Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 > > > > Oh, Becky, > > One more thing...make sure that you are giving him folinic acid if > you decide to do the MB12. They really do go hand in hand. If you see > any signs of hyperactivity, then he will need more folinic acid. Our > DAN had us start with 1600mg. folinic, but he was just wired from the > B12...waking up at 4-5am for the day, taking a while to fall asleep, > ect. She had us stop the B12 for a week, and increase the folinic by > 800mg. Then, we reintroduced the B12, and had no problems. Kirkman's > folinic acid is SCD legal. > > Meleah > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 We did not see any agressive behavior, and our DAN did not tell us to expect it either. She told us that we might see hyperactivity or irritability. For our son, it demonstrated itself by him having trouble sleeping. He would be awake until 10PM...laying in his bed singing or talking...He would wake up at 4:30 or 5AM just ready to go for the day. This is certainly not typical for him since he is three years old, and typical sleeps about 11 or 12 hours per night. This was his reaction even with taking 1600mgs. of folinic acid...We get ours from Kirkman. She had us up the folinic to 2400mgs., and the wakefulness went away a couple of days later. In early December we ran out of folinic acid before our new supply arrived. She had us stop the B12 because he was having the wide awake thing after a few days with no folinic acid. When the folinic arrived, she instructed us to give him his full 2400mgs. for a week before starting the B12 again to make sure that his body was ready. I can't imagine a doctor prescribing B12 without folinic because they work together so much. My advice would be to start the folinic for a week or so first, and then add his B12. Meleah Re: methyl B12/ more info on B12 Please > > > > Oh, Becky, > > One more thing...make sure that you are giving him folinic acid if > you decide to do the MB12. They really do go hand in hand. If you see > any signs of hyperactivity, then he will need more folinic acid. Our > DAN had us start with 1600mg. folinic, but he was just wired from the > B12...waking up at 4-5am for the day, taking a while to fall asleep, > ect. She had us stop the B12 for a week, and increase the folinic by > 800mg. Then, we reintroduced the B12, and had no problems. Kirkman's > folinic acid is SCD legal. > > Meleah > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 I know that Dr. Neubrander (DAN doc in NJ who established the MB12 protocol) advises to do a 5 week trial of MB12, then add the folinic in after that. We added 800 mg of folinic in after 5 weeks. Actually it's already in his vitamin supplement which we also use. The folinic just added to the good effects of MB12 for our son. robin wrote: We did not see any agressive behavior, and our DAN did not tell us to expect it either. She told us that we might see hyperactivity or irritability. For our son, it demonstrated itself by him having trouble sleeping. He would be awake until 10PM...laying in his bed singing or talking...He would wake up at 4:30 or 5AM just ready to go for the day. This is certainly not typical for him since he is three years old, and typical sleeps about 11 or 12 hours per night. This was his reaction even with taking 1600mgs. of folinic acid...We get ours from Kirkman. She had us up the folinic to 2400mgs., and the wakefulness went away a couple of days later. In early December we ran out of folinic acid before our new supply arrived. She had us stop the B12 because he was having the wide awake thing after a few days with no folinic acid. When the folinic arrived, she instructed us to give him his full 2400mgs. for a week before starting the B12 again to make sure that his body was ready. I can't imagine a doctor prescribing B12 without folinic because they work together so much. My advice would be to start the folinic for a week or so first, and then add his B12. Meleah Re: methyl B12/ more info on B12 Please > > > > Oh, Becky, > > One more thing...make sure that you are giving him folinic acid if > you decide to do the MB12. They really do go hand in hand. If you see > any signs of hyperactivity, then he will need more folinic acid. Our > DAN had us start with 1600mg. folinic, but he was just wired from the > B12...waking up at 4-5am for the day, taking a while to fall asleep, > ect. She had us stop the B12 for a week, and increase the folinic by > 800mg. Then, we reintroduced the B12, and had no problems. Kirkman's > folinic acid is SCD legal. > > Meleah > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 That was my concern too after going to Dr. Neubrander's website and hearing a recording of him at a Dan conference. We have been on the spray for 2 weeks. However I have been having problems with the bottle - leaking and/or not squirting the full dose, so i had to go back to the pharmacy to get another bottle which appears to be doing the same. Anyway, I gave my son an 800mcg dose of folinic last night for the first time. I agree with Meleah when you look at the physiology of it, the B12 and B6 NEED the folinic acid to work with to create the stuff that is needed to feed other amino acids like methionine which feeds some " H " word I can't recall right now which feeds into neurotransmitters etc. So I too am torn between what Dr. Neubrander says versus the chemical needs of the B vitiamins, which is the folinic acid. From listening to him and reading some on his site, I feel like maybe he wants you to use if alone so you can get a good feel for any reactions to it (good or bad). If you add other things to it during that time, you don't know if what you are seeing is a result of the B12 or from the added supplement. Right now I have a multi-vitiamin, B6, calcium and a different probiotic my dan wants me to try all waiting, because of Dr. Nuebrander's 5 week rule. I'm going with my gut and the chemical necessity research out there and adding the folinic at 800mcg for now and after a week or so I will probably bump it up to 1600mcg. I am using my child as the guide! If anyone has any additional information about WHY Dr. Neubrander would want you to wait I'd definately like to hear it. You can email me off list if needed. Becky 3yold son ASD SCD 2 months son wrote: I know that Dr. Neubrander (DAN doc in NJ who established the MB12 protocol) advises to do a 5 week trial of MB12, then add the folinic in after that. We added 800 mg of folinic in after 5 weeks. Actually it's already in his vitamin supplement which we also use. The folinic just added to the good effects of MB12 for our son. robin wrote: We did not see any agressive behavior, and our DAN did not tell us to expect it either. She told us that we might see hyperactivity or irritability. For our son, it demonstrated itself by him having trouble sleeping. He would be awake until 10PM...laying in his bed singing or talking...He would wake up at 4:30 or 5AM just ready to go for the day. This is certainly not typical for him since he is three years old, and typical sleeps about 11 or 12 hours per night. This was his reaction even with taking 1600mgs. of folinic acid...We get ours from Kirkman. She had us up the folinic to 2400mgs., and the wakefulness went away a couple of days later. In early December we ran out of folinic acid before our new supply arrived. She had us stop the B12 because he was having the wide awake thing after a few days with no folinic acid. When the folinic arrived, she instructed us to give him his full 2400mgs. for a week before starting the B12 again to make sure that his body was ready. I can't imagine a doctor prescribing B12 without folinic because they work together so much. My advice would be to start the folinic for a week or so first, and then add his B12. Meleah Re: methyl B12/ more info on B12 Please > > > > Oh, Becky, > > One more thing...make sure that you are giving him folinic acid if > you decide to do the MB12. They really do go hand in hand. If you see > any signs of hyperactivity, then he will need more folinic acid. Our > DAN had us start with 1600mg. folinic, but he was just wired from the > B12...waking up at 4-5am for the day, taking a while to fall asleep, > ect. She had us stop the B12 for a week, and increase the folinic by > 800mg. Then, we reintroduced the B12, and had no problems. Kirkman's > folinic acid is SCD legal. > > Meleah > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Becky, I'm going to be emailing you off list about this, so look for the email from me today or tomorrow. Meleah Re: methyl B12/ more info on B12 Please > > > > Oh, Becky, > > One more thing...make sure that you are giving him folinic acid if > you decide to do the MB12. They really do go hand in hand. If you see > any signs of hyperactivity, then he will need more folinic acid. Our > DAN had us start with 1600mg. folinic, but he was just wired from the > B12...waking up at 4-5am for the day, taking a while to fall asleep, > ect. She had us stop the B12 for a week, and increase the folinic by > 800mg. Then, we reintroduced the B12, and had no problems. Kirkman's > folinic acid is SCD legal. > > Meleah > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Becky, We've been giving our 3 1/2 yr old son MB12 shots for over a year and they have been one of your best interventions. We recently up the dose to every other day instead of every 3rd day and saw another increase in language, congitive awareness, body awareness, gross motor. (He was having up days on the 2nd day and slowing down on the 3rd so we thought we might try the increase in dosage.) He was getting a little hyper so we give melatonin at night before bed just 100mg does the trick for us. But, I really think the hyperness was due to yeast. We did do Dr. Neubrander's 5 week with no other changes and were glad we did. We know for sure exactly that it was the MB12 that made the difference. It took us about 4 weeks before we started seeing changes for our son. Tricia S. Mom to Aidan the A Train, ASD SCD 24 days That was my concern too after going to Dr. Neubrander's website and hearing a recording of him at a Dan conference. We have been on the spray for 2 weeks. However I have been having problems with the bottle - leaking and/or not squirting the full dose, so i had to go back to the pharmacy to get another bottle which appears to be doing the same. Anyway, I gave my son an 800mcg dose of folinic last night for the first time. I agree with Meleah when you look at the physiology of it, the B12 and B6 NEED the folinic acid to work with to create the stuff that is needed to feed other amino acids like methionine which feeds some " H " word I can't recall right now which feeds into neurotransmitters etc. So I too am torn between what Dr. Neubrander says versus the chemical needs of the B vitiamins, which is the folinic acid. From listening to him and reading some on his site, I feel like maybe he wants you to use if alone so you can get a good feel for any reactions to it (good or bad). If you add other things to it during that time, you don't know if what you are seeing is a result of the B12 or from the added supplement. Right now I have a multi-vitiamin, B6, calcium and a different probiotic my dan wants me to try all waiting, because of Dr. Nuebrander's 5 week rule. I'm going with my gut and the chemical necessity research out there and adding the folinic at 800mcg for now and after a week or so I will probably bump it up to 1600mcg. I am using my child as the guide! If anyone has any additional information about WHY Dr. Neubrander would want you to wait I'd definately like to hear it. You can email me off list if needed. Becky 3yold son ASD SCD 2 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Thank you. I am grateful to have other moms to help who are already doing something we get per scribed. stacy robin wrote: We did not see any agressive behavior, and our DAN did not tell us to expect it either. She told us that we might see hyperactivity or irritability. For our son, it demonstrated itself by him having trouble sleeping. He would be awake until 10PM...laying in his bed singing or talking...He would wake up at 4:30 or 5AM just ready to go for the day. This is certainly not typical for him since he is three years old, and typical sleeps about 11 or 12 hours per night. This was his reaction even with taking 1600mgs. of folinic acid...We get ours from Kirkman. She had us up the folinic to 2400mgs., and the wakefulness went away a couple of days later. In early December we ran out of folinic acid before our new supply arrived. She had us stop the B12 because he was having the wide awake thing after a few days with no folinic acid. When the folinic arrived, she instructed us to give him his full 2400mgs. for a week before starting the B12 again to make sure that his body was ready. I can't imagine a doctor prescribing B12 without folinic because they work together so much. My advice would be to start the folinic for a week or so first, and then add his B12. Meleah Re: methyl B12/ more info on B12 Please > > > > Oh, Becky, > > One more thing...make sure that you are giving him folinic acid if > you decide to do the MB12. They really do go hand in hand. If you see > any signs of hyperactivity, then he will need more folinic acid. Our > DAN had us start with 1600mg. folinic, but he was just wired from the > B12...waking up at 4-5am for the day, taking a while to fall asleep, > ect. She had us stop the B12 for a week, and increase the folinic by > 800mg. Then, we reintroduced the B12, and had no problems. Kirkman's > folinic acid is SCD legal. > > Meleah > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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