Guest guest Posted March 11, 2004 Report Share Posted March 11, 2004 and I spent a few hours at the clinic on Monday. He has gained on 1 kilo in a month. He only had one poopie a day and it was determined he was only absorbing less than 60% of all he ate!! I was so fustrated by all the oil and butter etc..I had given him over his couple of years of life and no signs of malabsorbion was there except no weight gain...Now, he had surgery (DEC)for the mic key button and is tube feed ensure plus eight hours a night?? He does not have greasy poopies always has one a day except when had cloitis or on antibiotic. I was expecting much more from the feedings, instead I feel fustrated and sad my little boy eats less and less everyday by mouth. Do any of you have to wake your children up or give enzymes in the middle of the night. They do not want him to take vikose (SP) and said I could " try " to to put (creon through tube)...why have they not suggested doing this before I mentioned it?? BARELY grows a couple of things now and is healthy lungs wise...AND HE WILL NOT EAT ICE CREAM!!I know the recipes and have tried most of them, we do not force feed I learned early on from parents not to do that. He drinks resource fruit drink 250 calories and barely nothing else?? Does anyone else have this type of malabsorbion probelms with no symptoms except no weight gain. This all may difficult to read I am trying to type before he gets home from his fathers this morning, drink a little coffee...etc. will be 3 June 2 and weights 26.4lbs and is 83cm. You folks are awesome...thank you so dearly for all of your support throughout the years. Crystal Quote Link to comment Share on other sites More sharing options...
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