FW: SF Bay Area Celiac News - July

[Guest guest]

BE SURE TO CHECK OUT INFO ON THE STANFORD CONFERENCE BELOW! MICHELLE

PIETZAK, M.D., IS AN OUTSTANDING SPEAKER.

-----Original Message-----

From: Deutsch [mailto:deutschm@...]

Sent: Thursday, July 15, 2004 3:33 PM

Martha Deutsch

Subject: SF Bay Area Celiac News - July

SAN FRANCISCO BAY AREA CELIAC NEWS....July 2004

***SUMMER CELIAC EVENT***

Bay Area Celiacs and their families are invited to to Joan Wong's

home in Danville for an afternoon BBQ and Swim Party on Saturday,

August 14. Please bring your own meat and a dish to share. The grill

will be ready at 2pm!

A-D Beverages (No alcohol, please)

E-M Fruits/Salads

N-S Chips, Dips or Salsas

T-Z Desserts

Directions: From Oakland, take I-24 east towards Walnut Creek. Keep to

the right lanes and go south onto I-680. In about 6 or so miles, take the

El Cerro Blvd exit and go east again. The names for this road change, but

just keep heading east. At the first signal, not counting the signals by

the

freeway exits, the road will widen. Keep going east and in the right lane.

At the second signal, head straight forward onto a narrow windy road.

At the stop sign, the road becomes Blackhawk road. Keep driving east to

the first left turn. You will see large oak trees in the medium divide.

Turn left into Hidden Oaks. You will pass the guard gate. Continue to the

first left turn. Turn left onto Holly Oak. Go downhill to the third right.

Turn right onto Canyon Oak Lane. Go just past the second cul de sac on

the right. Our house is on the corner. The numbers are ONLY on the mailpost.

Address: 2170 Canyon Oak Lane, Danville, CA 94506

Please RSVP to Joan Wong by August 9:

joanwong@...

925-837-2810 home, 925-699-1214 cell

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SANTA CRUZ

Contact: Pam Newbury

pknewbury@..., 831-423-6904

The Santa Cruz Celiac Support Group will meet on Saturday, September 18,

at 11AM, in meeting room 1 at Dominican Hospital, 1555 Soquel Drive.

We have invited Goldberg to talk about nutritional support and

supplements for celiacs, with time for questions afterward. has

been a nutritional consultant for 25 years and has published over 200

articles on food and nutrition. He has assisted in nutritional and herbal

research at the University of California in San Francisco. is a

nutritional consultant at New Leaf Market in Felton; he is currently

working on his PhD in Holistic Nutrition.

The meeting will conclude with a gluten-free potluck lunch, so please

bring a gluten-free lunch item (and a list of ingredients or the recipe)

to share (this is optional for those who are very ill or unfamiliar with

the gluten free diet). The meeting is open to all who are interested

in this topic. Contact Pam for addititional information.

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OAKLAND

Contact: Ellen Switkes

ellen.switkes@..., 510-655-0215 (eves)

Please save the date: the next meeting will be held on Saturday,

September 18, 10:30AM to 12:30PM, 1950 lin Street in Oakland.

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STANFORD

Contact: Rohlfs

kellyr@..., 650-725-4771

The 5th Annual Stanford Celiac Conference is scheduled for Saturday,

October 30. Guest speakers include:

M. Pietzak, MD, Assistant Professor of Pediatrics

University of Southern California Keck School of Medicine

Chaitan Khosla, PhD, President of the Celiac Sprue Research Foundation,

Professor of Chemistry, Chemical Engineering and Biochemistry

(by courtesy) at Stanford University

M. Gray, M.D., Professor of Medicine, Emeritus, Gastroenterology,

Stanford University School of Medicine and Co-Chair of the Scientific

Advisory Board of the Celiac Sprue Research Foundation

Kupper, RD, CD, Executive Director, Gluten Intolerance Group

Carol Fenster, Ph.D. - President, Savory Palate, Inc., and award winning

author and cooking consultant for food sensitivities

Danna Korn, author of " Kids with Celiac Disease: A Family Guide to

Raising Happy, Healthy Gluten-Free Children " (published by Woodbine

House) and " Wheat-Free, Worry-Free: The Art of Happy, Healthy

Gluten-free Living " (published by Hay House)

The conference offers an excellent opportunity to get your questions

answered about diagnosing celiac disease, follow-up treatments, the

latest research, diet information, cooking and baking tips, and gluten

free lifestyle advice.

