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Re: methyl B12/ more info on B12 Please

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> >

> > Oh, Becky,

> > One more thing...make sure that you are giving him folinic

acid if

> you decide to do the MB12. They really do go hand in hand. If

you see

> any signs of hyperactivity, then he will need more folinic acid.

Our

> DAN had us start with 1600mg. folinic, but he was just wired

from the

> B12...waking up at 4-5am for the day, taking a while to fall

asleep,

> ect. She had us stop the B12 for a week, and increase the

folinic by

> 800mg. Then, we reintroduced the B12, and had no problems.

Kirkman's

> folinic acid is SCD legal.

> > Meleah

> >

>

>

>

>

>

>

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We did not see any agressive behavior, and our DAN did not tell us to expect it

either. She told us that we might see hyperactivity or irritability. For our

son, it demonstrated itself by him having trouble sleeping. He would be awake

until 10PM...laying in his bed singing or talking...He would wake up at 4:30 or

5AM just ready to go for the day. This is certainly not typical for him since

he is three years old, and typical sleeps about 11 or 12 hours per night. This

was his reaction even with taking 1600mgs. of folinic acid...We get ours from

Kirkman. She had us up the folinic to 2400mgs., and the wakefulness went away a

couple of days later. In early December we ran out of folinic acid before our

new supply arrived. She had us stop the B12 because he was having the wide

awake thing after a few days with no folinic acid. When the folinic arrived,

she instructed us to give him his full 2400mgs. for a week before starting the

B12 again to make sure that his body was ready. I can't imagine a doctor

prescribing B12 without folinic because they work together so much. My advice

would be to start the folinic for a week or so first, and then add his B12.

Meleah

Re: methyl B12/ more info on B12 Please

> >

> > Oh, Becky,

> > One more thing...make sure that you are giving him folinic

acid if

> you decide to do the MB12. They really do go hand in hand. If

you see

> any signs of hyperactivity, then he will need more folinic acid.

Our

> DAN had us start with 1600mg. folinic, but he was just wired

from the

> B12...waking up at 4-5am for the day, taking a while to fall

asleep,

> ect. She had us stop the B12 for a week, and increase the

folinic by

> 800mg. Then, we reintroduced the B12, and had no problems.

Kirkman's

> folinic acid is SCD legal.

> > Meleah

> >

>

>

>

>

>

>

Link to comment
Share on other sites

I know that Dr. Neubrander (DAN doc in NJ who established the MB12 protocol)

advises to do a 5 week trial of MB12, then add the folinic in after that. We

added 800 mg of folinic in after 5 weeks. Actually it's already in his vitamin

supplement which we also use. The folinic just added to the good effects of MB12

for our son.

robin wrote: We did not see any agressive

behavior, and our DAN did not tell us to expect it either. She told us that we

might see hyperactivity or irritability. For our son, it demonstrated itself by

him having trouble sleeping. He would be awake until 10PM...laying in his bed

singing or talking...He would wake up at 4:30 or 5AM just ready to go for the

day. This is certainly not typical for him since he is three years old, and

typical sleeps about 11 or 12 hours per night. This was his reaction even with

taking 1600mgs. of folinic acid...We get ours from Kirkman. She had us up the

folinic to 2400mgs., and the wakefulness went away a couple of days later. In

early December we ran out of folinic acid before our new supply arrived. She had

us stop the B12 because he was having the wide awake thing after a few days with

no folinic acid. When the folinic arrived, she instructed us to give him his

full 2400mgs. for a week before starting the

B12 again to make sure that his body was ready. I can't imagine a doctor

prescribing B12 without folinic because they work together so much. My advice

would be to start the folinic for a week or so first, and then add his B12.

Meleah

Re: methyl B12/ more info on B12 Please

> >

> > Oh, Becky,

> > One more thing...make sure that you are giving him folinic

acid if

> you decide to do the MB12. They really do go hand in hand. If

you see

> any signs of hyperactivity, then he will need more folinic acid.

Our

> DAN had us start with 1600mg. folinic, but he was just wired

from the

> B12...waking up at 4-5am for the day, taking a while to fall

asleep,

> ect. She had us stop the B12 for a week, and increase the

folinic by

> 800mg. Then, we reintroduced the B12, and had no problems.

