Chrissy

[Guest guest]

Hi Chrissy,

It IS confusing and seems so unfair. Being pain-free, well and not

scared seems such a basic human right but, of course, it's not. It's

just that we take good health for granted when we have it. To

paraphrase Bernard Shaw, " Good health is wasted on the

healthy " !!! I do relish these days every single moment which comes

my way which is pain-free. I'm on my third bad day in succession now.

I'm dreading Wed. when I see Prof. I wonder if he will have seen

anything on the EUS pics which the gastro/endoscopist missed? Or

maybe he'll just read the gastro's report? Not sure.

I do hope Cinci changes its mind. I know Dr will look after

you. It's amazing how we sometimes think pain etc. is imagination

or " our fault " in some way. I felt terrified but at least vindicated

last year when after DECADES of bad pain, they finally found my

CP....and very advanced at that. Before that I'd almost believed

them that there was nothing really wrong. It makes me want to weep

sometimes when I think of all the pain I went through thinking it

was just " me " , " my fault " , " my exaggeration " etc. etc. Self-pity!

I suppose it's just the way things are. CP is both rare difficult to

diagnose and, although we have every conceivable modern procedure

and I'm particularly lucky from that point of view to be a patient

at the Liverpool Royal, nevertheless, NHS docs are stretched

timewise and don't always spend as much time as they should just

LISTENING properly to the patient.

In any case, since my mother suffered so much, it was probably a

good job I didn't know earlier.

Anyway, thank God for Dr and Prof N. I read somewhere that

they may be starting the ICT at Musc???

You're in my prayers, Chrissy and I need to be in yours. Your kids

will know that love means more than money but I KNOW it's hard.

With love,

Fliss (UK)