Re: New here - 10 mo old near Chicago with CF

[Guest guest]

Dear Rita,

Welcome to the lists .We are always happy to see more folks on line.

There is a wealth of information here & also your experiences. even as

new as you are to CF will help another who was just Dx also. It so helps

to have others who have been there & done that to chat with

LOVE & HUGS, grandmoMBEv

New here - 10 mo old near Chicago with CF

Hello to everyone. Our daugher was diagnosed one month ago today

with CF. We're slowly adjusting to our new life, filled with daily

medicines and treatments. I look forward to chatting with you all

and am grateful to find this resource. With the long road ahead, I

need all the support I can get.

Rita

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

[Guest guest]

In a message dated 2/16/2004 2:38:22 PM Central Standard Time,

rita_gercone@... writes:

Rita

Hi Rita you are over the first hump of being diagnosed! REACHING OUT FOR MORE

INFORMATION!! It took me a lot time to get to that stage! I went through a

lot of anger at first and didn't want to know anything about it until we had

too. But then I slowing started learning more and realized I need to do thing

now

before there health would get worse. You have defiantly found the right place

there are a lot of wonderful people here!! I have two daughters with CF they

are 11 and 6 and I have a 9 year old with out CF. Deb A

[Guest guest]

Welcome Rita! What is your baby's name? How is she doing? I have a 20 year old

daughter wcf and have been there and done a lot. Great to have you join

our little list which is so great it keeps growing.

love,

M

Orange County Ca

[Guest guest]

Hi Rita,

Welcome to the list. You have found a great resourse for information and

support. I live in Northwest Indiana, so we may not be too far apart. I

hope you daughter is doing well and it gets easier. Stay strong!!

Colleen

Mom to Elyse, 3 w/ cf and one on the way

New here - 10 mo old near Chicago with CF

Hello to everyone. Our daugher was diagnosed one month ago today

with CF. We're slowly adjusting to our new life, filled with daily

medicines and treatments. I look forward to chatting with you all

and am grateful to find this resource. With the long road ahead, I

need all the support I can get.

Rita

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

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--

[Guest guest]

May I join in welcoming you to our list; we are never please to hear

of a new diagnosis, but do thank you for choosing our list!

Love to you, Rita, and all your family

Re: New here - 10 mo old near Chicago with CF

Welcome Rita! What is your baby's name? How is she doing? I have a 20 year

old daughter wcf and have been there and done a lot. Great to have you

join our little list which is so great it keeps growing.

love,

M

Orange County Ca

[Guest guest]

Hi Rita,

I live in Chicago. Where are you? I have a 24-year old son with CF

(and a 21-year old daughter, no CF). was diagnosed at age 4. He

grew up in Oklahoma but moved to Chicago in 1999 to attend Loyola

University... graduated in December 2002 and is now working full time

at a graphic design firm.

You'll find lots of support here... welcome!

Kim

Mom to and

> Hello to everyone. Our daugher was diagnosed one month ago today

> with CF. We're slowly adjusting to our new life, filled with daily

> medicines and treatments. I look forward to chatting with you all

> and am grateful to find this resource. With the long road ahead, I

> need all the support I can get.

>

> Rita

[Guest guest]

My baby's name is Gia and she is doing quite well, considering. She

had pneumonia at Christmas time, but her lungs are clear now. She

is a trooper when it comes to all the meds. Thank you for the

welcome!

Rita

[Guest guest]

Hi Kim - we live in the southwest suburbs, in Plainfield. How is

your son doing? We, too, have a son. Jake is 3 and a great big

brother. We found out two weeks ago that he does not have cf.

I find myself worry about things that aren't even issues yet, but I

think it's going to be a delicate balance giving Gia the attention

she needs for her treatments, etc. and not letting her use it as an

excuse to get away with things. On the other hand, I hope to not

make our son feel as if he is not as important because we have to

give her more of our time. I know I'm so paranoid about this, but I

freak out about everything.

Thanks for the welcome and I'm sure we'll be talking!

