Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Ok. Well i am excited about the response. I am starting the work as we speak. I am trying to set up the best system possible for privacy issues (since we always have to be careful) and easiest mailing. I'm going to be the main contact and give out addresses as I am contacted., I will work that out so it's safe and we all know where the book is off to next, since we will all have a part in it, and it will be very special to us all. Contamination will be dealt with in the following way. I have consulted my doctor about it, and the main thing is, WASH HANDS when the book is handled. But the shelf life of germs is not that long, otherwise we would all be dropping like flies from germs. Of course the most significant one is Cepacia for CF people, and my doctor said that " once saliva dries, the bacteria is gone " meaning it cannot live outside the body for long. So getting it is impossible from a scrap book. Hope that eases worry. It is of course very important. Natalia 24 w CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 It sure sounds like you have covered all the bases.What a great idea! Maybe a note traveling with the book with the reminders would be helpful too THANK YOU!! Love & hugs, GrandmomBEV CF World BOOK Ok. Well i am excited about the response. I am starting the work as we speak. I am trying to set up the best system possible for privacy issues (since we always have to be careful) and easiest mailing. I'm going to be the main contact and give out addresses as I am contacted., I will work that out so it's safe and we all know where the book is off to next, since we will all have a part in it, and it will be very special to us all. Contamination will be dealt with in the following way. I have consulted my doctor about it, and the main thing is, WASH HANDS when the book is handled. But the shelf life of germs is not that long, otherwise we would all be dropping like flies from germs. Of course the most significant one is Cepacia for CF people, and my doctor said that " once saliva dries, the bacteria is gone " meaning it cannot live outside the body for long. So getting it is impossible from a scrap book. Hope that eases worry. It is of course very important. Natalia 24 w CF ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 Natalia: Sorry didn't get back to you, we were at Will's checkup yesterday (all good I might add, pheww!). The book sounds like a great idea, please let me know what I can do to help. Nigel p.s. Will says hi > Ok. > Well i am excited about the response. > I am starting the work as we speak. I am trying to set up the best > system possible for privacy issues (since we always have to be careful) > and easiest mailing. > > I'm going to be the main contact and give out addresses as I am > contacted., I will work that out so it's safe and we all know where > the book is off to next, since we will all have a part in it, and it > will be very special to us all. > > Contamination will be dealt with in the following way. I have > consulted my doctor about it, and the main thing is, WASH HANDS when > the book is handled. But the shelf life of germs is not that long, > otherwise we would all be dropping like flies from germs. Of course > the most significant one is Cepacia for CF people, and my doctor said > that " once saliva dries, the bacteria is gone " meaning it cannot live > outside the body for long. So getting it is impossible from a scrap > book. > Hope that eases worry. It is of course very important. > > Natalia > 24 w CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 I am so glad that the clinic visit went well. That always makes for a good week/week-end Stay warm & have a great day. LOVE & HUGS, grandmomBEV Re: CF World BOOK Natalia: Sorry didn't get back to you, we were at Will's checkup yesterday (all good I might add, pheww!). The book sounds like a great idea, please let me know what I can do to help. Nigel p.s. Will says hi > Ok. > Well i am excited about the response. > I am starting the work as we speak. I am trying to set up the best > system possible for privacy issues (since we always have to be careful) > and easiest mailing. > > I'm going to be the main contact and give out addresses as I am > contacted., I will work that out so it's safe and we all know where > the book is off to next, since we will all have a part in it, and it > will be very special to us all. > > Contamination will be dealt with in the following way. I have > consulted my doctor about it, and the main thing is, WASH HANDS when > the book is handled. But the shelf life of germs is not that long, > otherwise we would all be dropping like flies from germs. Of course > the most significant one is Cepacia for CF people, and my doctor said > that " once saliva dries, the bacteria is gone " meaning it cannot live > outside the body for long. So getting it is impossible from a scrap > book. > Hope that eases worry. It is of course very important. > > Natalia > 24 w CF ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 Happy to hear that little Will is doing well. LOVE to hear good news. Give Will a big cuddle for me. Natalia On Friday, January 23, 2004, at 08:15 AM, nigel_pickard wrote: > Natalia: > > Sorry didn't get back to you, we were at Will's checkup yesterday (all > good I might add, pheww!). > > The book sounds like a great idea, please let me know what I can do to > help. > > Nigel > > p.s. Will says hi > > > > Ok. > > Well i am excited about the response. > > I am starting the work as we speak. I am trying to set up the best > > system possible for privacy issues (since we always have to be > careful) > > and easiest mailing. > > > > I'm going to be the main contact and give out addresses as I am > > contacted., I will work that out so it's safe and we all know where > > the book is off to next, since we will all have a part in it, and it > > will be very special to us all. > > > > Contamination will be dealt with in the following way. I have > > consulted my doctor about it, and the main thing is, WASH HANDS when > > the book is handled. But the shelf life of germs is not that long, > > otherwise we would all be dropping like flies from germs. Of course > > the most significant one is Cepacia for CF people, and my doctor said > > that " once saliva dries, the bacteria is gone " meaning it cannot live > > outside the body for long. So getting it is impossible from a scrap > > book. > > Hope that eases worry. It is of course very important. > > > > Natalia > > 24 w CF > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > ------------------------------------ > > > <image.tiff> > > <image.tiff> > > Quote Link to comment Share on other sites More sharing options...
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