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Re: still has PA

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Cheryl,

How long has he been doing Tobi? Is he doing any other antibiotic

other than Tobi?

mom of a 10 wcf, Venanzio 7 nocf, Pepe 4 nocf

> Hey all, The clinic just called, Matty's throat culture is

positive for

> PA. OOOOOOH, I am so frustrated, we are doing inhaled Tobi twice a

day.

> They cut us back from 3 times a day. He still has it....I am upset,

> angry at this disease. Why, why, why..I just want to cry.

>

> Cheryl

>

>

>

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Cheryl,

Don't be too down about it. cultured it from diagnosis at 9 months until

she just this last culture in October. She was five when she finally didn't

culture it. It's not he end of the world. Other than the Tobi, it might not

even change anything else you are doing. It's just so common, he could have

gotten rid of it and been re-infected since the last culture.

still has PA

Hey all, The clinic just called, Matty's throat culture is positive for

PA. OOOOOOH, I am so frustrated, we are doing inhaled Tobi twice a day.

They cut us back from 3 times a day. He still has it....I am upset,

angry at this disease. Why, why, why..I just want to cry.

Cheryl

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In a message dated 2/19/2004 9:32:39 AM Central Standard Time,

tczcowl@... writes:

Hey all, The clinic just called, Matty's throat culture is positive for

PA. OOOOOOH, I am so frustrated, we are doing inhaled Tobi twice a day.

They cut us back from 3 times a day. He still has it....I am upset,

angry at this disease. Why, why, why..I just want to cry.

Cheryl

Does he have sinus problems? Because my oldest culture PA all of the time to

and we cultured her nose and found that the PA is in her sinuses and drains to

her throat. But we have done bronchs and it is not in her lungs just in her

airways. If he does have it in his sinuses he may never get rid of it. We have

done everything to get rid. Right now we are trying to do the tea tree oils to

see if that will help. Deb A

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