are a number of people on this site who have suffered with

pancreatitis for most of their life with no fatal danger to their

lives, so I wouldn't be worrying yourself unneccessarily about this.

If you have a good doctor, ask them to write you a letter regarding

your pancreatitis attacks that you may show to an ER doctor on the

off chance that you might need to go to a different hospital at any

time. This can help immensely with those who go strictly by the book

and don't believe about our panc attacks when symptoms differ from

the norm as do the reasons for having it.

And I know it's easier said than done, as I've been there, done that

and still doing it, but try your hardest to let go of thinking about

the possibility in having an attack, and enjoy yourself and your

family at Disneyland. Don't over do things, even if it means you

have to sit down for a few minutes whilst your husband takes your

son on some rides and then you can catch up with them later. As well

as staying hydrated and eating sensibly as to how it works for you

best.

For 2 years I was scared to go anywhere, and my outings were

restricted to just going the 15 minutes into town and then it was

rare for me to go on my own or just with my little girl.