Rita

> > Hello to everyone. Our daugher was diagnosed one month ago

today

> > with CF. We're slowly adjusting to our new life, filled with

daily

> > medicines and treatments. I look forward to chatting with you

all

> > and am grateful to find this resource. With the long road

ahead, I

> > need all the support I can get.

> >

> > Rita

[Guest guest]

We all, who cope with cf FREAK OUT, especially if we are also parents

of a child wcf! That's just NORMAL!!! Love, and luck, n Rojas

Re: New here - 10 mo old near Chicago with CF

Hi Kim - we live in the southwest suburbs, in Plainfield. How is

your son doing? We, too, have a son. Jake is 3 and a great big

brother. We found out two weeks ago that he does not have cf.

I find myself worry about things that aren't even issues yet, but I

think it's going to be a delicate balance giving Gia the attention

she needs for her treatments, etc. and not letting her use it as an

excuse to get away with things. On the other hand, I hope to not

make our son feel as if he is not as important because we have to

give her more of our time. I know I'm so paranoid about this, but I

freak out about everything.

Thanks for the welcome and I'm sure we'll be talking!

Rita

> > Hello to everyone. Our daugher was diagnosed one month ago

today

> > with CF. We're slowly adjusting to our new life, filled with

daily

> > medicines and treatments. I look forward to chatting with you

all

> > and am grateful to find this resource. With the long road

ahead, I

> > need all the support I can get.

> >

> > Rita

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

------------------------------------------------------------------------------

[Guest guest]

Hi Rita,

We live in downstate IL. I was in Chicago just last week for the

auto show. It was fun but COLD. Our son Zach was diagnosed at 13

months on February 28, 2003. So we are nearing our one year

anniversary since diagnosis. I still have difficulty coping, but it

does get better. I would never cry in front of Zach, but the moment

I was in the van alone I would sob and sob. Now I have some bad

days but the good days are more often than the bad. I also freak

out about everything. It is natural to be very worried about a

chronically ill child. I don't know how many times I have posted to

the group about the silliest little thing that I thought was a huge

problem. The group is always so supportive and someone is always

there to give great advice or just say " yeah I know how you feel " .

Give Gia a big hug from all of us!

Sara

> Hello to everyone. Our daugher was diagnosed one month ago today

> with CF. We're slowly adjusting to our new life, filled with

daily

> medicines and treatments. I look forward to chatting with you all

> and am grateful to find this resource. With the long road ahead,

I

> need all the support I can get.

>

> Rita

[Guest guest]

Hi Rita!! Welcome to the list. I have a 19 month old daughter with CF, she was

diagnosed when she was 4 months old. I know it is overwhelming and very time

consuming, but with time the routine becomes normal to you. I also have a son

who is 4 & 1/2, he too is a great big brother.

I am glad that you found our list, and want you to know that you can feel free

to ask anything, someone here will have the answers for you.

Katy

Mom to Austin 4 no CF & Piper 19 months w/CF

[Guest guest]

welcome Rita,

I am sorry that you have gotten this diagnosis, but happy that you found us. My

daughter was diagnosed at 9 months with CF too! She is now 5 and hasn't been

" sick " for 3 years!

mom of 5 with CF and a boy on the way

New here - 10 mo old near Chicago with CF

Hello to everyone. Our daugher was diagnosed one month ago today

with CF. We're slowly adjusting to our new life, filled with daily

medicines and treatments. I look forward to chatting with you all

and am grateful to find this resource. With the long road ahead, I

need all the support I can get.

Rita

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

------------------------------------------------------------------------------

[Guest guest]

Rita,

Welcome to the group. I find a lot of comfort here. I hope that you

do too. I have a 2 year old grand daughter wcf. Her name is Abigail.

Gale

> Hello to everyone. Our daugher was diagnosed one month ago today

> with CF. We're slowly adjusting to our new life, filled with daily

> medicines and treatments. I look forward to chatting with you all

> and am grateful to find this resource. With the long road ahead, I

> need all the support I can get.

>

> Rita