Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 Post to bevd@hccs about the ADEK or equivalent; she is the best! Love, n; she represents the cystic fibrosis pharmacy in Orlando, Florida. . . I'm New to this group Hello, I have a 7 year old daughter with CF.We live in Orange County California. We were with Kaiser Permante insurance until the end of last year. It was the only option my company offered that would cover pre-existing conditions for both me and her (I have severe rheumatoid arthritis and of cousre she has CF). However, this year Cigna opened up coverage to pre-existing and we moved over to seeing the CF team at CHOC (Childrens Hospital Orange County). They have been wonderful and much more through than Kaiser was. I don't have to jump thru any hoops to have here be seen by the CF hanks,docs. With Kaiser, I would always have to take her to her pediatrician first and then they would determine whether she could go and see the out of network CF doctor. She also had to hospitalized at Kaiser Hospital, and the resident pedricians would play telephone tag with the CF doc about how to handle her care. However, Kaiser was really good about providing all the necessary meds. I always just got her enzymes, ADEK, antiobotics, and all her innhaled drugs from them with no hassle. Now that we are with Cigna I am having trouble getting her ADEK though. The nurse at the CHOC CF clinic suggested we switch from Pancrease to Ultrase because Scandipharm has a program to provde free ADEK to CF patients who are on Ultrase. She said it was on their website, but I can't find it. I just paid for her first big prescripion of Ultrase, but I don't know what to do next. Can any one out there assist me? Thanks, DD ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 Hi, you need to mail your receipt for ultrase to scandipharm ccp-axcan P.O. Box 52065 Phoenix, Ar 85072-9152 its called the comprehensive care program also have phone # 1- hope that hopes. amy mom to nathan almost 3 with cf I'm New to this group Hello, I have a 7 year old daughter with CF.We live in Orange County California. We were with Kaiser Permante insurance until the end of last year. It was the only option my company offered that would cover pre-existing conditions for both me and her (I have severe rheumatoid arthritis and of cousre she has CF). However, this year Cigna opened up coverage to pre-existing and we moved over to seeing the CF team at CHOC (Childrens Hospital Orange County). They have been wonderful and much more through than Kaiser was. I don't have to jump thru any hoops to have here be seen by the CF hanks,docs. With Kaiser, I would always have to take her to her pediatrician first and then they would determine whether she could go and see the out of network CF doctor. She also had to hospitalized at Kaiser Hospital, and the resident pedricians would play telephone tag with the CF doc about how to handle her care. However, Kaiser was really good about providing all the necessary meds. I always just got her enzymes, ADEK, antiobotics, and all her innhaled drugs from them with no hassle. Now that we are with Cigna I am having trouble getting her ADEK though. The nurse at the CHOC CF clinic suggested we switch from Pancrease to Ultrase because Scandipharm has a program to provde free ADEK to CF patients who are on Ultrase. She said it was on their website, but I can't find it. I just paid for her first big prescripion of Ultrase, but I don't know what to do next. Can any one out there assist me? Thanks, DD ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 In a message dated 2/11/2004 12:13:53 AM Central Standard Time, disneydruid@... writes: Thanks, DD Health Insurance scares me!! Because it is getting worse and worse and I worry about my girls when they are 18 and not able to get there own insurance because of there CF. My husband also has Rheumatoid Arthritis it to is an awful disease to have to leave with. How long have you been fight with RA? Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Dear AMY, We give to any person who gets their enzymes with us ...their multi- vitamin with their monthly order FREE. REGARDLESS of which enzyme.........That includes ADEK, ABDEK, or other multi--vitamin. Give me a call 1-.we bill the insurance company.You don't have to send anything...... go to my site www.cfpharmacy.com It is going to be revamped with additional info & that info will be there soon. In fact they are working on the " back " side now. LOVE & HUGS, GrandmomBEV Re: I'm New to this group Hi, you need to mail your receipt for ultrase to scandipharm ccp-axcan P.O. Box 52065 Phoenix, Ar 85072-9152 its called the comprehensive care program also have phone # 1- hope that hopes. amy mom to nathan almost 3 with cf I'm New to this group Hello, I have a 7 year old daughter with CF.We live in Orange County California. We were with Kaiser Permante insurance until the end of last year. It was the only option my