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Re: Sherrie/RP/Welcome!!!

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Hi Sherrie,

WELCOME TO THE GROUP!!!!

I don't know what I would have done if I had not found this great

group of people. They are full of knowledge about RP but more than

that they are full of love and support. No matter what is going on

in your life they are there for you. SO jump right in and feel right

at home. I have been here a year but feel like I am new because I

still don't have any answer that seem to help.

My name is and I am 48 and live in Texas. I was diagnosed in

2001. I have ear, nose and throat pain. My throat has hurt for over

a year. Sometimes I feel like if I push on my neck it is going to

crack it in half.haha I am on cytoxan right now. I have been in a

constant flare since last year but I have faith that one day soon I

will find the right meds and go into remission. Most of the group

has flares that come and go . Just hang in there and you will find

the right Dr.s and meds soon. Just ask all the questions you want,

they have put up with me for over a year asking the dumbest ones and

they havent ran me off yet.HAHA opps better not talk to soon,haha

Sending hugs, and prayers from in Texas

AND AT THE BASE OF MY THORAT BY MY RIB CAGE IT HURT TO TOUCH. THAN

BY AFERNOON IT GETS BETTER?????

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