Re: Week three for our son and not observing too many positives...

[Guest guest]

I am very very new to this group, but one thought I have is that it sounds

like you were only on the intro diet for a couple days and he only

experienced improvements for a couple days. Do you think he maybe needs to

stay on the intro diet a bit longer?

>

> Fast forward to the present: He has fully accepted the diet and the

> foods he can and cannot eat. We're amazed at how smooth the transition went.

> We had a few false starts but then began again with 2 days of the intro

> diet and are now making a variety of foods although I haven't been too

> creative but I'll get there.

>

>

> Here's my question(s): We really feel we observed a less moody, better

> sleeping child in the 48-72 hours on the diet. During those few days, he

> had a fully formed BM everyday and slept quite well. But since then,

> nothing. Zip. Back to 3-4 days of waiting between BMs. Still moody, very

> poor sleep. Not moodier than normal, just himself.

>

>

>

[Guest guest]

Hi Dorothy,

What foods have you been giving him since you started the intro? Maybe

some of the SCD foods that he is eating are too advanced for him at

this stage?

Are you keeping a food journal?

More info would help us figure what is going on.

Mimi

> Hi,

>

> Hoping for some comments and words of advice to a family new to the diet

> We are on week three of the SCD for our 16 year old son with autism. Thank

> you to all who I've communicated with up to now. After Elaine's book, this

> list is wonderful.

>

> In brief: From birth to about 6 years old, our son had continual loose,

> runny, mucousy stools. At that point, without any changes that we remember

> occurred, his stool became much more normal. He rarely experiences loose

> stool.

>

> He, like many children with autism, had recurrent ear infections as a

> baby/young child and I shudder to think how many antibiotic prescriptions we

> filled. At one point, when he was about 3-4 years old, he was on a

> prophylactic antibiotic for over 10 weeks - straight.

>

> He hasn't taken an antibiotic for over 10 years.

>

> Fast forward to present day - while they continue to be normal in form, he

> is more on the constipated side - having a BM every 2-3 days. He's hesitant

> to go for a variety of reasons: I'm sure it's been painful at times and he

> remembers that and also he has difficulty leaving a preferred activity to do

> anything else - showers, dinner, using the toilet. We're in a continual

> state of negotiations with our son. And he's very good at the art of

> negotiations.

>

> His diet has always been varied, eating a good deal of fruits and

> vegetables, both cooked and raw, along with his true favorites: pastas,

> breads and cheeses.

>

> He has always had very disturbed sleep. Going to bed easily (and often

> early) but will almost always awaken during the night. Often several times,

> and sometimes for the entire night.

>

> He is very verbal, can be very engaging and social but also prone to

> extreme moodiness and sometimes aggression. While he is now in the throes of

> puberty, he has always been moody.

>

> He has some self- stimulatory behaviors: likes to pace and talk to

> himself. Flip through books, over and over.

>

> Recently, but prior to beginning (finally) the SCD for him, we (finally)

> caved in and tried a variety of medications to help with issues from sleep

> to behavior. In short, it was a long, unsuccessful ride and the side effects

> didn't justify the small benefits. Most made him very activated.

>

> Fast forward to the present: He has fully accepted the diet and the foods

> he can and cannot eat. We're amazed at how smooth the transition went. We

> had a few false starts but then began again with 2 days of the intro diet

> and are now making a variety of foods although I haven't been too creative

> but I'll get there.

>

> We just began probiotics from Kirkman along with a magnesium supplement. I

> bought DMG and Vitamin C but I'm waiting to begin those as I'd like to

> observe any positive/negative side effects. All SCD legal. We also purchased

> a SCD legal multi-vitamin from Freeda and have been giving that to him,

> daily, as well.

>

> Here's my question(s): We really feel we observed a less moody, better

> sleeping child in the 48-72 hours on the diet. During those few days, he had

> a fully formed BM everyday and slept quite well. But since then, nothing.

> Zip. Back to 3-4 days of waiting between BMs. Still moody, very poor sleep.

> Not moodier than normal, just himself.

>

> He also just came down with a awful cough/cold - green, runny nose that I

> haven't seen in years. I'd like to think that maybe he's experiencing some

> die-off but our daughter also has the same cold, although not as severe.

> (she's not on the diet).

>

> I'm sure taking away all of the sugar, flour and much of the dairy is

> helping him tremendously, as it would anyone, but we're a bit disillusioned

> we haven't seen any true improvement yet. We know it's still quite early but

> a little positive " bump " would go far to keep us on track.

