Re: Violation of JACHO's Pain Management Guidelines

[Guest guest]

I agree with you, I hope this happens someday.

[Guest guest]

Dear Karyn,

I like your idea of encouraging people to take action and I was

wondering if you would like us to add a page to the NDDB

website that lists your links and maybe adds a message about

why it is important for patients to take action whenever an

experience violates some accrediting agency policy or other

governing agencies criteria (HIPPA comes to mind too). A

heartfelt, patient wide plea and explanation of why unhappy

people should use the complaint process may be helpful to

getting a higher rate of initiate of the process. If you are

interested in writing this, or providing information for me to write

an appropriate plea, I think this will enhance the whole objective

of the National Doctor DataBase.

If you are interested in letting us add an advocacy page or a

patient action page, please let me know and my friend would be

very happy to do this for the website.

Laurie

[Guest guest]

My question is: Why is it like this? Why do so many doctors treat

pancreatitis cases like we are all a bunch of liars That we are faking somehow,

they don't believe you. (A) Is it that the Mds are not taught about how severe

pancreatitis is and how many organ systems become involved? Some seem simply

clueless. ( Is it because of the pressures they get from the drug

administration that they are leary of this disease because it involves alot of

pain medication to eat and live? © Is it their fear that we will become

dependant on the pain meds and they don't want that for you.? So they provide

you with pain meds that don't provided adequate pain relief so they can keep the

doses down. They make you beg, like a drug seaker, to get stronger medication so

we can eat, drink and live.

How do we fix this mess? We all keep saying there has got to be a reason

we all have this horrible disease and maybe this is it. We need to do just what

Karyn said, report the horrible treatment. Also the medical schools need to

educate the new Mds on this disease, the pain and long term pain management

that comes with it. The hospitals need to call meetings of their staff and teach

the existing Mds about this disease the way they need to know. And maybe the

members of PAI can get the word out somehow. Just a thought.........

Love

w

[Guest guest]

Hi and all,

JUST few thoughts on this topic in the hope that fellow patients strive to

seek a good permanent relationship with a good Gastro. That might solve some

folks problems or at least help a little.

And I have no statistics to support these ideas but maybe others can easily

supply their own or own thoughts.

First pancreatitis is a relatively rare disease, while MD's get some training

it cannot be high on the list of class hours. MD's likely spend more time in

" How to identify chicken pox " than pancreatitis.

Second, there are a lot more drug addicts and thus drug seekers than there

are pancreatitis patients. Therefore the government and profession pressure is

directed to addicts a lot more than pancreatitis, A MD who spends three years

as a resident and then in practice likely sees a lot more drug abuse than drug

use. And, a good GI being a specialist might be much more likely to provide a

good right dose script that works rather than fighting the patient about

drugs.

Third, if a patient that ends up in an ER can have the treating MD call your

GI they might be much more likely to provide the better meds. The problem

there is how to get your GI to answer the phone at 3am.

I don't have any real answers to our problems, however I do think that taking

the time and effort to get to a good relationship with a good GI is worth it.

Best wishes to all, try to stay dry this weekend, hope you all have a good

stash if the weather causes delays in your plans, Poncho - GA

[Guest guest]

Hello Karyn

Thankyou for your response however I need to ask you something. Who do i make

the complaint to and how. I have made a formal complaint with my medical

insurance as far. But i dont know where to go from here or what to do. They sent

me a letter saying that they are going to investigate but thats it for that. If

you have something else that I can do please tell me so i can do it. I know

you mentioned 1 out of 10 people complain well i am that 1 person and im

willing i just dont know what and where to do it.I mean i know i was wrong for

getting upset and maybe mouthing off to them by mentioning what am i supposed to

do

suffer? and say that its not right and so on and then hanging up on them was

not only wrong but it was rude and i know that but i was so so so upset.

PLease if you can help me out anymore please do so i am willing to go to the top

im tirred of this whole thing. thank you

Gio