Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 KEEP BREASTFEEDING!! Our dietician (who was not a mother) wanted our son to take in an increasing number of bottles and reduce breastfeeding. Biggest mistake of our lives. Our son now refuses to eat (he is totally g-tube fed) and is orally aversive. The flavor of formula is just awful. If I could do it all over again (let's hope I don't!), I would breastfeed until he was 2. So good for them and so comforting for you and him. If you were all small as children then it would make sense for your son to be small. you can start adding lots of fat to his solid foods but keep up with the breastmilk as long as possible. Just my 2 cents! > My son, Jack, 5 months, and daughter, Sophia, 2.5, both with cf, had > their cf clinic visit yesterday. We have been struggling with > Sophia's weight since birth. She has never liked to eat. Jack on the > other hand is eating well and enjoying it. I am breastfeeding and he > is starting to take cereal and vegetables. His weight has been good > up to now. I was surprised at our clinic visit yesterday when the > doctor and nutritionist told us that Jack weight (16.5 pounds at five > months) is not where it should be for length/weight. I estimated that > he is taking in 750 calories but I am told he needs 1000 calories a > day. > > My question is after dealing with this two years with my daughter, I > am beginning to wonder even if my son was to magically increase his > calorie intake to 1000 would he even gain the weight like they > wanted. My husband and I have never been able to gain weight and were > both VERY thin as children. Both sides of our family are thin. > > Do I stop breastfeeding and attempt to bottle feed with formula? I > went through all of this with my daughter. I was not able to keep up > my supply, etc. with pumping, so supplementing/adding formula to > breast milk is not an option for me. I really believe that breast > milk is better and establishing a good food relationship with my son > early in life will help him in the years to come. Please let me know > if you have had success with getting your child to gain the weight > like they wanted even though your family is thin. > Thanks, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 I agree! I breastfed my son with cf and no one dared complained. I hardly ever post here, but I had to because my daughter, who does not have cf, is 6 months old. At her 6 month appt, she was 15 pounds 7 ounces (50%) and almost 27 inches long (90%). So I am surprised that they are upset that he is 16 1/2 pounds. When my son with cf was 6 months, he was about 16 1/2 pounds, and they were pleased as punch! Breastfeeding will also help with his immune system...something a child with cf really needs! > > My son, Jack, 5 months, and daughter, Sophia, 2.5, both with cf, > had > > their cf clinic visit yesterday. We have been struggling with > > Sophia's weight since birth. She has never liked to eat. Jack on > the > > other hand is eating well and enjoying it. I am breastfeeding and > he > > is starting to take cereal and vegetables. His weight has been good > > up to now. I was surprised at our clinic visit yesterday when the > > doctor and nutritionist told us that Jack weight (16.5 pounds at > five > > months) is not where it should be for length/weight. I estimated > that > > he is taking in 750 calories but I am told he needs 1000 calories a > > day. > > > > My question is after dealing with this two years with my daughter, > I > > am beginning to wonder even if my son was to magically increase his > > calorie intake to 1000 would he even gain the weight like they > > wanted. My husband and I have never been able to gain weight and > were > > both VERY thin as children. Both sides of our family are thin. > > > > Do I stop breastfeeding and attempt to bottle feed with formula? I > > went through all of this with my daughter. I was not able to keep > up > > my supply, etc. with pumping, so supplementing/adding formula to > > breast milk is not an option for me. I really believe that breast > > milk is better and establishing a good food relationship with my > son > > early in life will help him in the years to come. Please let me > know > > if you have had success with getting your child to gain the weight > > like they wanted even though your family is thin. > > Thanks, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 My son's dietician also is not a mom. Her suggestion was to try to feed him a bottle of formula after he is done with breastfeeding. Does this make any sense? He is full from breastfeeding. They wonder why cf children have feeding issues, I think it is because of the force feeding when they