Kirkman's

> folinic acid is SCD legal.

> > Meleah

> >

>

>

>

>

>

>

Link to comment
Share on other sites

That was my concern too after going to Dr. Neubrander's website and hearing a

recording of him at a Dan conference. We have been on the spray for 2 weeks.

However I have been having problems with the bottle - leaking and/or not

squirting the full dose, so i had to go back to the pharmacy to get another

bottle which appears to be doing the same. Anyway, I gave my son an 800mcg dose

of folinic last night for the first time. I agree with Meleah when you look at

the physiology of it, the B12 and B6 NEED the folinic acid to work with to

create the stuff that is needed to feed other amino acids like methionine which

feeds some " H " word I can't recall right now which feeds into neurotransmitters

etc. So I too am torn between what Dr. Neubrander says versus the chemical

needs of the B vitiamins, which is the folinic acid. From listening to him and

reading some on his site, I feel like maybe he wants you to use if alone so you

can get a good feel for any reactions to it (good

or bad). If you add other things to it during that time, you don't know if

what you are seeing is a result of the B12 or from the added supplement. Right

now I have a multi-vitiamin, B6, calcium and a different probiotic my dan wants

me to try all waiting, because of Dr. Nuebrander's 5 week rule. I'm going with

my gut and the chemical necessity research out there and adding the folinic at

800mcg for now and after a week or so I will probably bump it up to 1600mcg. I

am using my child as the guide! If anyone has any additional information about

WHY Dr. Neubrander would want you to wait I'd definately like to hear it. You

can email me off list if needed.

Becky

3yold son ASD

SCD 2 months

son wrote:

I know that Dr. Neubrander (DAN doc in NJ who established the MB12

protocol) advises to do a 5 week trial of MB12, then add the folinic in after

that. We added 800 mg of folinic in after 5 weeks. Actually it's already in his

vitamin supplement which we also use. The folinic just added to the good effects

of MB12 for our son.

robin wrote: We did not see any agressive behavior, and

our DAN did not tell us to expect it either. She told us that we might see

hyperactivity or irritability. For our son, it demonstrated itself by him having

trouble sleeping. He would be awake until 10PM...laying in his bed singing or

talking...He would wake up at 4:30 or 5AM just ready to go for the day. This is

certainly not typical for him since he is three years old, and typical sleeps

about 11 or 12 hours per night. This was his reaction even with taking 1600mgs.

of folinic acid...We get ours from Kirkman. She had us up the folinic to

2400mgs., and the wakefulness went away a couple of days later. In early

December we ran out of folinic acid before our new supply arrived. She had us

stop the B12 because he was having the wide awake thing after a few days with no

folinic acid. When the folinic arrived, she instructed us to give him his full

2400mgs. for a week before starting the

B12 again to make sure that his body was ready. I can't imagine a doctor

prescribing B12 without folinic because they work together so much. My advice

would be to start the folinic for a week or so first, and then add his B12.

Meleah

Re: methyl B12/ more info on B12 Please

> >

> > Oh, Becky,

> > One more thing...make sure that you are giving him folinic

acid if

> you decide to do the MB12. They really do go hand in hand. If

you see

> any signs of hyperactivity, then he will need more folinic acid.

Our

> DAN had us start with 1600mg. folinic, but he was just wired

from the

> B12...waking up at 4-5am for the day, taking a while to fall

asleep,

> ect. She had us stop the B12 for a week, and increase the

folinic by

> 800mg. Then, we reintroduced the B12, and had no problems.

Kirkman's

> folinic acid is SCD legal.

> > Meleah

> >

>

>

>

>

>

>

Link to comment
Share on other sites

Becky,

I'm going to be emailing you off list about this, so look for the email from me

today or tomorrow.

Meleah

Re: methyl B12/ more info on B12 Please

> >

> > Oh, Becky,

> > One more thing...make sure that you are giving him folinic

acid if

> you decide to do the MB12. They really do go hand in hand. If

you see

> any signs of hyperactivity, then he will need more folinic acid.

Our

> DAN had us start with 1600mg. folinic, but he was just wired

from the

> B12...waking up at 4-5am for the day, taking a while to fall

asleep,

> ect. She had us stop the B12 for a week, and increase the

folinic by

> 800mg. Then, we reintroduced the B12, and had no problems.