>

> Any thoughts/comments would be appreciated. Thanks so much.

>

>

> __________________________________________________

>

[Guest guest]

Hi Mimi,

Thanks for your interest. I should clarify that we have moved on beyond the

intro for the last 14-16 days.

Here's a brief list of what our son eats, in no particular order, just as I

think of what we make for him throughout the day

Cooked and raw, in all amounts, made a variety of ways, some larger amounts

than others:

apples. pears, broccoli, squash, carrots, cucumbers, avacados, chicken,

burgers, colby cheese, legal juices, eggplant, peppers, pineapples, raisens,

honey, olives, olive oil, melon, zucchini, garlic, tomatoes, lettuce

Very little almond flour, some bacon, some peanut butter won't eat bananas or

eggs.

As far as we can observe, he has had no poor reactions to any of the foods.

Nothing out of the ordinary.

I am not keeping a food journal but I'll start. I have, for a number of years,

been keeping a sleep journal, a supplment journal, a behavior journal. I'm

journaled out!

Thanks

pecan post wrote:

Hi Dorothy,

What foods have you been giving him since you started the intro? Maybe

some of the SCD foods that he is eating are too advanced for him at

this stage?

Are you keeping a food journal?

More info would help us figure what is going on.

Mimi

> Hi,

>

> Hoping for some comments and words of advice to a family new to the diet

> We are on week three of the SCD for our 16 year old son with autism. Thank

> you to all who I've communicated with up to now. After Elaine's book, this

> list is wonderful.

>

> In brief: From birth to about 6 years old, our son had continual loose,

> runny, mucousy stools. At that point, without any changes that we remember

> occurred, his stool became much more normal. He rarely experiences loose

> stool.

>

> He, like many children with autism, had recurrent ear infections as a

> baby/young child and I shudder to think how many antibiotic prescriptions we

> filled. At one point, when he was about 3-4 years old, he was on a

> prophylactic antibiotic for over 10 weeks - straight.

>

> He hasn't taken an antibiotic for over 10 years.

>

> Fast forward to present day - while they continue to be normal in form, he

> is more on the constipated side - having a BM every 2-3 days. He's hesitant

> to go for a variety of reasons: I'm sure it's been painful at times and he

> remembers that and also he has difficulty leaving a preferred activity to do

> anything else - showers, dinner, using the toilet. We're in a continual

> state of negotiations with our son. And he's very good at the art of

> negotiations.

>

> His diet has always been varied, eating a good deal of fruits and

> vegetables, both cooked and raw, along with his true favorites: pastas,

> breads and cheeses.

>

> He has always had very disturbed sleep. Going to bed easily (and often

> early) but will almost always awaken during the night. Often several times,

> and sometimes for the entire night.

>

> He is very verbal, can be very engaging and social but also prone to

> extreme moodiness and sometimes aggression. While he is now in the throes of

> puberty, he has always been moody.

>

> He has some self- stimulatory behaviors: likes to pace and talk to

> himself. Flip through books, over and over.

>

> Recently, but prior to beginning (finally) the SCD for him, we (finally)

> caved in and tried a variety of medications to help with issues from sleep

> to behavior. In short, it was a long, unsuccessful ride and the side effects

> didn't justify the small benefits. Most made him very activated.

>

> Fast forward to the present: He has fully accepted the diet and the foods

> he can and cannot eat. We're amazed at how smooth the transition went. We

> had a few false starts but then began again with 2 days of the intro diet

> and are now making a variety of foods although I haven't been too creative

> but I'll get there.

>

> We just began probiotics from Kirkman along with a magnesium supplement. I

> bought DMG and Vitamin C but I'm waiting to begin those as I'd like to

> observe any positive/negative side effects. All SCD legal. We also purchased

> a SCD legal multi-vitamin from Freeda and have been giving that to him,

> daily, as well.

>

> Here's my question(s): We really feel we observed a less moody, better

> sleeping child in the 48-72 hours on the diet. During those few days, he had

> a fully formed BM everyday and slept quite well. But since then, nothing.

> Zip. Back to 3-4 days of waiting between BMs. Still moody, very poor sleep.

> Not moodier than normal, just himself.

>

> He also just came down with a awful cough/cold - green, runny nose that I

> haven't seen in years. I'd like to think that maybe he's experiencing some

> die-off but our daughter also has the same cold, although not as severe.

> (she's not on the diet).

