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Re: Hi Eveyone, Its been a while/about JOEL

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Gosh, this does sound to have been a very difficult time; let us hope

that the MTC oil does it for him! Love to you and to yours, n

Rojas, with highest hopes. . .

Hi Eveyone, Its been a while

I hope you all had a wonderful Christmas and wish everyone the best

Health for the New Year.

has been in and out of Hopital all Christmas and the New Yea.

Turns out he was getting constipated often. Still trying to get my

head around that, cos he never stopped Poopin! Well once or twice a

day.

His XRay showed he was blocked all the way up to his duodenum.

After 8 suppositories it all came away and boy did it stink! Since

his discharge he has been so much better in himself, he was always a

happy kid and full of beans, but when he was sick he slowed down and

was very cuddly, which was hard, I'm getting fatter everyday and its

been 30-40o celcius for weeks on end.

His appetite had improved out of sight and he is aying alot more

words. He will be two on Feb 3, I cant believe it. I was hoping to

get him to 10kg for his birhtday, but he dropped 800g in hospital so

I'm that much further behind now.

My Paed was on holidays and I saw th only other in town who is

Chinese/Portugese, very interesting Man I live seeing him. he has

put on Medium Chain Triglyceride Oil, 10ml 4 X day top start

adn now 25ml 4 X a day. because the oil is an MCT it is easier

absorbed and he doesnt need to take pancrease with it. I am over

the 'great, thanks, where was this stuff 12-18 months ago when I

really needed it' I am so happy he is putting on 120g a week at the

moment. He does look skinny though. I wont let him run round inthe

nud when people are here. All his little friends who are up to 9

months younger than him are taller and obviously way fatter than him

now. Its embarrassing! One good thing that has come out of this,

is Craig got a rocket up his bum and I believe now he really knows

what has and from having time off work he has seen everything I

do. He tried to help so much the first few days, by just doing

everything but he was getting my times mucked up so I said just

follow the day before in the diary, but offer him different things

to eat. We are doing something to him every hour ont he hour at the

moment. Keeping a diary sure helps but he best way to keep track is

for me to set reminders on my mobile phone, just in case time slips

me by. That way I dont run behind with his meds and dont forget.

We opted out of CVS and amnio and will find out when this baby is

born due June 18! Dr says he will almost definately come 4 or more

weeks early because was 10 weeks prem. So I'm in the middle of

setting up his room, off to buy a chest of drawers today! I have

the basssinette out and covered. all the linen in vaccuum bags unde

the bed. And I've sewn a new doona voer and valance and made new

pelmets in the 'Nursery " Craigs sister in law is giving me a nappy

change table whichIve never had. The only other thing I yearn for

is a rocker/recliner chair. I've never not had one. Imagine

sittng back breastfeeding int hat. Bliss

Thankyou all for your support in the past and look forward to

hearing from you all soon. Thanks for the photo of Gavin, Pam! I

nearly fainted when I saw how many people you have emailed to! I

think I have 15 people in mine?!!

Bye from Lee, Mum to 23 months and 1 week!

Bunbury, Australia

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

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