Re: Jack's check-up

[Guest guest]

Hi Sharon!

That is great news about Jack. I am so happy for all of you! Keep up the good

care!

love,

M

[Guest guest]

Glad his appt went well. A chronic cough can be caused by reflux

which is common in Cf kids. My son was put on Zantac (now on

Prilosec) to help with the reflux and to help him absorb the enzymes

better. My son also has liver problems AND had meconium ileus (he

has surgery for it and was 11 weeks premature). My son has been on

Ursodiol for his liver since birth and is still on it. It has worked

great for us so far!

mom to Ashton almost 3 wcf

> Jack had a wonderful visit to clinic. Jack is six months and we

were

> told two months ago that he had liver disease. He has been on

> medication for this since birth. Well this month his liver enzymes

> are WAY down, even low in the normal range. What a blessing!!! He

was

> born with meconium illeus, so his liver might have just starting

> working correctly since all of his problems at birth.

>

> He also had his first infant PFT yesterday. He has had a cough

since

> birth and his doctor is having a hard time figuring out why.

Anyway,

> his PFT's were outstanding, so there is no mucus build-up in his

> lungs. He also is not growing any bacteria. Now his doctor think

his

> cough is related to inflammation in his lungs, so we can treat it

> with steroids.

>

> We were really worried about him, with the chronic cough and liver

> problems, now it is looking like his a lot healthier than we

thought!!

>

> Sharon, mom to Sophia, 2 and Jack, 6 months both with cf

[Guest guest]

That's great news about Jack. I'm curious about his cough...have they

checked him for reflux? My daughter had the same thing and they did a

swallow study and found the acid was irritating her esophagus which was

causing her to cough. She is on Previcid which has helped immensely and

it helps the enzymes work better too. I know this because we tried

taking her off at a year but quickly put her back on. Anyway, my other

thought is allergy to mold, dust etc... My son had a chronic cough at 3

mo of age (he's a carrier) and they thought it was asthma. Before

starting meds, we put an air purifier in his room and used tea tree oil

and within a week it was gone. He is 3 1/2 now and has not had a cough

since plus no other signs of asthma. You may want to exhaust all other

possibilities before trying the steroids...it just seems like his PFTs

should have been lower if his lungs were inflamed. Just a thought.

Good luck and again, I'm glad to here things are looking up.

Mom to Ellie 15mo wCF and Jack 3 1/2yrs noCF

Jack's check-up

Jack had a wonderful visit to clinic. Jack is six months and we were

told two months ago that he had liver disease. He has been on

medication for this since birth. Well this month his liver enzymes

are WAY down, even low in the normal range. What a blessing!!! He was

born with meconium illeus, so his liver might have just starting

working correctly since all of his problems at birth.

He also had his first infant PFT yesterday. He has had a cough since

birth and his doctor is having a hard time figuring out why. Anyway,

his PFT's were outstanding, so there is no mucus build-up in his

lungs. He also is not growing any bacteria. Now his doctor think his

cough is related to inflammation in his lungs, so we can treat it

with steroids.

We were really worried about him, with the chronic cough and liver

problems, now it is looking like his a lot healthier than we thought!!

Sharon, mom to Sophia, 2 and Jack, 6 months both with cf

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be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

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