Guest guest Posted January 24, 2004 Report Share Posted January 24, 2004 I received this messages from Binegar, an adult with CF who is very active in promoting CF Awareness and support. I thought that many here would find this information valuable. Please do not reply to this email message with questions about the message board, I'm just passing on the information, runs the CF Hospital support message board. ~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Hello to All, This is Binegar. I have set up a special private forum board for Hospital notices and support. It has been up and running for a while now but I haven't promoted it very much. So with that said.... I hope you will visit and take advantage of this valuable tool. For those of us who are fighting Cystic Fibrosis and have to go into the hospital or toughing it out at home, it is good to know that we are not alone and there are others who are in our corner pulling for us. I have created a special *private* message board for those people who are in the hospital and in need of our support. You can send them well wishes, email, cards, or care packages if they have provided email or a mailing address. If you have someone to add to this list or you want to post your own hospital information, please click on the forum link to enter. This page is private and so is the forum. It is only available to the Cystic Fibrosis support groups like " Cystic-l " " CFParents " " CF 4 Christians " and any other CF support group. The link to this page will be regularly provided to these lists but this page is not listed in the menu of my website or published to the main index of my website. You can look at the rest of my website from here but to get back to this page you will have to use your browser back button since this page will not be found on the menu. This is for your privacy. If you have never posted to this message board before, that's ok, you will be asked to give your name, email, and anything else you wish to add. There is no joining to be part of this message board, just click on the " post new " tab, type your message, click post message and it's there. Remember to save the link to this page so you can find the message board in the future. You will need to enter the forum using a password. I just added this option for additional security. The password is " tune up " . use all lower case and the space between the words. Also for promoting Cystic Fibrosis Awareness, I have designed my own special line of CF ecards. I have a CF awareness message at the bottom of every card. You can view my custom ecard service and send any card in my selection for free, anytime. Here is the message board link http://info.ajcf.com/askjames/id27.html Or go directly to the forum here: http://pub6.bravenet.com/forum/show.php?usernum=461224643 You will be asked to enter the password: tune up Take care & enjoy! I hope to see you all check in there once in a while so we can send each other support. I hope you will excuse the " Bravenet " banners .... this is a free service so the ads will have to stay for now. Please let me know if you have any problems posting or suggestions for this tool. ~ 33 w/cf, cfrd, cepacia, mrsa ===== Ask about Cystic Fibrosis - http://ajcf.com Cystic Fibrosis WebRing - http://webring.ajcf.com CF 4 Christians Support Group http://groups.yahoo.com/group/CF_4_Christians Cystic Fibrosis E-card - http://ecards.ajcf.com Graphics By - http://graphics.ajcf.com Quote Link to comment Share on other sites More sharing options...
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