Re: A few questions about tea tree oil, magnesium, MSM and selenium

[Guest guest]

> 2. Can I give tea tree oil to a 4-year-old, and if

> so, how much and how often, and is it mixed with

> anything, or just given straight through a neb?

I don't know if anyone has responded yet. I have read every post

since January 2003 and this is what I have learned.

DO NOT CONSUME TEA TREE OIL. You are supposed to smell it only. Boil

some water on the stove and put a drop or two in. Let your child

stand nearby and smell it.

Put a few drops in a hotpot and leave in a room. The room will smell

like TTO.

If in a hurry you can have the child smell directly from the bottle.

If sinuses are bothering the child put one drop of TTO on a cotton

ball and place in each ear while sleeping.

Beth 24 No CF Seattle

[Guest guest]

Beth,

Thank you so much. Actually, no one has responded

to my questions yet. I tried to get the answers

from searching the archives, but for some reason I

get over 50,000 hits, but can only read the most

recent posts. When I try to go to the previous

posts, they all disappear. I must be doing something

wrong.

From the post I read, I thought I understood the

writer (Sorry, I can't remember who wrote the post),

used TTO in a nebulizer. I never thought she gave it

to drink. However, I'll consider trying a couple

drops in steaming water. I guess if the water was

boiled long enough, then pseudomonas isn't a problem.

Thanks again,

C

Mommy to Mick and Alli, 4 yo twins wcf

--- luckyducky22 wrote:

>

> > 2. Can I give tea tree oil to a 4-year-old, and if

> > so, how much and how often, and is it mixed with

> > anything, or just given straight through a neb?

>

> I don't know if anyone has responded yet. I have

> read every post

> since January 2003 and this is what I have learned.

>

> DO NOT CONSUME TEA TREE OIL. You are supposed to

> smell it only. Boil

> some water on the stove and put a drop or two in.

> Let your child

> stand nearby and smell it.

> Put a few drops in a hotpot and leave in a room. The

> room will smell

> like TTO.

> If in a hurry you can have the child smell directly

> from the bottle.

> If sinuses are bothering the child put one drop of

> TTO on a cotton

> ball and place in each ear while sleeping.

>

> Beth 24 No CF Seattle

>

>

[Guest guest]

Hi ,

Since my son uses all these treatments, I'll take a stab at your

questions. I'm sorry I didn't see them earlier. I saw Beth's response

to you, and that's what alerted me. I've inserted my responses

between your questions below.

Kim

> Hi all,

>

> Okay, I've just spent the whole night up with Alli,

> who has decided not to tolerate her overnight feeding.

> This is a sure sign that something is brewing with

> her. It is also, coincidentally, her off time with

> TOBI. She's not due to start for another week or two.

I hate it when the happens. The same thing started happening to my

son. Eventually, I noticed a decline after being off TOBI about only

two weeks. Not a good sign at all. However, since completely

rehauling his treatments, he has only needed TOBI twice in the past

12 months.

> 1. If we supplement magnesium and selenium, how do

> we figure out the right amount to give them (I have

> twins with CF, but Mick is doing fine now - as he

> should be since he IS on TOBI now).

TOBI, as other antibiotics (and bronchodilators and steroids and

antifungals, and malabsorption, yada, yada, yada) will deplete the

body of magnesium. According to the USDA, a HEALTHY 4-year old needs

130 mg. magnesium per day. A child with chronic health issues and a

malabsorption disease would need more.

Our motto tends to be " When in doubt, start low, go slow. " So, you

might try Alli on 200 mg. Solgar magnesium glycinate per day (100 mg.

in am, another 100 mg. midday) and watch her stools to be sure she

doesn't develop diarrhea. Of course, in CF, diarrhea is often related

to sudden dietary changes or intestinal upset due to oral antibiotics.

As for the selenium, again, start low, go slow. At the time my son

first started supplementing selenium (Se) he started with 75 mcg.

daily, in addition to whatever was in his multi. I think he still

takes 75 mcg. but could probably do more. However, I'm not that

concerned as long as he takes his magnesium. Remember, when you're

magnesium deficient, then you will be deficient in antioxidants A, C,

E, selenium, coenzyme Q10, and GSH and its substrates (and you run an

increased risk of problems with pancreatitis, gall bladder, kidney

stones, asthma, problems regulating glucose and controlling diabetes,

and increased risk of Pa becoming mucoid and developing antibiotic

resistance, and ototoxicity).

There are studies that show pwcf are low in A, E, Se, CoQ10, GSH,

Zinc, etc., so it pays to replenish that ultra-important magnesium.

> 2. Can I give tea tree oil to a 4-year-old, and if

> so, how much and how often, and is it mixed with

> anything, or just given straight through a neb?

Yes, you can use TTO with a 4-year old. NEVER inhale this through a

nebulizer cup! We boil water, let it cool a minute, then add a drop

or two and then just place your head over the vapors and inhale. Aura

Cacia makes an organic TTO mixed with lavendar, which has a more

pleasant scent. You can find Aura Cacia brand at most health food

stores, Whole Food stores, etc.

> 3. What is MSM, what dosage would be appropriate,

> and how is it delivered?

MSM stands for methyl-sulfonylmethane. It's a natural derivative of

DMSO and a natural source of sulfur. People with CF are low in sulfur

(quite possible due to a magnesium deficiency). You can go to

http://www.healthwell.com if you want to connect the dots between

minerals and amino acids.

Studies show that MSM can alleviate scarring. So some of us are

hoping that by taking MSM we're preventing or attenuating any organ

fibrosing (scarring) caused by CF. I've been taking MSM for over a

year and have noticed a huge difference in my skin and nails --

softer skin, stronger, faster growing nails. Sulfur is necessary for

healthy skin and nails (and a lot more). You can go to

http://www.msm.com to read more. Please see their list for quality

sources of MSM! We only buy MSM manufactured by Carolwood. Carolwood

patents their MSM under the Lignisol name. You will find many

companies buy MSM from Carolwood and if they do, they will put

Lignisol on the label. One example is MSM made by Natrol (that's the

brand I buy when it goes on sale, buy 1 get 1 free at Walgreens!).

You will also find MSM sold in combo with oh, shoot -- what's

that " g " thing everyone is buying for arthritis? Ah! glucosamine! We

don't buy the combo, just the MSM.

> I gave her some water and children's tylenol because

> I was concerned about her dehydrating, and she

> immediately threw that up. sigh... So, I'll just have

> to give her more water at a slower pace and pray she

> holds it down. Anyone with any other ideas?

Don't use Tylenol! Acetaminophen depletes glutathione (GSH), which

defeats the purpose of you giving her GSH in the first place. If you

need something to reduce fever or pain, try ibuprofen.

You might also try to get as much garlic into the kids' diet as

possible, saute it into your vegetables, soups, stews, etc. It's a

natural antibiotic and many swear by it (we sure do, right, Bev?).

also has been using inositol with a with excellent results.

I've read very promising results from others as well. just

started this last Saturday and I can't wait for an update. Inositol

has been studied for a long time, and it's showing promise in

correcting the misfolding problem of the CFTR. It's an odorless,

tasteless powder that you can mix into food or beverages. For the

cheapest price of pharmaceutical, food-grade inositol, go to

http://www.iherb.com and look for Jarrow inositol.

Hope this helps and that you can get your kiddos off TOBI for good!

Kim