Re: My scope is off for tomorrow

[Guest guest]

---

,

Thanks for the prayers!!!! Man, I will be praying for you. Sounds like

you are having a rough time right now. You are such an AWESOME

person!!!! You are always caring about everybody, even though you are

having a rougher time. I'll be praying for you, let me know how you

are when you get back from your visit. Will let Mom know you said

Hi..... She just loves all of you so so much. Doesn't stop talking

about all of you. You are such a sweet person.

love always,

Kim

In Rpolychondritis@y..., RCColloran@a... wrote:

> boy what a day I had today. I have been fighting with drs. all day.

I will

> try to make this as short as possible. I checked with my local

cardiologist

> and the urologist today to make sure that I didn't need to stop my

coumadin

> for the scope. They both said NO. I told them I was going to have

the level

> checked just to make sure it was okay. I got a call from the

cardiologits

> nurse and she said it was fine and to retake it in a month and to

continue on

> with the dose I'm taking. I asked her what the level was. She said

3.9.

> WELL, I'm suppose to be 2.0-3.0. Stanford had a fit when I went

above 3.0.

> I told her that was too high. She said no... they checked with

another dr

> because mine was out of town and he said I could go to 4.0

>

>

> Well I called my cardiologist at Stanford and the nurse there said "

NO way "

> She said she would check and call me right back. Well she did. What a

> sweetheart. She said that for all procedures, with my valve and

being on

> pred, etc. I was to stop my coumadin 3 days prior to any procedure

and that

> I was to give myself injections of Lovenox (Enoxaparin) in the

stomach. Then

> have the procedure done and the next day start the coumadin and 3

more days

> of injections then have a coumadin level done again. She said this

was very

> important because of the valve. I called the urologist to cancel

the appt

> and the nurse said she wouldn't do it until I talked to the dr.

Well, he

> called at 7pm. He felt I should still do it. He said he had done more

> scopes on cardiac patients and had had no problems bleeding. I told

him if I

> pulled a hang nail, I had to apply pressure. The blood test today took

> forever to stop bleeding. He was really nice about it, but didn't

agree. He

> told me to just let him know when my level was down. I told him

No.... just

> schedule the test and I would do as directed by Stanford. I

explained about

> the RP and that I was flaring now and with the chance of infection and

> hopefully the right antibiotic, I didn't want to take any chances

with any

> bleeding. He finally agreed. He said his nurse will call tomorrow

and see

> if we can schedule it for Monday. Geez...

>

> Then I tried to get appts with all my Stanford Drs for Nov before my

> insurance runs out and they are all booked. I was sooo mad... I got

a call

> from the Rheumy and they had a cancelation for tomorrow at 3pm so

I'm taking

> it. I can't get below 20 mg of pred. I have lots of questions to

ask and

> want to get them all in for my last visit.

>

> So.. sorry this was so long. Just wanted to let you know what my

day was

> like. LOL I did do great at rehab. Increased a bit on my workouts.

>

> I will be back tomorrow night. We are going to try to make the trip

in one

> day. So I will talk to you in the morning and then probably on Friday.

>

> Thanks for letting me vent again. Now I have to go look up the new

drugs

> that I will be taking.

>

> hugs

>

[Guest guest]

claudia, definitely let me know how you are doing? and why is your Ins going run out? are you going on another policy? I sure hope so. Prayers that this will resolve easily and the tests and others stuff to get done quickly. always, Barbara My scope is off for tomorrow boy what a day I had today. I have been fighting with drs. all day. I will try to make this as short as possible. I checked with my local cardiologist and the urologist today to make sure that I didn't need to stop my coumadin for the scope. They both said NO. I told them I was going to have the level checked just to make sure it was okay. I got a call from the cardiologist nurse and she said it was fine and to retake it in a month and to continue on with the dose I'm taking. I asked her what the level was. She said 3.9. WELL, I'm suppose to be 2.0-3.0. Stanford had a fit when I went above 3.0. I told her that was too high. She said no... they checked with another dr because mine was out of town and he said I could go to 4.0Well I called my cardiologist at Stanford and the nurse there said " NO way" She said she would check and call me right back. Well she did. What a sweetheart. She said that for all procedures, with my valve and being on pred, etc. I was to stop my coumadin 3 days prior to any procedure and that I was to give myself injections of Lovenox (Enoxaparin) in the stomach. Then have the procedure done and the next day start the coumadin and 3 more days of injections then have a coumadin level done again. She said this was very important because of the valve. I called the urologist to cancel the appt and the nurse said she wouldn't do it until I talked to the dr. Well, he called at 7pm. He felt I should still do it. He said he had done more scopes on cardiac patients and had had no problems bleeding. I told him if I pulled a hang nail, I had to apply pressure. The blood test today took forever to stop bleeding. He was really nice about it, but didn't agree. He told me to just let him know when my level was down. I told him No.... just schedule the test and I would do as directed by Stanford. I explained about the RP and that I was flaring now and with the chance of infection and hopefully the right antibiotic, I didn't want to take any chances with any bleeding. He finally agreed. He said his nurse will call tomorrow and see if we can schedule it for Monday. Geez... Then I tried to get appts with all my Stanford Drs for Nov before my insurance runs out and they are all booked. I was sooo mad... I got a call from the Rheumy and they had a cancellation for tomorrow at 3pm so I'm taking it. I can't get below 20 mg of pred. I have lots of questions to ask and want to get them all in for my last visit. So.. sorry this was so long. Just wanted to let you know what my day was like. LOL I did do great at rehab. Increased a bit on my workouts. I will be back tomorrow night. We are going to try to make the trip in one day. So I will talk to you in the morning and then probably on Friday. Thanks for letting me vent again. Now I have to go look up the new drugs that I will be taking. hugs DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU