Re: G tube

[Guest guest]

Rita,

My daughter is 19 months old and had her button placed when she was 4 months.

Considering the circumstances it was necessary for our daughter to have the

button at that time. She was 4 months and didn't even weigh 8 lbs.

Overall we have had a positive experience with her g-tube. The only thing I

would suggest is if you do get the g-tube, try not to let your child become

dependent on it. If they are eating most meals by mouth and the tube is only

for supplemental or night feeds, use it for only that. My daughter will not eat

anything by mouth now. She is totally dependent on her tube, and we are now in

therapy to try to get her to eat.

The button has been a blessing for us, it has enabled our daughter to " catch-up "

with other kids her age, as far as size goes.

I hope that you find the answers you need.

Katy

Mom to Austin 4 no CF & Piper 19 months w/CF

[Guest guest]

Rita,

My twins have always been tube-fed, since they

are orally averse. I credit this with their being

in the 50% or higher for height and weight. They're

healthy, happy and full of energy, but it is a lot

of work, especially if they're hooked up to a pump

at night. Lots of getting up in the wee hours to

administer enzymes. It is well worth it if it means

a healthier child though. Nutrition is SO important

to our little ones.

hugs,

C

Mommy to Mick and Alli, 4 yo twins wcf

--- rita_gercone wrote:

> Can anyone relate their experiences with a g-tube to

> me? The

> doctors are considering it for my daughter. She is

> 10 months old

> and weighs about 15 pounds. She is going to be

> having surgery for a

> malrotated bowel soon and I think they are going to

> put the tube in

> then. It sounds scarey, but from what I've read

> people have good

> results with them. Any thoughts would be

> appreciated.

>

> Rita

> Mom to 3 1/2 no cf and Gia 10 mo wcf

>

>

[Guest guest]

Hi Rita,

My daughter has a g-tube. She also has terrible reflux, so she got the nissan

fundoplication when the tube was placed. The nissan, though absolutely

necessary, caused us more problems than the tube and feeds themselves. One VERY

important thing is to NOT let the child become dependant on the tube feeds for

all nutrition. If your daughter CAN eat, make sure that she does. it is very

hard to get kids to eat once they become dependant on the tube. Check out our

site at

http://groups.msn.com/TeamJane<http://groups.msn.com/TeamJane>

click on the " adventures in g-tube land " page for the full story on 's

tube and Nissan surgery.

mom of 5 with CF and a boy on the way

G tube

Can anyone relate their experiences with a g-tube to me? The

doctors are considering it for my daughter. She is 10 months old

and weighs about 15 pounds. She is going to be having surgery for a

malrotated bowel soon and I think they are going to put the tube in

then. It sounds scarey, but from what I've read people have good

results with them. Any thoughts would be appreciated.

Rita

Mom to 3 1/2 no cf and Gia 10 mo wcf

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The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

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[Guest guest]

Hi Rita,

My son, , had a g-tube placed, as well as a nissan, in October 2001.

For it was the best thing, he still eats, and I agree with whole

heartedly about making them eat and become dependant on the tube. The nice

thing about his tube is that when he just flat out refuses to eat, we can do a

bolus, but that is after all else has failed.

The only problem we have had with the tube is the granulation tissue under

the button, but once we started using eucalyptus and safflower oil mixed with

lukewarm water it got much better. Hope this helps.

Take care,

, mommy of 4, 4 1/2 wcf, GERD