CME credits are offered for medical professionals. There will be an

expanded vendor section with book sales and a children's program.

We are considering an Octoberfest theme with gluten free beer!

We are currently looking for volunteers to help organize the conference.

Jobs include working prior to the conference (contacting vendors, planning

the children's program, choosing and working with the caterer, advertising,

doing the paperwork for CME credits, setting up the room and making gift

baskets, organizing all the volunteers), and also working the day of the

conference (registration, children's program, set-up, clean-up, helping with

catering of the gluten free baked goods). If you have a new idea for the

conference please volunteer your suggestions or better yet, your time to

help make it a successful event.

Conference information will be posted at http://celiacsupport.stanford.edu/

and mailed to everyone in late September. If you want to volunteer, please

contact Rohlfs.

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More news: The proceedings of the National Institutes of Health 3-day

Consensus Development Conference on celiac disease were videocast

via the web and can be found at https://www.videocast.nih.gov

(click on " past events " … " conferences " ).

The statement (21 pages) from the conference is available at

http://consensus.nih.gov/cons/118/118celiacPDF.pdf.

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CONTACTS FOR OTHER SUPPORT GROUPS

Napa: Marie Dell'Isola, 707-255-4027

(no meetings planned but welcomes phone calls)

SF ROCK: Palmer, 415-647-7669

palmer@...

Bay Area ROCK: Fowell Velez, 650-216-6405

kfowell00@...

East Bay ROCK: Dana Sylvester-Doscher, 925-648-3217

ddoscher11@...

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From Owen, group leader Reno ROCK (Raising Our Celiac Kids):

After sending a proposal to the organizers of the P.F. Chang's Arizona

Rock N Roll Marathon on behalf of the Center for Celiac Disease Research

and ROCK, our group was chosen to be one of the designated charities!

We will be forming marathon teams across the country under the name

" Making Tracks for Celiac. " Individuals will raise money (amounts to be

determined) and train for the Jan. 9, 2005 marathon in Phoenix! It is an

amazing way to increase awareness and raise money for CD research!

The event offers a full and half marathon with a time limit of 7 hours.

If you are interested in participating please contact at

renorockgroup@... to be put on the " interested list. "

Thank you so much!

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Special thanks to Schinnerer for the following product

information on La Tortilla Factory organic corn tortillas (from

the company representative):

" Corn tortillas are made on a production line dedicated solely to corn.

Flour is never used on corn equipment. No dusting flour is used during

corn production. Our corn supplier mills corn only. They do not mill

any other grains such as wheat. There is no testing in place for traces

of wheat flour in our corn because no wheat is present at the facility.

In addition we are inspected by AIB, QAI, and other agencies and

we are in compliance with our allergen policies. "

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NOTE:

Support group meetings are held in Oakland, Santa Cruz, and near

Stanford University. R.O.C.K. (Raising Our Celiac Kids) meetings

are in Palo Alto, Danville and San Francisco. Meeting notices are

sent out monthly (except in summer) announcing upcoming events.

You can receive an e-mail or snail mail notice. To subscribe or report

address changes, please send your name, address, phone number

and e-mail address to your local support group leader or to

Martha Deutsch, 341 Central Ave, Half Moon Bay 94019,

650-726-9562, deutschm@....

This list is confidential and will be used only to keep you informed

of local celiac activities and important celiac concerns the group

leaders wish to share. Even if you do not participate in a group,

all of the leaders are happy to answer questions and refer you to

other resources. No dues are collected at this time, but mailing

expenses are covered by funds collected in support of the annual

celiac conference held at Stanford University.

..

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SF Bay Area Celiacs

Martha Deutsch

341 Central Avenue

Half Moon Bay, CA 94019

deutschm@...

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