getting it out of my system to those that understand

[Guest guest]

Hi All,

I am posting what has been happening to me over the last 2 months with

the hopes that others that are battling the same will know that they

are not alone and because it helps me to get a good cry out of my

system to people who understand.

First, I have CP and SOD. I have had this diagnosis since early 2003.

Mid October of last year, I was unable to tolerate any food or drink.

Went into the hospital beginning of November for PICC line placement

for TPN. A week later that PICC line had to be replaced because they

nicked a lymph node during placement and the insertion site kept draining.

I had been on TPN for 4 weeks and tried eating, but still couldn't

tolerate food. Last Sunday, January 2nd, wasn't a good day and went

to bed early. I woke up soon after with shaking chills and a fever of

about 102. I went to the hospital. Apparently, my system decided CP

wasn't exciting enough, it decided to go septic. I had a gram

negative septic infection. I was told that it was not from the care

of the line, but that it was a bacteria that lives in the digestive

tract and can become active from not eating. Well, just got out of

the hospital today. My new bedfellow (I am on TPN from 6:00 pm - 6:00

am) is now a Hickman catheter. I have another new constant companion

and that is another bag for continuous antibiotic so that I now carry

two bags around--TPN and the antibiotic.

At times I have trouble finding a safe place within my Christian faith

to hide out for awhile. Sometimes it gets very hard and I think as

hard as I am trying, that this disease is slowly destroying the person

that I am.

I appreciate that this group is here and that I have a safe place to

say these things,

God bless us all,

Pat

[Guest guest]

Oswalt,

I'm very glad to hear your spirit... and i believe as long as you have faith or

hope and courage in you.. nothing would just let you down..

Keep it up buddy.. and this is the significant component for overcoming

anything..

Rupesh Parajuli

Nepal Chapter

Pancreatitis Association International (PAI)

rupesh_parajuli@...

www.pancassociation.org/nepal

Post Box No: 13946, Kathmandu, Nepal

Tel: 977-1-4479627, Fax: 977-1-4476878/4460560

Mobile: 977-9851078750

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