Kirkman's

> folinic acid is SCD legal.

> > Meleah

> >

>

>

>

>

>

>

Link to comment
Share on other sites

Becky,

We've been giving our 3 1/2 yr old son MB12 shots for over a year and

they have been one of your best interventions. We recently up the

dose to every other day instead of every 3rd day and saw another

increase in language, congitive awareness, body awareness, gross

motor. (He was having up days on the 2nd day and slowing down on the

3rd so we thought we might try the increase in dosage.) He was

getting a little hyper so we give melatonin at night before bed just

100mg does the trick for us. But, I really think the hyperness was

due to yeast.

We did do Dr. Neubrander's 5 week with no other changes and were glad

we did. We know for sure exactly that it was the MB12 that made the

difference. It took us about 4 weeks before we started seeing changes

for our son.

Tricia S.

Mom to Aidan the A Train, ASD

SCD 24 days

That was my concern too after going to Dr. Neubrander's website and

hearing a recording of him at a Dan conference. We have been on the

spray for 2 weeks. However I have been having problems with the

bottle - leaking and/or not squirting the full dose, so i had to go

back to the pharmacy to get another bottle which appears to be doing

the same. Anyway, I gave my son an 800mcg dose of folinic last night

for the first time. I agree with Meleah when you look at the

physiology of it, the B12 and B6 NEED the folinic acid to work with

to create the stuff that is needed to feed other amino acids like

methionine which feeds some " H " word I can't recall right now which

feeds into neurotransmitters etc. So I too am torn between what Dr.

Neubrander says versus the chemical needs of the B vitiamins, which

is the folinic acid. From listening to him and reading some on his

site, I feel like maybe he wants you to use if alone so you can get a

good feel for any reactions to it (good

or bad). If you add other things to it during that time, you don't

know if what you are seeing is a result of the B12 or from the added

supplement. Right now I have a multi-vitiamin, B6, calcium and a

different probiotic my dan wants me to try all waiting, because of

Dr. Nuebrander's 5 week rule. I'm going with my gut and the chemical

necessity research out there and adding the folinic at 800mcg for now

and after a week or so I will probably bump it up to 1600mcg. I am

using my child as the guide! If anyone has any additional information

about WHY Dr. Neubrander would want you to wait I'd definately like

to hear it. You can email me off list if needed.

Becky

3yold son ASD

SCD 2 months

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Thank you. I am grateful to have other moms to help who are already doing

something we get per scribed.

stacy

robin wrote:

We did not see any agressive behavior, and our DAN did not tell us to

expect it either. She told us that we might see hyperactivity or irritability.

For our son, it demonstrated itself by him having trouble sleeping. He would be

awake until 10PM...laying in his bed singing or talking...He would wake up at

4:30 or 5AM just ready to go for the day. This is certainly not typical for him

since he is three years old, and typical sleeps about 11 or 12 hours per night.

This was his reaction even with taking 1600mgs. of folinic acid...We get ours

from Kirkman. She had us up the folinic to 2400mgs., and the wakefulness went

away a couple of days later. In early December we ran out of folinic acid before

our new supply arrived. She had us stop the B12 because he was having the wide

awake thing after a few days with no folinic acid. When the folinic arrived, she

instructed us to give him his full 2400mgs. for a week before starting the B12

again to make sure that his body

was ready. I can't imagine a doctor prescribing B12 without folinic because

they work together so much. My advice would be to start the folinic for a week

or so first, and then add his B12.

Meleah

Re: methyl B12/ more info on B12 Please

> >

> > Oh, Becky,

> > One more thing...make sure that you are giving him folinic

acid if

> you decide to do the MB12. They really do go hand in hand. If

you see

> any signs of hyperactivity, then he will need more folinic acid.

Our

> DAN had us start with 1600mg. folinic, but he was just wired

from the

> B12...waking up at 4-5am for the day, taking a while to fall

asleep,

> ect. She had us stop the B12 for a week, and increase the

folinic by

> 800mg. Then, we reintroduced the B12, and had no problems.

Kirkman's

> folinic acid is SCD legal.

> > Meleah

> >

>

>

>

>

>

>

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