Calling all Syracuse residents!!

[Guest guest]

The local CFF chapter is looking for a family, or families, to

represent CF in the Syracuse area. In an effort to raise awareness in

the Syracuse area they have contacted local radio and television

stations to possibly run ads or stories pertaining to CF, especially

with the upcoming Great Strides Walk. Unfortunately the broadcasters

will not cooperate unless there is a local need represented by a

person or persons with the disease. As of yet no one has come forward

to help. So, if any of you out there live in this area and are

interested in helping by giving your story to the media please let me

know. I will put you in touch with the person in charge of this.

Hope all is well or at least getting better!!

Michele B

mom to Matt 19 mos. w/CF and Mikailah 6 yrs no CF

[Guest guest]

I have a friend in Syracuse - I think. I will forward your email and ask

her.

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

[Guest guest]

Thank you Rosemary. I appreciate it!

Take care-

Michele B