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Lesley

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Hi Lesley,

How are you? Better, I hope.

I know you asked Kimber about enzyme strength but I thought I might

just say a word.

My pancreatologist prescribed 2 - 4 Creon 40,000 with each meal.

These are obviously stronger than yours so my overall dose is much

higher as well. I take 1 - 2 Creon 10,000 with a small snack. I

think a number of specialists subscribe to the view that high doses

are needed.

I think, like you, that I have a high pain tolerance when it comes

to CP. This is probably because I have suffered severe abdominal

pain since childhood. Oddly, I don't think my pain tolerance is

especially high in other respects.

Why do you worry about not feeling more pain? I think the pain thing

is very individual. Every case is different and people respond

differently anyway. Are you worried that something is going on that

you don't realise because you don't feel the pain enough? I have

read more than once that the level of pain is not necessarily an

indicator of the extent or severity of actual damage to the

pancreas. I can attest to that. I had severe pain attacks as a child

and horrendous flare-ups in the 1980's when I was approaching 40.

Still, an ERCP in 1988 showed no damage!!! I now have extensive

calcifications and atrophy of the pancreas but, just at the moment,

my symptoms are not as bad as they were before the damage had

actually occurred.

I would try not to worry about the pain being bearable; just be glad

but discuss your fears with the specialist.

Take care and I hope you feel better,

Fliss (UK)

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