Re: a very young volunteer in the CF world

[Guest guest]

YES!!! How really wonderful & fine is this very young man!! Thank him from

me & all of us I am sure.

You have every right to be proud of him...I am too .!! God Bless him . & his

gracious family. They should also be commended for doing such a grand job in

raising this kiddo!!!

LOVE & HUGS, GrandmomBEV

a very young volunteer in the CF world

My godson, of a different religion and ethnicity from my own, but as

dear as any of my grandchildren to me, has been very interested in

helping those of any age with coping with cystic fibrosis, especially

in research. He has even volunteered for an EBCT scan of the lungs,

that is, Electron Beam Computerized Tomography. This is done by

breathing through each airway and that is scanned. It is a difficult

and somewhat scary test, and I thought that he was very brave to

volunteer when non-cystic fibrosis persons (and non-carriers) were

needed at a university center.

Yesterday, he telephoned me to explain about his assignment in school, and

to read his essay on what the " I Have a Dream " speech

by Dr. Luther King, Jr. meant to him. He read me the whole

thing over the phone, and then sent me his corrected and spell-

checked copy. It was very moving. He is ten years old and in the

7th grade!

I have no way to really honor him for the many things he has done

for children with cystic fibrosis, such as obtaining and donating

toys, and visiting them and reading to them and just listening to

them--with their parents' permission, of course.

He lives far away in another state and said that he thought that it was

" alright " for me to tell about him on a list for cf adults and families,

but did not want his name mentioned--just his age and year in school!

As he read what Dr. King's speech meant to him, I thought that he him

self was living out that dream in so many ways, and I am just so proud

of him, that I could not resist telling you all about him--after all--I did

not

rear him, nor either of his parents! He is a wonder.

As for me, I guess I would have a bit of learning to do should anything

happen to his parents--he is Baptist and I am Sephardic Jewish--but

I guess I have already started; when I visit there, I go to church with

him and when he visits here, we go to his church denomination here.

The point is, that we do not have the same tradition of " godparents "

in my ethnicity nor religion, so it is a bit odd for his parents to have

so generously chosen me, and, of course, it is a tremendous honor.

I hope that you have not minded the verbosity here--I just cannot stop

when I talk about his generosity to us.

Thank you for " listening! "

n Rojas

[Guest guest]

Aren't grandchildren great! Your grandson sounds like a kind hearted

and generous little guy.

Congrats,

Gale

> My godson, of a different religion and ethnicity from my own, but as

> dear as any of my grandchildren to me, has been very interested in

> helping those of any age with coping with cystic fibrosis,

especially

> in research. He has even volunteered for an EBCT scan of the lungs,

> that is, Electron Beam Computerized Tomography. This is done by

> breathing through each airway and that is scanned. It is a

difficult

> and somewhat scary test, and I thought that he was very brave to

> volunteer when non-cystic fibrosis persons (and non-carriers) were

> needed at a university center.

>

> Yesterday, he telephoned me to explain about his assignment in

school, and to read his essay on what the " I Have a Dream " speech

> by Dr. Luther King, Jr. meant to him. He read me the whole

> thing over the phone, and then sent me his corrected and spell-

> checked copy. It was very moving. He is ten years old and in the

> 7th grade!

>

> I have no way to really honor him for the many things he has done

> for children with cystic fibrosis, such as obtaining and donating

> toys, and visiting them and reading to them and just listening to

> them--with their parents' permission, of course.

>

> He lives far away in another state and said that he thought that it

was

> " alright " for me to tell about him on a list for cf adults and

families,

> but did not want his name mentioned--just his age and year in

school!

> As he read what Dr. King's speech meant to him, I thought that he

him

> self was living out that dream in so many ways, and I am just so

proud

> of him, that I could not resist telling you all about him--after

all--I did not

> rear him, nor either of his parents! He is a wonder.

>

> As for me, I guess I would have a bit of learning to do should

anything

> happen to his parents--he is Baptist and I am Sephardic Jewish--but

> I guess I have already started; when I visit there, I go to church

with

> him and when he visits here, we go to his church denomination here.

> The point is, that we do not have the same tradition of " godparents "

> in my ethnicity nor religion, so it is a bit odd for his parents to

have

> so generously chosen me, and, of course, it is a tremendous honor.

