Re: MTX OR CYTOXAN ( WHICH IS BETTER)

[Guest guest]

Hi ,

Glad to hear you are home.

I too have been on Metho and Cytoxan.

Last visit with my Rheumy he said

the Cytoxan is not working.I have been on the Cytoxan for 14 months.

I have also tried Dapsone, Arava , antibiotic

therapy and Enbrel. Nothing worked for me.

My Rheumy told me a percentage of RP

patients do not go into remission, I am one

of those.

I don't know what we will try next. The Cytoxan is supposed to help the Vasculitis too but it is not helping. I had to go back up

to 20mg of Pred today and my ears and nose are still flaring like crazy.

I know how frustrated you must feel.

I wish I had an answer for you.

Hugs,

Sandy

-- MTX OR CYTOXAN ( WHICH IS BETTER)

okay I have a question. WHat is the difference in MTX or Cytoxan?I was on MTX and it didnt work , now I am on cytoxan and it isnt working. So what else. Enbrel yea rightI have been on cytoxan for over a year and the nausea is real bad right now. I started back on 150mg. a day and I am wondering if my Dr. knows what he is doing. I am still flaring. T and Kathleen, I know what you are going through. I lost all of my hair last year on this same dose and I am scared I will lose all of it again.The nauseau comes and goes with no warning in between. Can wake up feeling okay and then boom out of nowhere it hits.I have to take mine by mouth everyday, so why do some take it just on certain days? It is so confusing to me. WHy cant there just be one pill and everyone take it and poof its gone!!!!!!!!!Now I have bladder problems also from the stupid meds. TOday I have the mouth ulcers and thrushy stuff. And for some reason now,breathing is something I have to think about. I have never in my life thought about taking a breath. Oh here I go complaining ,sorry I was just asking a question.Just wondering if someone has found the right mixture of meds to take so this stupid RP will go away.My RP doesnt even know how to act right. It doesn't understand that the R stands for Relapsing. Not Rampant or rigourous or whatever it just wont go away or asleep or whatever it is suppose to do.I just thought someone lurking in the background might have a hidden secret and would like to share with me. I promise not to tell anyone.haha just a few friends. just wondering in TexasDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU