Question for Kim regarding enzyme use with Celiac Disease

[Guest guest]

Kim,

How do enzymes mess up the system for someone who has celiac disease? My twin

two year olds have celiac and I just introduced enzymes three days ago. I will

pull them in a heartbeat if they cause harm and not any good. It was still too

early for me to tell if they were really helping or not. Any information you

can give me would be very much appreciated!

Dana

and Garrett

SCD 9 1/2 months

Celiac, ASD, Speech and Motor Apraxia

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[Guest guest]

I didn't see these two questions until after my loooong post. I did

address it there but will do so again here with the reason as to why

it can be important.

My son is extremely sensitive to gluten. A contaminated school desk

is enough to get him going (hand to mouth issues). The only way we

got around it was to wash, rinse and dry his desk (and chair) with 3

sets of paper towels.

We tried enzymes first though and they seemed to make the issue worse.

(When we did this diet, you need to remember that I had no support

group - just Elaine's book.) I didn't know why the enzymes weren't

helping (actually seemed to make things worse) and so I set out to

research enzymes.

The bottom line is that if you don't know the specific enzymes that

work for celiac disease... then you are better off taking none when it

comes to gluten contamination.

Kind regards,

KimS

>

> We need to know this too - we started enzymes about 3 weeks ago - We

have not come across anything on the websites about celiac or enzymes

about not taking enzymes if you have celiac. Is the info in regards

to taking enzymes and still consuming gluten - which we know you

cannot do if you are celiac. If celiac then no gluten at all - ever.

But if on SCD then one does not consume gluten anyway but the enzymes

could still help with digestion? We are still very new to all this

soooo - Back to more research I guess.

>

>

> W.

>

>

[Guest guest]

There are also some issues regarding use of enzymes for those who have

ulcerations and inflammation in the gut.... that the protease enzymes *can*

aggravate this, according to the experience of some of our list members. I know

there were some posts about this some time ago... and that some SCDers know of

Elaine's concerns about enzymes for individuals with severely damaged and/or

inflamed guts. I'm sorry I don't personally know any more than that. If anyone

else does, please post your experience.

Patti

Re: Question for Kim regarding enzyme use with Celiac

Disease

We need to know this too - we started enzymes about 3 weeks ago - We have not

come across anything on the websites about celiac or enzymes about not taking

enzymes if you have celiac. Is the info in regards to taking enzymes and still

consuming gluten - which we know you cannot do if you are celiac. If celiac then

no gluten at all - ever. But if on SCD then one does not consume gluten anyway

but the enzymes could still help with digestion? We are still very new to all

this soooo - Back to more research I guess.

W.