>

> I hope that you have not minded the verbosity here--I just cannot

stop

> when I talk about his generosity to us.

>

> Thank you for " listening! "

> n Rojas

>

>

>

>

>

[Guest guest]

Dear n,

You have a wonderful godson!! Tell him thank you from Deana and too

) I think his parents knew what a WONDERFUL godmother they were

choosing, so the difference in religion didn't matter.

Deana

Mom to 13 no cf and 7 wcf

a very young volunteer in the CF world

> My godson, of a different religion and ethnicity from my own, but as

> dear as any of my grandchildren to me, has been very interested in

> helping those of any age with coping with cystic fibrosis, especially

> in research. He has even volunteered for an EBCT scan of the lungs,

> that is, Electron Beam Computerized Tomography. This is done by

> breathing through each airway and that is scanned. It is a difficult

> and somewhat scary test, and I thought that he was very brave to

> volunteer when non-cystic fibrosis persons (and non-carriers) were

> needed at a university center.

[Guest guest]

That is great n, Your godson sounds like such a wonderful young man. thank

you for sharing him with us!

love,

M

mom of Nick age 21 no cf and age 19 wcf

[Guest guest]

Thank you, Deanna; I work at it--am not at my best yet! n

a very young volunteer in the CF world

> My godson, of a different religion and ethnicity from my own, but as

> dear as any of my grandchildren to me, has been very interested in

> helping those of any age with coping with cystic fibrosis, especially

> in research. He has even volunteered for an EBCT scan of the lungs,

> that is, Electron Beam Computerized Tomography. This is done by

> breathing through each airway and that is scanned. It is a difficult

> and somewhat scary test, and I thought that he was very brave to

> volunteer when non-cystic fibrosis persons (and non-carriers) were

> needed at a university center.

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

------------------------------------------------------------------------------

[Guest guest]

Thank you, Gale--never thought that I would be a godmother! It's

fine with me; I get so much reward out of it all! n

Re: a very young volunteer in the CF world

Aren't grandchildren great! Your grandson sounds like a kind hearted

and generous little guy.

Congrats,

Gale

> My godson, of a different religion and ethnicity from my own, but as

> dear as any of my grandchildren to me, has been very interested in

> helping those of any age with coping with cystic fibrosis,

especially

> in research. He has even volunteered for an EBCT scan of the lungs,

> that is, Electron Beam Computerized Tomography. This is done by

> breathing through each airway and that is scanned. It is a

difficult

> and somewhat scary test, and I thought that he was very brave to

> volunteer when non-cystic fibrosis persons (and non-carriers) were

> needed at a university center.

>

> Yesterday, he telephoned me to explain about his assignment in

school, and to read his essay on what the " I Have a Dream " speech

> by Dr. Luther King, Jr. meant to him. He read me the whole

> thing over the phone, and then sent me his corrected and spell-

> checked copy. It was very moving. He is ten years old and in the

> 7th grade!

>

> I have no way to really honor him for the many things he has done

> for children with cystic fibrosis, such as obtaining and donating

> toys, and visiting them and reading to them and just listening to

> them--with their parents' permission, of course.

>

> He lives far away in another state and said that he thought that it

was

> " alright " for me to tell about him on a list for cf adults and

families,

> but did not want his name mentioned--just his age and year in

school!

> As he read what Dr. King's speech meant to him, I thought that he

him

> self was living out that dream in so many ways, and I am just so

proud

> of him, that I could not resist telling you all about him--after

all--I did not

> rear him, nor either of his parents! He is a wonder.

>

> As for me, I guess I would have a bit of learning to do should

anything

> happen to his parents--he is Baptist and I am Sephardic Jewish--but

> I guess I have already started; when I visit there, I go to church

with

> him and when he visits here, we go to his church denomination here.

> The point is, that we do not have the same tradition of " godparents "

> in my ethnicity nor religion, so it is a bit odd for his parents to

have

> so generously chosen me, and, of course, it is a tremendous honor.

>

> I hope that you have not minded the verbosity here--I just cannot

stop

> when I talk about his generosity to us.

