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Re: Can anyone offer me some hope???Patti

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Patti,

The only observable symptom for food allergies/sensitivites is her

horrible eczema and hives. It never really got better with the

diet. The only thing that has helped it is the med spironolactone.

It cleared up her hives and the eczema is so much better.

She tested positive for reactions to so many different foods both IgG

and IgE. You name it she is sensitive to it. We have stayed away

from the foods she is most sensitive to: gluten, milk, eggs, peanuts,

and pecans. I didn't know that Caprylic acid is from coconut oil.

She is sensitive to that as well..

I am just at a lost as to where to go from here. I guess I just need

to research this all further...

Thanks for your help,

Bethany

>

> Hi Bethany,

>

> If the food allergies/sensitivities show up in tests.... and not

necessarily with observable symptoms, it sounds to me like that is

probably due to a really damaged/leaky gut. We have found that many

of the SCD kids have lost a lot of their food sensitivities as the

gut heals. It will be up to you whether or not to completely avoid

those foods she tests positive for..... but of course, you will

permanently avoid any food she has ever had an anaphylactic reaction

to.

>

> Yes! Candex and Candidase are legal on SCD. I think the enyzme

approach is a great one.

>

> GSE is legal, but is one that I think should be rotated.... so

yeast don't become resistant.

>

> Caprylic acid is not my favorite, but it's legal.... as long as you

check out the label for " other ingredients " and double check that

against our list on the website, www.pecanbread.com .

Click " Supplements " , then you'll see a list of legal and illegal

supplement additives. Sometimes there are hidden illegals in

flavorings or sweeteners.

>

> It's just my personal opinion/preference, but I sort of wish

parents would use pure, virgin coconut oil instead of caprylic

acid... just for cooking and adding to foods. That's what caprylic

acid comes from.... but I like the idea of the pure oil as a food.

You can cook with it... it's great for that because it holds up so

well to heat and it's just a good source of the MCTs and has anti-

fungal properties. My favorite is Nature's Way EFA Gold, pure extra-

virgin, organic coconut oil. It has a nice taste and smell.

>

> Valtrex definitely has illegals in it..... so you would need to

think that over before starting SCD. It is really not compatible....

and I don't think it can be compounded. I'm sure lots of the kids

have viruses lurking in their bodies.... but I think I personally

prefer to see them get healthy on the diet.... get the leaky gut

healed..... and use natural antivirals (enzymes and coconut oil both

can be anti-viral as well.... and there are other things that you can

add in).

>

> I'm sure the hyperness and anxiety tends to make YOU a little

stressed out and anxious, too, doesn't it? My daughter has had

issues with irritability over the years (she is not an ASD child...

she has CP, dev. delays and epilepsy)... and I know it's always worse

when her digestive tract is not working smoothly.

>

> best,

> Patti

>

>

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