company offered that would cover pre-existing conditions for both me and her (I have severe rheumatoid arthritis and of cousre she has CF). However, this year Cigna opened up coverage to pre-existing and we moved over to seeing the CF team at CHOC (Childrens Hospital Orange County). They have been wonderful and much more through than Kaiser was. I don't have to jump thru any hoops to have here be seen by the CF hanks,docs. With Kaiser, I would always have to take her to her pediatrician first and then they would determine whether she could go and see the out of network CF doctor. She also had to hospitalized at Kaiser Hospital, and the resident pedricians would play telephone tag with the CF doc about how to handle her care. However, Kaiser was really good about providing all the necessary meds. I always just got her enzymes, ADEK, antiobotics, and all her innhaled drugs from them with no hassle. Now that we are with Cigna I am having trouble getting her ADEK though. The nurse at the CHOC CF clinic suggested we switch from Pancrease to Ultrase because Scandipharm has a program to provde free ADEK to CF patients who are on Ultrase. She said it was on their website, but I can't find it. I just paid for her first big prescripion of Ultrase, but I don't know what to do next. Can any one out there assist me? Thanks, DD ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Dear AMY, We give to any person who gets their enzymes with us ...their multi- vitamin with their monthly order FREE. REGARDLESS of which enzyme.........That includes ADEK, ABDEK, or other multi--vitamin. Give me a call 1-.we bill the insurance company.You don't have to send anything...... go to my site www.cfpharmacy.com It is going to be revamped with additional info & that info will be there soon. In fact they are working on the " back " side now. LOVE & HUGS, GrandmomBEV Re: I'm New to this group Hi, you need to mail your receipt for ultrase to scandipharm ccp-axcan P.O. Box 52065 Phoenix, Ar 85072-9152 its called the comprehensive care program also have phone # 1- hope that hopes. amy mom to nathan almost 3 with cf I'm New to this group Hello, I have a 7 year old daughter with CF.We live in Orange County California. We were with Kaiser Permante insurance until the end of last year. It was the only option my company offered that would cover pre-existing conditions for both me and her (I have severe rheumatoid arthritis and of cousre she has CF). However, this year Cigna opened up coverage to pre-existing and we moved over to seeing the CF team at CHOC (Childrens Hospital Orange County). They have been wonderful and much more through than Kaiser was. I don't have to jump thru any hoops to have here be seen by the CF hanks,docs. With Kaiser, I would always have to take her to her pediatrician first and then they would determine whether she could go and see the out of network CF doctor. She also had to hospitalized at Kaiser Hospital, and the resident pedricians would play telephone tag with the CF doc about how to handle her care. However, Kaiser was really good about providing all the necessary meds. I always just got her enzymes, ADEK, antiobotics, and all her innhaled drugs from them with no hassle. Now that we are with Cigna I am having trouble getting her ADEK though. The nurse at the CHOC CF clinic suggested we switch from Pancrease to Ultrase because Scandipharm has a program to provde free ADEK to CF patients who are on Ultrase. She said it was on their website, but I can't find it. I just paid for her first big prescripion of Ultrase, but I don't know what to do next. Can any one out there assist me? Thanks, DD ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Welcome DD! I'm M and I have 2 kids, one is Nick who is 21 nocf and the other is who is 20 wcf. Hey we live in OC too. We live in Placentia. I'm glad you like CHOC. We used to go there until 1997 and we were having some problems with one of the doctors so we changed to the cf clinic in Long Beach at Childrens. We liked CHOC until we started having the problems. Anyway, I just wanted to welcome you, what city do you live in? One of the moms on here, Tucker who lives in LA is starting a parents support group for the southern CA area. The first meeting is on Feb 21 I think. I am planning on going. I'm sure will send you more info. Welcome again! love, M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 I'd be real interested to hear about the how that support group goes - We are starting one here in NYC - Love to know how they work. * Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 GOOD LUCK ROBIN on yours in New York..( & anywhere they are:) LOVE & HUGS, GrandmomBEV RE: I'm New to this group I'd be real interested to hear about the how that support group goes - We are starting one here in NYC - Love to know how they work. * Robin Quote Link to comment Share on other sites More sharing options...
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