>

> Thank you for " listening! "

> n Rojas

>

>

>

>

>

[Guest guest]

Thank you, Bev--this kid is just so GOOD, that the word " grace " does

come to mind! Love, n

a very young volunteer in the CF world

My godson, of a different religion and ethnicity from my own, but as

dear as any of my grandchildren to me, has been very interested in

helping those of any age with coping with cystic fibrosis, especially

in research. He has even volunteered for an EBCT scan of the lungs,

that is, Electron Beam Computerized Tomography. This is done by

breathing through each airway and that is scanned. It is a difficult

and somewhat scary test, and I thought that he was very brave to

volunteer when non-cystic fibrosis persons (and non-carriers) were

needed at a university center.

Yesterday, he telephoned me to explain about his assignment in school, and

to read his essay on what the " I Have a Dream " speech

by Dr. Luther King, Jr. meant to him. He read me the whole

thing over the phone, and then sent me his corrected and spell-

checked copy. It was very moving. He is ten years old and in the

7th grade!

I have no way to really honor him for the many things he has done

for children with cystic fibrosis, such as obtaining and donating

toys, and visiting them and reading to them and just listening to

them--with their parents' permission, of course.

He lives far away in another state and said that he thought that it was

" alright " for me to tell about him on a list for cf adults and families,

but did not want his name mentioned--just his age and year in school!

As he read what Dr. King's speech meant to him, I thought that he him

self was living out that dream in so many ways, and I am just so proud

of him, that I could not resist telling you all about him--after all--I did

not

rear him, nor either of his parents! He is a wonder.

As for me, I guess I would have a bit of learning to do should anything

happen to his parents--he is Baptist and I am Sephardic Jewish--but

I guess I have already started; when I visit there, I go to church with

him and when he visits here, we go to his church denomination here.

The point is, that we do not have the same tradition of " godparents "

in my ethnicity nor religion, so it is a bit odd for his parents to have

so generously chosen me, and, of course, it is a tremendous honor.

I hope that you have not minded the verbosity here--I just cannot stop

when I talk about his generosity to us.

Thank you for " listening! "

n Rojas

[Guest guest]

Oops n. I thought that he was your " Grandson " . I see know that

you said " Godson " . Well, he sounds like a great boy, just the same.

Gale

> > My godson, of a different religion and ethnicity from my own,

but as

> > dear as any of my grandchildren to me, has been very interested

in

> > helping those of any age with coping with cystic fibrosis,

> especially

> > in research. He has even volunteered for an EBCT scan of the

lungs,

> > that is, Electron Beam Computerized Tomography. This is done by

> > breathing through each airway and that is scanned. It is a

> difficult

> > and somewhat scary test, and I thought that he was very brave

to

> > volunteer when non-cystic fibrosis persons (and non-carriers)

were

> > needed at a university center.

> >

> > Yesterday, he telephoned me to explain about his assignment in

> school, and to read his essay on what the " I Have a Dream " speech

> > by Dr. Luther King, Jr. meant to him. He read me the

whole

> > thing over the phone, and then sent me his corrected and spell-

> > checked copy. It was very moving. He is ten years old and in

the

> > 7th grade!

> >

> > I have no way to really honor him for the many things he has

done

> > for children with cystic fibrosis, such as obtaining and

donating

> > toys, and visiting them and reading to them and just listening

to

> > them--with their parents' permission, of course.

> >

> > He lives far away in another state and said that he thought

that it

> was

> > " alright " for me to tell about him on a list for cf adults and

> families,

> > but did not want his name mentioned--just his age and year in

> school!

> > As he read what Dr. King's speech meant to him, I thought that

he

> him

> > self was living out that dream in so many ways, and I am just

so

> proud

> > of him, that I could not resist telling you all about him--

after

> all--I did not

> > rear him, nor either of his parents! He is a wonder.

> >

> > As for me, I guess I would have a bit of learning to do should

> anything

> > happen to his parents--he is Baptist and I am Sephardic Jewish--

but

> > I guess I have already started; when I visit there, I go to

church

> with

> > him and when he visits here, we go to his church denomination

here.

> > The point is, that we do not have the same tradition

of " godparents "

> > in my ethnicity nor religion, so it is a bit odd for his

parents to

> have

> > so generously chosen me, and, of course, it is a tremendous

honor.

> >

> > I hope that you have not minded the verbosity here--I just

cannot

> stop

> > when I talk about his generosity to us.

> >

> > Thank you for " listening! "

> > n Rojas

> >

> >

> >

> >

> >