Re: Re: e...Gale on typing

[Guest guest]

Me, too, n Rojas

Re: e...

I wish that this sight had spell check. I would starve if I had to

work as a typist.

Gale

> > I don't know how it feels to be a parent. But I know what it's

> like

> > not to be able to get away. I did not mean to make you sad with

my

> > email. There is so much hope for your little girl. For all kids

> now

> > with CF. things are changing so fast. Even for me there is so

> much

> > hope with the transplant. And I always, always say this. I am

who

> I

> > am because I have CF. I would not want to change a thing. It

has

> made

> > me strong and made me appreciate things, and that is a lesson

> learned.

> > Since I can't change it, I embrace it. And you should too.

Embrace

> the

> > illness, the treatments, and the life that you have been forced

to

> > lead. It will be easier to fight, I promise. Let your little

see

> you

> > angry. Not at those treatments, but at the illness. Let her see

> that

> > you can't fix it either. CF is it's own separate variable.

> > Independent of what you feel or want. But the treatments are a

way

> to

> > kick ass. To move towards something larger. To hold off the

> sadness

> > until a cure is available, or gene therapy, or a transplant. Get

> angry

> > with your daughter. Let her see it. And then tell her, this is

> what

> > we have to do.

> > But I know how it was with me. I tried everything to get out of

> > treatments too. But sometimes I wish my mom and dad would have

> talked

> > to me about how it made them feel. That they too were angry and

> sad.

> > But who knows. No regrets.

> >

> > Hang in there. I'm sorry that you had a bad day.

> >

> > Natalia

> > 24 w CF

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