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Hi ,

First of all I want to tell you that I really appreciate your posts

and that you have " jumped in " . My son is 13 years old and his sister

wcf is 10. They have a great relationship, and they both care about

eachother. Now, Ian knows his sister has a disease, but I do not

think that he knows exactly the extent of it. How and at what age

did you discover the severity of Natalia's disease? I guess with her

being diagnosed young, you have alwyas been around it. However I

guess I am curious as to how you reacted when you first learned just

how bad things could/would get for her.

Thanks for your honesty and input!

e

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