>

> I'm sure taking away all of the sugar, flour and much of the dairy is

> helping him tremendously, as it would anyone, but we're a bit disillusioned

> we haven't seen any true improvement yet. We know it's still quite early but

> a little positive " bump " would go far to keep us on track.

>

> Any thoughts/comments would be appreciated. Thanks so much.

>

>

> __________________________________________________

>

[Guest guest]

Dorothy,

Three weeks seems a little too soon to be eating many of those foods in raw

form. At pecanbread.com is a stages chart that you may want to check out. It is

under Food Preparation. You may want to go back to having him eat everything

cooked, peeled and deseeded. I am thinking that it is really also too soon for

raisins. Dried fruit can be so hard on the gut. I still don't eat it much.

Charlene

UC 8 years

SCD 6 years

Hi Mimi,

Thanks for your interest. I should clarify that we have moved on beyond the

intro for the last 14-16 days.

Here's a brief list of what our son eats, in no particular order, just as I

think of what we make for him throughout the day

Cooked and raw, in all amounts, made a variety of ways, some larger amounts

than others:

apples. pears, broccoli, squash, carrots, cucumbers, avacados, chicken,

burgers, colby cheese, legal juices, eggplant, peppers, pineapples, raisens,

honey, olives, olive oil, melon, zucchini, garlic, tomatoes, lettuce

Very little almond flour, some bacon, some peanut butter won't eat bananas or

eggs.

As far as we can observe, he has had no poor reactions to any of the foods.

Nothing out of the ordinary.

I am not keeping a food journal but I'll start. I have, for a number of years,

been keeping a sleep journal, a supplment journal, a behavior journal. I'm

journaled out!

Thanks

pecan post wrote:

Hi Dorothy,

What foods have you been giving him since you started the intro? Maybe

some of the SCD foods that he is eating are too advanced for him at

this stage?

Are you keeping a food journal?

More info would help us figure what is going on.

Mimi

Recent Activity

a.. 24New Members

Visit Your Group

Sell Online

Yahoo! makes it

easy to start

selling online.

Y! GeoCities

Be Vocal

Publish your opi-

nions with a blog.

Yahoo! Groups

Start a group

in 3 easy steps.

Connect with others.

.

[Guest guest]

Dorothy,

It may be a bit early to be expecting real positive changes, at just barely two

weeks past the intro diet.

It's also much too soon at this point for raw fruits and veggies, or dried

fruit. Broccoli, and all the cabbage family foods, are also considered more

advanced. Including those foods now could very well get in the way of progress

on SCD, even if many of these things were foods he was used to eating, and was

tolerating, before.

All beginners need to stick with all peeled and cooked fruits and veggies for

some time..... maybe months. Everything needs to be as easy to digest as

possible. It could take quite some time for all gut pathogens to finally give up

and die-off.... some are very resiliant and will be just delighted to survive on

whatever bits of undigested food they can get ahold of. Just keep in mind that

ANY food that can't be properly broken down and digested can potentially feed

the bad critters.

If he's constipated, I would recommend Elaine's constipation protocol from the

website, www.breakingtheviciouscycle.info ... in the " Knowledge Base " under

" C " . Some people report that the Electrolyte Drink also helps alot with

constipation (also in the Knowledge Base, under " E " ). Including a little bit

more of something like a simple muffin made with nut flour might help, as would

a magnesium supplement (citrate and/or oxide forms have a laxative effect).

Have patience..... for him, die-off might not have happened quite yet. Some

people don't have as severe of symptoms as others but, given your description,

I am betting it hasn't really kicked in yet. Go to all very simple, cooked

foods for a while.

Patti

Re: Week three for our son and not observing too many

positives...

Hi Mimi,

Thanks for your interest. I should clarify that we have moved on beyond the

intro for the last 14-16 days.

Here's a brief list of what our son eats, in no particular order, just as I

think of what we make for him throughout the day

Cooked and raw, in all amounts, made a variety of ways, some larger amounts

than others:

apples. pears, broccoli, squash, carrots, cucumbers, avacados, chicken,

burgers, colby cheese, legal juices, eggplant, peppers, pineapples, raisens,

honey, olives, olive oil, melon, zucchini, garlic, tomatoes, lettuce

Very little almond flour, some bacon, some peanut butter won't eat bananas or

eggs.

As far as we can observe, he has had no poor reactions to any of the foods.

Nothing out of the ordinary.

