Guest guest Posted January 8, 2005 Report Share Posted January 8, 2005 I have a question, how do yall go about having any type of a normal life as in work or just functioning at all with this disease? My daughter hasn't been able to do anything since June when she first started having her attacks.There just seems to be so many of us and I just wandered how do people adjust. Because it seems like we are having such a hard time of it.We can't seem to even get 2 weeks of feeling like doing anything. Just wandering if there is a trick that we are missing. Or do yall do as the Dr. says " . DEAL with it and go on " If yall do how do you do it.???? I just wander is it bringing her pain tollerance down because she used to have a high pain tollerance but now she says she hurts all the time .And I don't doubt her pain at all but the drs. seem to make me think I'm going craaaazy! And I wander that myself at times.(lol.)Sometimes I get to wishing that they could feel half the pain that she does .(Is that not ugly or what?) But I wouldn't wish that on anybody .Not even my ENEMIES.And I don't like feeling that way. Thats not me. well maybe someone could shed some light on this . Thanks. deedee Quote Link to comment Share on other sites More sharing options...
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