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christine

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I can just imagine how hard that would be if there were small

children having to cope with their mommy always being in the

hospital. You sound like you have a very caring dr. Your so lucky in

that area.Our dr. is new ( family dr. that is)and I feel he really

does care .He says he feels so bad for her.But he can't help her

really except give her something for pain.And thats so frustrating.

We asked him to find us another pancreas dr. and he said he would

like for us to keep the one we have in Dallas. But we don't even feel

comfortable anymore with him. We just don't think that he believes us

anymore when I tell him that she can't function in life like this he

says " yes she can " . She just lays there like a zombie and we cant

even make a conversation at all with her. We are going to start

taking down her trazadone to a fourth of a pill and see if she can

wake up long enough eat or drink . One dr . says she needs to take it

to sleep and another dr. says she way over medicated ..which I do

believe but if she sleeps than she dont have pain.And thats what the

other dr. says.I believe if she got off of some of the medications

that she is on she would feel better. But when we do she cries she is

hurting and she can't sleep .So I don't know. well thanks for

listening. I hope your pancreatitis stays away for a long long time

and your surgery is successful.Spend as much time with that little

one for they don't stay that way long. Kristy has a little brother

that is 10 and she treats him like he is hers.And she has a sister

that is 18 who fusses with her all the time but she loves her . Her

brother loves her very much and I know this is taking a toll on him

too. He is very quiet and he doesn't say much about it but I know he

feels so bad for her.But we try to keep things as normal as we can .

I feel like he and his sister gets the short end of the stick

somtimes because we spend so much time in Hospitals and drs.But I

really think they understand because they have never seen her this

sick before. Even when she got her pacemaker she wasn't this sick

That was a breeze compared to this.Well , Once again I hope

everything goes well with you and your family. Take care. deedee

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