I am not keeping a food journal but I'll start. I have, for a number of years,

been keeping a sleep journal, a supplment journal, a behavior journal. I'm

journaled out!

Thanks

Recent Activity

a.. 24New Members

Visit Your Group

Sell Online

Yahoo! makes it

easy to start

selling online.

Y! GeoCities

Be Vocal

Publish your opi-

nions with a blog.

Yahoo! Groups

Start a group

in 3 easy steps.

Connect with others.

.

[Guest guest]

Hi Dorothy,

I agree with all the wonderful advice that was given to you . I just

want to add one more thing: peanut butter is a legume.

The peanuts and peanut butter should also be delayed until a child is

in the advanced stage. Moreover,peanuts have other disadvantages,

Peanut allergy is more common than tree nut allergy. Peanut may also

provoke gut reactions and cause GI distress.. There are parents who

have reported that their children's brains function better on days

when peanut butter is not consumed. One mother has reported that her

child slept better after peanut butter was removed from the diet.

Mimi

> Dorothy,

>

> Three weeks seems a little too soon to be eating many of those foods in raw

> form. At pecanbread.com is a stages chart that you may want to check out. It

> is under Food Preparation. You may want to go back to having him eat

> everything cooked, peeled and deseeded. I am thinking that it is really also

> too soon for raisins. Dried fruit can be so hard on the gut. I still don't

> eat it much.

>

> Charlene

> UC 8 years

> SCD 6 years

>

>

>

> Hi Mimi,

>

> Thanks for your interest. I should clarify that we have moved on beyond

> the intro for the last 14-16 days.

>

> Here's a brief list of what our son eats, in no particular order, just as

> I think of what we make for him throughout the day

>

> Cooked and raw, in all amounts, made a variety of ways, some larger

> amounts than others:

>

> apples. pears, broccoli, squash, carrots, cucumbers, avacados, chicken,

> burgers, colby cheese, legal juices, eggplant, peppers, pineapples, raisens,

> honey, olives, olive oil, melon, zucchini, garlic, tomatoes, lettuce

>

> Very little almond flour, some bacon, some peanut butter won't eat bananas

> or eggs.

>

> As far as we can observe, he has had no poor reactions to any of the

> foods. Nothing out of the ordinary.

>

> I am not keeping a food journal but I'll start. I have, for a number of

> years, been keeping a sleep journal, a supplment journal, a behavior

> journal. I'm journaled out!

>

> Thanks

>

> pecan post wrote:

> Hi Dorothy,

>

> What foods have you been giving him since you started the intro? Maybe

> some of the SCD foods that he is eating are too advanced for him at

> this stage?

>

> Are you keeping a food journal?

>

> More info would help us figure what is going on.

>

> Mimi

>

>

> Recent Activity

> a.. 24New Members

> Visit Your Group

> Sell Online

> Yahoo! makes it

>

> easy to start

>

> selling online.

>

> Y! GeoCities

> Be Vocal

>

> Publish your opi-

>

> nions with a blog.

>

> Yahoo! Groups

> Start a group

>

> in 3 easy steps.

>

> Connect with others.

> .

>

>

>

[Guest guest]

Hi Dorthy,

I agree with the other posts. He should be eating fruits in veggies in the

pealed, seeded, and cooked form right now. As Mimi mentioned, peanutbutter is a

legume. It should be used much later. My son is the one who had sleep issues

that started about a month into SCD. We couldn't understand why he kept waking

at night. It was similar to your situation. He would fall asleep easily, but

would wake multiple times in the night or cry and scream in his sleep. When

someone suggested I pull the peanutbutter, he started sleeping through the night

again. I'd highly recommend looking at the stages chart on pecanbread.com for

some guidance as to the order to introduce foods again. It's under the food

preparation section in " beyond the intro " . I did also notice some items on the

list that are more difficult to digest...brocolli, melon, lettuces...Remember

also to space out the introduction of new foods. I'd say two new foods per week

is plenty. That is what I was advised by my SCD Solutions counselor when I was

preparing to begin SCD for my son. That gives you several days of allowing the

new food in the diet to watch for any changes...sleep, behavior, bowels,

stimming, ect. Hope this all is helpful

Meleah SCD 05/06

iel 3.5yrs ASD, Ethan 5yrs., Mark 20mths., both NT

Re: Week three for our son and not observing too many

positives...

Hi Mimi,

Thanks for your interest. I should clarify that we have moved on beyond the

intro for the last 14-16 days.

