GSH and transplant from Risa...

January 11, 2004

Click here: Pulmonary Function Trends

http://members.boardhost.com/Transbuddies/

Hi all

Most of you who read the Glutathione board regularly probably read my

recent posting about my rejection that recently was diagnosed. I

cannot blame Glutathione but it sure seems like it is pointing in

this direction. I no longer take Glutathione in any form. I feel at

this time, I need to make others aware of the possibility of the

dangers of taking any kind of glutathione for a transplant patient. I

knew of the possibility of the risks before I took it as it is an

immune boosting antioxidant. I have my theories which are logical why

this occurred but currently I am focussing on getting better and

making a complete recovery. The only very sad thing is that I was off

steroids for five years and have been rejection free for seven and a

half years. I only started taking Glutathione in March of 2003 and

failed to have my pulmonary tests checked as I was feeling way too

good. My PFT's dropped in the category that indicates rejection by

thirty to forty percent. I am back up twenty percent so I have half

way to go.

It is a proven fact that Glutathione raised my serum levels of my

anti-rejection medications therefore my absorption of these drugs

were increased. I was able to cut down by two grams during the time I

took GSH. I also believe that my body was under extra stress trying

to absorb and digest the drugs as well as taking Glutathione which

probably was trying to pull the drugs out but since of the direct

competition and absorbtion of the drugs, that is where I believe the

trouble lies and my body became toxic in glutathione. This is all

speculation on my part but it is proven that in my case I was

absorbing my drugs more rapidly and then again, I also do not know if

after a few months on Glutathione whether my drugs were working too

well because of the load on my body with glutathione. My drug serum

levels were checked and they remained fine. I started to get really

bad headaches and panic attacks and then I realized I could have

rejection. Tests were confirmed with a bronchoscopy that I have acute

rejection. I am counting my blessings as this type of rejection is

reversible.

Please share my story with your friends. I think it is very important

that the transplant community in general needs to know. If you belong

to any LISTSERVS please send them this email along with my new site

that will be most constructive. I will check the Glutathione board

often but will not participate as much as this is kind of stressful

for me at this time. I created a site which is motivational and

constructive and not controversial. IT is called " Pulmonary Function

Test Trends " a link to transplantbuddies.org

I hope this new site will keep folks like me motivated to keep on

track using their hand held micro-spirometer that is the earliest

sign of rejection or infection. If I had used mine properly, I would

have detected my rejection much early on and probably would not be

going through this treatment protocol in excess.

Please keep me in your Prayers as I might have a long road ahead to

get back where I started.

Sincerely,

Risa

http://transplantbuddies.org

http://members.boardhost.com/Transbuddies

January 11, 2004

DEAR RISA,

I am pleased that you are getting better as we write & hope that continues.

Prayers abound!!

LOVE & HUGS, GrandmoMBEV