Some questions for Kimber

[Guest guest]

Thank you so much for replying it was awfully nice of you to do

so.After reading your post about enzymes what I was wondering was

what strenght you use. I know that every body is different. I have

had a brilliant 3 weeks and then Sunday it all went wrong. For the 3

week period I decided to up my Creon to 5 a meal(10000), cut out meat

although I didnt each a lot, and things were brilliant. I had no

pain, I could half run to a fashion up the stairs and I managed to

walk the furtherst I had in ages.

On Sunday I spudidly almost ran out of Creon, so I had to manage with

the few I had, and another stupid thing I did was to eat not a lot

just a little chicken, Oh Boy did I pay for it. I was in bed for 36

hours. I know that it not so long and I am lucky that the flares are

short lived.

At my last London appointment I was told that I could go onto opiots

(sp), I didnt want to do that as I am such a scardy cat of everything

including raising my drugs.I know that I am lucky with c.p. I dont

feel the pain as I should(for which I am grateful), I am just one of

those people who have a high pain barrier, what worrries me is as I

am not feeling the whole extent of the pain, I really am stumped.

I know that you cant sasy what to do. It is just so nice being able

to put my fears down on paper.

As many have said family love us, but I think that sometimes it is

hard for them to understand this awful disease. Many thanks for

listening Lesley

[Guest guest]

Lesley,

no problem. I try to help whenever I can. As for what strength of

enzymes do I take:

Viokase 8 - 8 tablets with meals/ 4 with snacks

1 Tablet is:

8000 Lipase

30000 Protease

30000 Amylase

I understand how it can be when you unexpectedly run out of enzymes and

don't have enough before you can get the next prescription. I have on

occassion done that and it's not a good experience.

As for the opiods, i didn't want to go on them either, but I didn't

really have much choice. For a while just taking the eznymes was enouch

(3 years), but then after another pancreatic attack, the pain didn't go

away and I just couldn't deal with it. At first they put me on vicodin,

but the tylenol in it was affecting my blood thinners and it was also

giving me horrific nightmares that I just could not deal with.

I couldn't take any anti-inflammatories because of the blood thinners

too. So, I had to go on the opiods. I don't know what I would do without

them now. My pain levels have risen over the past four years and I have

low pain threshold, so I'm a wimp when it comes to pain.

And yes, it is hard for our family members to understand what we are

going through. They love us, but if you don't have this disease you

don't really understand how it affects all of our life. I'm glad we can

be here for you and for you to know that you are no longer alone in

dealing with this disease.

Kimber

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Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.