Here's a brief list of what our son eats, in no particular order, just as I

think of what we make for him throughout the day

Cooked and raw, in all amounts, made a variety of ways, some larger amounts

than others:

apples. pears, broccoli, squash, carrots, cucumbers, avacados, chicken,

burgers, colby cheese, legal juices, eggplant, peppers, pineapples, raisens,

honey, olives, olive oil, melon, zucchini, garlic, tomatoes, lettuce

Very little almond flour, some bacon, some peanut butter won't eat bananas or

eggs.

As far as we can observe, he has had no poor reactions to any of the foods.

Nothing out of the ordinary.

I am not keeping a food journal but I'll start. I have, for a number of years,

been keeping a sleep journal, a supplment journal, a behavior journal. I'm

journaled out!

Thanks

pecan post wrote:

Hi Dorothy,

What foods have you been giving him since you started the intro? Maybe

some of the SCD foods that he is eating are too advanced for him at

this stage?

Are you keeping a food journal?

More info would help us figure what is going on.

Mimi

> Hi,

>

> Hoping for some comments and words of advice to a family new to the diet

> We are on week three of the SCD for our 16 year old son with autism. Thank

> you to all who I've communicated with up to now. After Elaine's book, this

> list is wonderful.

>

> In brief: From birth to about 6 years old, our son had continual loose,

> runny, mucousy stools. At that point, without any changes that we remember

> occurred, his stool became much more normal. He rarely experiences loose

> stool.

>

> He, like many children with autism, had recurrent ear infections as a

> baby/young child and I shudder to think how many antibiotic prescriptions we

> filled. At one point, when he was about 3-4 years old, he was on a

> prophylactic antibiotic for over 10 weeks - straight.

>

> He hasn't taken an antibiotic for over 10 years.

>

> Fast forward to present day - while they continue to be normal in form, he

> is more on the constipated side - having a BM every 2-3 days. He's hesitant

> to go for a variety of reasons: I'm sure it's been painful at times and he

> remembers that and also he has difficulty leaving a preferred activity to do

> anything else - showers, dinner, using the toilet. We're in a continual

> state of negotiations with our son. And he's very good at the art of

> negotiations.

>

> His diet has always been varied, eating a good deal of fruits and

> vegetables, both cooked and raw, along with his true favorites: pastas,

> breads and cheeses.

>

> He has always had very disturbed sleep. Going to bed easily (and often

> early) but will almost always awaken during the night. Often several times,

> and sometimes for the entire night.

>

> He is very verbal, can be very engaging and social but also prone to

> extreme moodiness and sometimes aggression. While he is now in the throes of

> puberty, he has always been moody.

>

> He has some self- stimulatory behaviors: likes to pace and talk to

> himself. Flip through books, over and over.

>

> Recently, but prior to beginning (finally) the SCD for him, we (finally)

> caved in and tried a variety of medications to help with issues from sleep

> to behavior. In short, it was a long, unsuccessful ride and the side effects

> didn't justify the small benefits. Most made him very activated.

>

> Fast forward to the present: He has fully accepted the diet and the foods

> he can and cannot eat. We're amazed at how smooth the transition went. We

> had a few false starts but then began again with 2 days of the intro diet

> and are now making a variety of foods although I haven't been too creative

> but I'll get there.

>

> We just began probiotics from Kirkman along with a magnesium supplement. I

> bought DMG and Vitamin C but I'm waiting to begin those as I'd like to

> observe any positive/negative side effects. All SCD legal. We also purchased

> a SCD legal multi-vitamin from Freeda and have been giving that to him,

> daily, as well.

>

> Here's my question(s): We really feel we observed a less moody, better

> sleeping child in the 48-72 hours on the diet. During those few days, he had

> a fully formed BM everyday and slept quite well. But since then, nothing.

> Zip. Back to 3-4 days of waiting between BMs. Still moody, very poor sleep.

> Not moodier than normal, just himself.

>

> He also just came down with a awful cough/cold - green, runny nose that I

> haven't seen in years. I'd like to think that maybe he's experiencing some

> die-off but our daughter also has the same cold, although not as severe.

> (she's not on the diet).

>

> I'm sure taking away all of the sugar, flour and much of the dairy is

> helping him tremendously, as it would anyone, but we're a bit disillusioned

> we haven't seen any true improvement yet. We know it's still quite early but

> a little positive " bump " would go far to keep us on track.

>

> Any thoughts/comments would be appreciated. Thanks so much.

>

>

> __________________________________________________

>