are infants/toddlers. I have learned the hard way with my 2 year old. It was also the biggest mistake for me to stop breastfeeding her. Things just went way downhill for her. She ended up being allergic to formula and had to be on a feeding tube until we figured it why she was refusing to eat. I said to myself if I ever had another child with cf, I would not listen to them and continue to breastfeed. So why am I questioning myself now???? Thanks for the encouragement!! Sharon > > My son, Jack, 5 months, and daughter, Sophia, 2.5, both with cf, > had > > their cf clinic visit yesterday. We have been struggling with > > Sophia's weight since birth. She has never liked to eat. Jack on > the > > other hand is eating well and enjoying it. I am breastfeeding and > he > > is starting to take cereal and vegetables. His weight has been good > > up to now. I was surprised at our clinic visit yesterday when the > > doctor and nutritionist told us that Jack weight (16.5 pounds at > five > > months) is not where it should be for length/weight. I estimated > that > > he is taking in 750 calories but I am told he needs 1000 calories a > > day. > > > > My question is after dealing with this two years with my daughter, > I > > am beginning to wonder even if my son was to magically increase his > > calorie intake to 1000 would he even gain the weight like they > > wanted. My husband and I have never been able to gain weight and > were > > both VERY thin as children. Both sides of our family are thin. > > > > Do I stop breastfeeding and attempt to bottle feed with formula? I > > went through all of this with my daughter. I was not able to keep > up > > my supply, etc. with pumping, so supplementing/adding formula to > > breast milk is not an option for me. I really believe that breast > > milk is better and establishing a good food relationship with my > son > > early in life will help him in the years to come. Please let me > know > > if you have had success with getting your child to gain the weight > > like they wanted even though your family is thin. > > Thanks, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 At five months my son is 16 pounds 5 ounces (50%) and 27 inches (90%). They are not pleased with this since the weight/height is 5%. I just spoke to my mother-in-law and my husband at six months old was 15 pounds 1 ounce and 27 3/4 inches. I can only imagine what his weight/height was. At eight months he was only 16.5 pounds. I am just not going to listen to the dietician's request to increase his calories. My son is eats well and looks good. That is what should matter! Sharon > > > My son, Jack, 5 months, and daughter, Sophia, 2.5, both with cf, > > had > > > their cf clinic visit yesterday. We have been struggling with > > > Sophia's weight since birth. She has never liked to eat. Jack on > > the > > > other hand is eating well and enjoying it. I am breastfeeding > and > > he > > > is starting to take cereal and vegetables. His weight has been > good > > > up to now. I was surprised at our clinic visit yesterday when > the > > > doctor and nutritionist told us that Jack weight (16.5 pounds at > > five > > > months) is not where it should be for length/weight. I estimated > > that > > > he is taking in 750 calories but I am told he needs 1000 > calories a > > > day. > > > > > > My question is after dealing with this two years with my > daughter, > > I > > > am beginning to wonder even if my son was to magically increase > his > > > calorie intake to 1000 would he even gain the weight like they > > > wanted. My husband and I have never been able to gain weight and > > were > > > both VERY thin as children. Both sides of our family are thin. > > > > > > Do I stop breastfeeding and attempt to bottle feed with formula? > I > > > went through all of this with my daughter. I was not able to > keep > > up > > > my supply, etc. with pumping, so supplementing/adding formula to > > > breast milk is not an option for me. I really believe that > breast > > > milk is better and establishing a good food relationship with my > > son > > > early in life will help him in the years to come. Please let me > > know > > > if you have had success with getting your child to gain the > weight > > > like they wanted even though your family is thin. > > > Thanks, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 My 5 month old daughter is 15 lbs. I am as surprised as Amy is. Good luck! Christen > > > My son, Jack, 5 months, and daughter, Sophia, 2.5, both with cf, > > had > > > their cf clinic visit yesterday. We have been struggling with > > > Sophia's weight since birth. She has never liked to eat. Jack on > > the > > > other hand is eating well and enjoying