Guest guest Posted October 24, 2004 Report Share Posted October 24, 2004 Thanks Kris for the welcome! That's great you have found a great doctor. Is there anyone here from FL? Does anyone know of a good GI here in FL...around Tampa area? I like my GI doctor but it seems like I'm the one that has to come up with things for him to do. My PCP is wonderful and is always trying to do different tests to find out what is going on and what will make me feel better. But I feel my GI is too laid back. When I was hospitalized back in Feb of this year my Amylase level was 1212 and my Lipase level was 6982! And he only did an ERCP to look and told me there was stones passing through the ducts. But what is causing the stones.... I don't know! Those of you that have CP....are you also diabetic? And how were you diagnosed with CP? My GI feels I don't have CP because my pancreas looks healthy and is still functioning. But why the everyday pain? I don't understand! They even checked me for Crohns Disease but thank God that's not the case. Anyway, we'll see what happens. Thanks for your support! Sincerely, Liana Top Line Creations Put a little TLC into your scrapbook! Top Line Creations Liana Consultant #408323 Fam4@... www.topline-creations.com/LMARScrappin tel: IM: Yahoo: lmardiazfam4; MSN: AMLDIAZ2002 Add me to your address book... Want a signature like this? Welsome Liana Hi Liana, I am also fairly new to this group, joined in February (I think) of this year. I happened upon this group from doing a search on the web and I have learned so much from everyone here. I also got a name of a wonderful doc and he is my GI doc now. I travel 5 hours to see him, but the mileage doesn't matter to me, I would travel 5 days to see him if necessary. Alot of other people on this board go to him also. I am glad that you found this board, but sorry you have to deal with this disease. This board definitely makes life easier for me, in trying to deal with my CP and SOD. Anyway, just wanted to say welcome and hope you stick around for awhile. Take care Kris in TN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Liana, I personally don't know of any docs in the FL area. Although, I used to live in Tampa when I was much younger, right near USF. There are some others on the board who are from the FL area. Maybe they will post with some names of good docs. My pain and misery started 6 years ago after my gallbladder surgery. I didn't even know what was going on with my insides for a long time, until I started to research my symptoms on the web. Of course 4 years went by without any clue as to what was happening every time I was sick. I also got the usual run-around, IBS ,take more fiber and more antidepressants and anti-spasm meds. I bought into that for another year or so until the attacks started again and I knew something else was wrong. So anyway, my current GI (the one in Indiana), told me that according to my last ERCP, the pancreas itself didn't have any physical damage he could see. I do have very high pressure in the pancreatic duct (SOD) and that causes my pain and sickness. He also feels that in time my pancreas will reveal something, because of my symptoms and ongoing pain. So basically he is giving me a diagnoses of CP and treating me for it with pain meds, etc. based upon my symptoms rather than physical evidence, for now. Sometimes my enzymes are elevated during attacks and sometimes not. I always have pain after I eat. After breakfast it is not too bad, but after I eat dinner and into the evening, my pain gets worse. I also have Celiac disease, and I'm currently on a wheat-free diet. One thing that works good for me is yogurt. Even my family doc said it was good for me because I can get some protein without too much pain. Like when I decide to eat a hamburger, then my pain usually gets worse. So that was alittle about myself. Sorry if I skipped around little. As so many others here, we have very long stories about our illnesses. Yes, I too have gone through mny doctors who didn't believe my pain. I find it very hard to trust any doctor these days, from my past experiences. I hope you find a good soon. Are you curently taking any medications for your pain, etc.?? Take care Kris in TN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Hi Kris, Thanks for your response and for giving me an insight of what you are going through. It's so sad seeing so many people being affected by this. Well today I had a " Gastric Emptying Study " done to see if the pain could be because I don't empty my stomach well. My GI also ordered an upper GI which I'll get done later this week. I hate feeling so sick! My pain varies, at times I wake up with the pain, other times I get it after I eat. I've lost over 10 lbs in the last 4-6 weeks because I'm to the point where I'm affraid to eat (because I don't want to be in pain). I usually end up eating 1 meal a day and if I do eat, it's usually a small portion. My doctor has me on Percocet 5mg for the pain and phenergan for the nausea. But at times I don't feel the percocet is doing anything. This Friday I see my PCP to get the results of my gastric emptying study. We'll see what he tells me. I'll keep you all posted. Thanks again! Sincerely, Liana " Add a little TLC into your scrapbook " Liana Consultant 408323 www.topline-creations.com/LMARScrappin > > Liana, > I personally don't know of any docs in the FL area. Although, I > used to live in Tampa when I was much younger, right near USF. > There are some others on the board who are from the FL area. Maybe > they will post with some names of good docs. My pain and misery > started 6 years ago after my gallbladder surgery. I didn't even > know what was going on with my insides for a long time, until I > started to research my symptoms on the web. Of course 4 years went > by without any clue as to what was happening every time I was sick. > I also got the usual run-around, IBS ,take more fiber and more > antidepressants and anti-spasm meds. I bought into that for another > year or so until the attacks started again and I knew something else > was wrong. So anyway, my current GI (the one in Indiana), told me > that according to my last ERCP, the pancreas itself didn't have any > physical damage he could see. I do have very high pressure in the > pancreatic duct (SOD) and that causes my pain and sickness. He also > feels that in time my pancreas will reveal something, because of my > symptoms and ongoing pain. So basically he is giving me a diagnoses > of CP and treating me for it with pain meds, etc. based upon my > symptoms rather than physical evidence, for now. Sometimes my > enzymes are elevated during attacks and sometimes not. I always > have pain after I eat. After breakfast it is not too bad, but after > I eat dinner and into the evening, my pain gets worse. I also have > Celiac disease, and I'm currently on a wheat-free diet. One thing > that works good for me is yogurt. Even my family doc said it was > good for me because I can get some protein without too much pain. > Like when I decide to eat a hamburger, then my pain usually gets > worse. So that was alittle about myself. Sorry if I skipped around > little. As so many others here, we have very long stories about our > illnesses. Yes, I too have gone through mny doctors who didn't > believe my pain. I find it very hard to trust any doctor these > days, from my past experiences. I hope you find a good soon. Are > you curently taking any medications for your pain, etc.?? > Take care > Kris in TN Quote Link to comment Share on other sites More sharing options...
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