RE: I'm New to this group VITAMINS free for all..........?

[Guest guest]

I forgot to explain -----sorryyyyyyyy

One more point. We do this because we didn't think it is right for those

who cant take (my granddaughter is one of them) another enzyme then what

they are on (she uses Pancrease --MT16. ) to get FREE vitamins that they

generally all need. Sooooo, we do it for all . We also are part of the

Comprehensive Care Program of AXCAN. It is great BUT not fair to all those

with CF.... The company was AxcanScandipharm . & before that just

ScandiPharm. It is a good company, but I feel all should get them equality .

sooooooooooo, whatever works for you & the patients is GREAT...

LOVE & HUGS, GrandmoMBEV

Re: I'm New to this group

Hi,

you need to mail your receipt for ultrase to scandipharm ccp-axcan P.O. Box

52065 Phoenix, Ar 85072-9152 its called the comprehensive care program also

have phone # 1- hope that hopes.

amy mom to nathan almost 3 with cf

I'm New to this group

Hello,

I have a 7 year old daughter with CF.We live in Orange County

California. We were with Kaiser Permante insurance until the end of

last year. It was the only option my company offered that would cover

pre-existing conditions for both me and her (I have severe rheumatoid

arthritis and of cousre she has CF). However, this year Cigna opened

up coverage to pre-existing and we moved over to seeing the CF team

at CHOC (Childrens Hospital Orange County).

They have been wonderful and much more through than Kaiser was. I

don't have to jump thru any hoops to have here be seen by the CF

hanks,docs. With Kaiser, I would always have to take her to her

pediatrician first and then they would determine whether she could go

and see the out of network CF doctor. She also had to hospitalized at

Kaiser Hospital, and the resident pedricians would play telephone tag

with the CF doc about how to handle her care.

However, Kaiser was really good about providing all the necessary

meds. I always just got her enzymes, ADEK, antiobotics, and all her

innhaled drugs from them with no hassle.

Now that we are with Cigna I am having trouble getting her ADEK

though. The nurse at the CHOC CF clinic suggested we switch from

Pancrease to Ultrase because Scandipharm has a program to provde free

ADEK to CF patients who are on Ultrase. She said it was on their

website, but I can't find it. I just paid for her first big

prescripion of Ultrase, but I don't know what to do next.

Can any one out there assist me?

Thanks,

DD

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