it. I am breastfeeding > and > > he > > > is starting to take cereal and vegetables. His weight has been > good > > > up to now. I was surprised at our clinic visit yesterday when > the > > > doctor and nutritionist told us that Jack weight (16.5 pounds at > > five > > > months) is not where it should be for length/weight. I estimated > > that > > > he is taking in 750 calories but I am told he needs 1000 > calories a > > > day. > > > > > > My question is after dealing with this two years with my > daughter, > > I > > > am beginning to wonder even if my son was to magically increase > his > > > calorie intake to 1000 would he even gain the weight like they > > > wanted. My husband and I have never been able to gain weight and > > were > > > both VERY thin as children. Both sides of our family are thin. > > > > > > Do I stop breastfeeding and attempt to bottle feed with formula? > I > > > went through all of this with my daughter. I was not able to > keep > > up > > > my supply, etc. with pumping, so supplementing/adding formula to > > > breast milk is not an option for me. I really believe that > breast > > > milk is better and establishing a good food relationship with my > > son > > > early in life will help him in the years to come. Please let me > > know > > > if you have had success with getting your child to gain the > weight > > > like they wanted even though your family is thin. > > > Thanks, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 You know what's best for your son and I agree, the most important thing is that he looks healthy. I am pro breastfeeding all the way! My daughter is 15 months and still nursing 4-5 times a day. I do have to say, however, we supplement with 1 bottle of formula (8oz) at night. She was having trouble sleeping through the night and it was obvious she was waking to eat. Since my milk supply drops in the evening, she just wasn't getting enough calories to make it through. What worked for us was for me to nurse her at bedtime and put her down then I'd give her a bottle about 2-3 hours later before I went to bed. We found a good organic formula without a lot of junk in it and she likes it. Anyway, it has been a good option for us and has not changed my milk supply or her good eating habits. Good luck! , Mom to Ellie 15mo wCF and Jack 3 1/2yrs noCF Re: weight gain help/question for infant-toddlers My son's dietician also is not a mom. Her suggestion was to try to feed him a bottle of formula after he is done with breastfeeding. Does this make any sense? He is full from breastfeeding. They wonder why cf children have feeding issues, I think it is because of the force feeding when they are infants/toddlers. I have learned the hard way with my 2 year old. It was also the biggest mistake for me to stop breastfeeding her. Things just went way downhill for her. She ended up being allergic to formula and had to be on a feeding tube until we figured it why she was refusing to eat. I said to myself if I ever had another child with cf, I would not listen to them and continue to breastfeed. So why am I questioning myself now???? Thanks for the encouragement!! Sharon > > My son, Jack, 5 months, and daughter, Sophia, 2.5, both with cf, > had > > their cf clinic visit yesterday. We have been struggling with > > Sophia's weight since birth. She has never liked to eat. Jack on > the > > other hand is eating well and enjoying it. I am breastfeeding and > he > > is starting to take cereal and vegetables. His weight has been good > > up to now. I was surprised at our clinic visit yesterday when the > > doctor and nutritionist told us that Jack weight (16.5 pounds at > five > > months) is not where it should be for length/weight. I estimated > that > > he is taking in 750 calories but I am told he needs 1000 calories a > > day. > > > > My question is after dealing with this two years with my daughter, > I > > am beginning to wonder even if my son was to magically increase his > > calorie intake to 1000 would he even gain the weight like they > > wanted. My husband and I have never been able to gain weight and > were > > both VERY thin as children. Both sides of our family are thin. > > > > Do I stop breastfeeding and attempt to bottle feed with formula? I > > went through all of this with my daughter. I was not able to keep > up > > my supply, etc. with pumping, so supplementing/adding formula to > > breast milk is not an option for me. I really believe that breast > > milk is better and establishing a good food relationship with my > son > > early in life will help him in the years to come. Please let me > know > > if you have had success with getting your child to gain the weight > > like they wanted even though your