Hal

[Guest guest]

Hal,

The thing is Eilish doesn't culture anything. She's had numerous sputum

tests of late as well as two broncoscopies in 6 weeks all showing

nothing. I will do the Augmentin for 14 days as well as hypertonic

saline and robitussin DM. I was just so mad yesterday. I even dreamt

about another hsp. admission, needless to say it was a nightmare LOL.

Thanks Hal

(Australia)

had enough of this

I have had enough of Cf. Eilish has a wet cough back. She has been of

IV's 2 days only and wham its here. I truly think its coming from her

sinuses. It starts the same way, husky voice then the cough. When I

heard it last night I felt like screaming. I just don't know what else

to do. 4 weeks of IV's in 9 weeks is heaps and the minute it

********stops its back. I am so angry. I don't know who to be angry

with so I am angry with the disease.

Any suggestions for sinuses? rang the cf centre and they said to

put her on Augmentin. I am not wanting to do this. Although I

absolutely trust her Dr. I feel she doesn't need more antibiotics she

needs something to thin down the mucus to move it. So I have given her

inhaled Ventolin to break it up.

I've also spray saline up her nose. At this stage I am open for

suggestions. said on Monday he will ring them back (I have had

enough) and tell them to do something. Pulmozyme is not on the

government listing her so the hsp. has to pay $1000.00 per month for it.

They give it out sparingly. But is on the war path for at least a

trial of it.

Sorry about the moaning but I have had it . Well better go 'bash' her

now. She's lucky I love her so much LOL!

(Australia)

[Guest guest]

Hi ,

Zach has been on Augmentin before but the magic number was 21. If

it was used for 14 days his infection came back. If we used it for

21 days it seemed to clear up. Zach had terrible ear infections and

this was the only thing that helped.

Hope Elish starts feeling better.

SAra

> Hal,

>

> The thing is Eilish doesn't culture anything. She's had numerous

sputum

> tests of late as well as two broncoscopies in 6 weeks all showing

> nothing. I will do the Augmentin for 14 days as well as hypertonic

> saline and robitussin DM. I was just so mad yesterday. I even

dreamt

> about another hsp. admission, needless to say it was a nightmare

LOL.

>

> Thanks Hal

>

> (Australia)

>

> had enough of this

>

> I have had enough of Cf. Eilish has a wet cough back. She has

been of

> IV's 2 days only and wham its here. I truly think its coming from

her

> sinuses. It starts the same way, husky voice then the cough.

When I

> heard it last night I felt like screaming. I just don't know what

else

> to do. 4 weeks of IV's in 9 weeks is heaps and the minute it

> ********stops its back. I am so angry. I don't know who to be

angry

> with so I am angry with the disease.

>

> Any suggestions for sinuses? rang the cf centre and they

said to

> put her on Augmentin. I am not wanting to do this. Although I

> absolutely trust her Dr. I feel she doesn't need more antibiotics

she

> needs something to thin down the mucus to move it. So I have

given her

> inhaled Ventolin to break it up.

>

> I've also spray saline up her nose. At this stage I am open for

> suggestions. said on Monday he will ring them back (I have

had

> enough) and tell them to do something. Pulmozyme is not on the

> government listing her so the hsp. has to pay $1000.00 per month

for it.

> They give it out sparingly. But is on the war path for at

least a

> trial of it.

>

> Sorry about the moaning but I have had it . Well better go 'bash'

her

> now. She's lucky I love her so much LOL!

>

> (Australia)

>

>

>

>