Guest guest Posted October 13, 2002 Report Share Posted October 13, 2002 Trigeminal neuralgia/facial nerve pain - Anyone else have this? I've had this for a long time. Since my ears have been flared up since July - during the worst of it - it seemed to have also triggered a flare in the facial nerve. The relentless pain of both things flaring nearly drove me to insanity. Hello and welcome to the group. I wanted to let you know that I also received a dx of trigeminal neuralgia and it is horrible. I was dx with this about 2 months after I was dx with RP. The Neurologist seems to think they are related. I also have had a hard time with my hearing in my left ear. What do you take for the TN? Does your face burn and have pain? I also started to feel burning-pain in my fingers and feet. Tell me what they are doing for you???? Once again, welcome to this wonderful group. I do know what you mean about the insanity part!!! LOL Hugs, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2002 Report Share Posted October 13, 2002 Hello and thank you and for the welcome - I appreciate this. I do have a lot of questions. I am trying to figue out which of my symptoms are related to RP and which belong to some other as yet undiscovered cause. Does anyone else have Raynaud's ? I have had this since my initial illness began. My hands and feet are red and numb when it is cold and I no longer have feeling in my fingertips. The other problem, that my doctors say is related - I have periods when my toes are swollen and burning so bad, it is like they are stuck in a roaring fire. I can't wear shoes or have anything touch them. The only relief is to elevate my feet or put them in ice water. During bad ear flares - my vertigo ( which started when I went deaf in my left ear in July) is much worse. Anyone else experience this? Trigeminal neuralgia/facial nerve pain - Anyone else have this? I've had this for a long time. Since my ears have been flared up since July - during the worst of it - it seemed to have also triggered a flare in the facial nerve. The relentless pain of both things flaring nearly drove me to insanity. Well I have lots more questions - but I best stop for now. Thank you again for making me feel welcome. It helps to be in touch with others- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Hi My son has RP and his Rheumy has given him Doxepin for facial nerve pain , it has worked great for his migraines too. I hope this helps ask yur doctor about it Phyllis Quote Link to comment Share on other sites More sharing options...
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