family is thin. > > Thanks, Sharon ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 Sharon, My daughter takes after my skinny hubby rather than me (I am HUGE) The only way we can get her to eat enough is by way of g-tube. She gained well up until about 6 months old or so, when her pancreatic problems showed up, and ever since we have struggled with it too. She eats 3 meals a day, and 3 or 4 snacks, but she still can't gain enough. Do you think that you could give just one extra bottle of formula during the day, when you would not normally breast feed? or maybe add some formula to the cereal? it might help. weight gain help/question for infant-toddlers My son, Jack, 5 months, and daughter, Sophia, 2.5, both with cf, had their cf clinic visit yesterday. We have been struggling with Sophia's weight since birth. She has never liked to eat. Jack on the other hand is eating well and enjoying it. I am breastfeeding and he is starting to take cereal and vegetables. His weight has been good up to now. I was surprised at our clinic visit yesterday when the doctor and nutritionist told us that Jack weight (16.5 pounds at five months) is not where it should be for length/weight. I estimated that he is taking in 750 calories but I am told he needs 1000 calories a day. My question is after dealing with this two years with my daughter, I am beginning to wonder even if my son was to magically increase his calorie intake to 1000 would he even gain the weight like they wanted. My husband and I have never been able to gain weight and were both VERY thin as children. Both sides of our family are thin. Do I stop breastfeeding and attempt to bottle feed with formula? I went through all of this with my daughter. I was not able to keep up my supply, etc. with pumping, so supplementing/adding formula to breast milk is not an option for me. I really believe that breast milk is better and establishing a good food relationship with my son early in life will help him in the years to come. Please let me know if you have had success with getting your child to gain the weight like they wanted even though your family is thin. Thanks, Sharon ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 Hey you know, was 16 lbs at 6 months (before we knew about her CF) and she was at the 50%. no one was complaining then (she is tall too, usually in the 75%) I think it is because they like to see CF kids chubby in case they get sick and lose weight. Re: weight gain help/question for infant-toddlers I agree! I breastfed my son with cf and no one dared complained. I hardly ever post here, but I had to because my daughter, who does not have cf, is 6 months old. At her 6 month appt, she was 15 pounds 7 ounces (50%) and almost 27 inches long (90%). So I am surprised that they are upset that he is 16 1/2 pounds. When my son with cf was 6 months, he was about 16 1/2 pounds, and they were pleased as punch! Breastfeeding will also help with his immune system...something a child with cf really needs! > > My son, Jack, 5 months, and daughter, Sophia, 2.5, both with cf, > had > > their cf clinic visit yesterday. We have been struggling with > > Sophia's weight since birth. She has never liked to eat. Jack on > the > > other hand is eating well and enjoying it. I am breastfeeding and > he > > is starting to take cereal and vegetables. His weight has been good > > up to now. I was surprised at our clinic visit yesterday when the > > doctor and nutritionist told us that Jack weight (16.5 pounds at > five > > months) is not where it should be for length/weight. I estimated > that > > he is taking in 750 calories but I am told he needs 1000 calories a > > day. > > > > My question is after dealing with this two years with my daughter, > I > > am beginning to wonder even if my son was to magically increase his > > calorie intake to 1000 would he even gain the weight like they > > wanted. My husband and I have never been able to gain weight and > were > > both VERY thin as children. Both sides of our family are thin. > > > > Do I stop breastfeeding and attempt to bottle feed with formula? I > > went through all of this with my daughter. I was not able to keep > up > > my supply, etc. with pumping, so supplementing/adding formula to > > breast milk is not an option for me. I really believe that breast > > milk is better and establishing a good food relationship with my > son > > early in life will help him in the years to come. Please let me > know > > if you have had success with getting your child to gain the weight > > like they wanted even though your family is thin. > > Thanks, Sharon ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
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