Guest guest Posted January 24, 2004 Report Share Posted January 24, 2004 Were going away tomorrow till Monday night. Just a break before school starts on the 2nd Feb. and before another round of IV's. Were staying overnight on s converted train carriage. There is a pool and mini golf and its only 20 minutes from home in the Barossa Valley. Eilish's cough is still bad. We see the dr. Wednesday. I have a question. If they decided to let her have pulmozyme will they put her on IV's again to get rid of the cough and start fresh or just start it? Her cough is very loose and mucusy (is there such a word). I took them go-carting today. What a laugh. We took it up hills and they flew down the hills. Eilish stacked it once but still went on it. Had such a laugh. They had a friend each sleep last night. I am teaching Eilish's BF mum how to do PEP on Thursday as she is taking Eilish to sleep there Thursday night and will do it with her. She is very good about all Eilish's stuff. She does the enzymes and counts all the fat content etc. I think we've found a special person there. Have a good weekend everyone (Australia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2004 Report Share Posted January 24, 2004 Hi , I hope you guys enjoy your weekend ) I feel so bad questioning the list about the Pulmozyme for when you need it so badly for Eilish. I hope and pray that you will be able to get it for her. That must be great to have her friend's mom care so much about her tmts and counting the fat. Sounds like you truly have found someone special. ) Take care, Deana, Mom to 13 no cf and 7 wcf ----- Original Message ----- > Were going away tomorrow till Monday night. Just a break before school > starts on the 2nd Feb. and before another round of IV's. Were staying > overnight on s converted train carriage. There is a pool and mini golf > and its only 20 minutes from home in the Barossa Valley. Eilish's cough > is still bad. We see the dr. Wednesday. I have a question. If they > decided to let her have pulmozyme will they put her on IV's again to get > rid of the cough and start fresh or just start it? Her cough is very > loose and mucusy (is there such a word). > > I took them go-carting today. What a laugh. We took it up hills and > they flew down the hills. Eilish stacked it once but still went on it. > Had such a laugh. They had a friend each sleep last night. I am > teaching Eilish's BF mum how to do PEP on Thursday as she is taking > Eilish to sleep there Thursday night and will do it with her. She is > very good about all Eilish's stuff. She does the enzymes and counts all > the fat content etc. I think we've found a special person there. > > Have a good weekend everyone > > > (Australia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2004 Report Share Posted January 24, 2004 I envy you:):)Have fun!Patty H:) > Were going away tomorrow till Monday night. Just a break before school > starts on the 2nd Feb. and before another round of IV's. Were staying > overnight on s converted train carriage. There is a pool and mini golf > and its only 20 minutes from home in the Barossa Valley. Eilish's cough > is still bad. We see the dr. Wednesday. I have a question. If they > decided to let her have pulmozyme will they put her on IV's again to get > rid of the cough and start fresh or just start it? Her cough is very > loose and mucusy (is there such a word). > > I took them go-carting today. What a laugh. We took it up hills and > they flew down the hills. Eilish stacked it once but still went on it. > Had such a laugh. They had a friend each sleep last night. I am > teaching Eilish's BF mum how to do PEP on Thursday as she is taking > Eilish to sleep there Thursday night and will do it with her. She is > very good about all Eilish's stuff. She does the enzymes and counts all > the fat content etc. I think we've found a special person there. > > Have a good weekend everyone > > > (Australia) > > > > Quote Link to comment Share on other sites More sharing options...
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