Re: info.needed on supplement KIM

February 28, 2004

No I haven't heard this, but I'm interested in knowing

about it.

Dawn mom of 4, 8 and under, the youngest wcf

=====

February 28, 2004

Sorry , I didn't realize you ment this for Kim

and not just those who have connections with G551D,

until I'd sent my post.

Dawn mom of 4, 8 and under, the youngest wcf

=====

February 28, 2004

,

Genistein is an isoflavone (found in soy) that is being studied for

it's ability to induce chloride secretion in people with the G551D

mutation.

Genistein doesn't work for people who are homozygous for the F508

mutation, but ongoing studies are looking at its effect on R347P and

R117H mutations.

For people who have the Delta F508 mutation, researchers are studying

the flavonoid quercitin, which is found abundantly in plants

(vegetables, fruits, herbs). This is why the Crataegus yahoo group

began.

Crataegus (also known as hawthorn) is abundant in quercitin. Some

people using it after Gould contacted Blank, a German

mother, who researched it based on the ongoing work of researchers

Beatte Illek and Pamela Zeitlin. was able to turn around the

health of her daughter's CF by using crataegus. One of the first and

immediate benefits you see is normalization of bowel movements, which

helps the body come into homeostasis.

Dawn, if you want to know more about genistein, search the Crataegus

archives. I know Roe was using it for her son instead of crataegus

since he carries that mutation.

Kim

> I have read that Genestein (sp?) helps with the G551d gene,. Has

anyone

> ever used it? Is it in medicine or tablet. Does anyone know what

it

> does and how you buy it i.e. pharmacy etc.

>

> Thanks

>

> (Australia)

February 28, 2004

Patti has both Delta F508 and G551D. So would she need to take the cretaegus

and the genistein together. It would be interesting to see if it would work or

if they would cancel each other out.

Dawn

Re: info.needed on supplement KIM

,

Genistein is an isoflavone (found in soy) that is being studied for

it's ability to induce chloride secretion in people with the G551D

mutation.

Genistein doesn't work for people who are homozygous for the F508

mutation, but ongoing studies are looking at its effect on R347P and

R117H mutations.

For people who have the Delta F508 mutation, researchers are studying

the flavonoid quercitin, which is found abundantly in plants

(vegetables, fruits, herbs). This is why the Crataegus yahoo group

began.

Crataegus (also known as hawthorn) is abundant in quercitin. Some

people using it after Gould contacted Blank, a German

mother, who researched it based on the ongoing work of researchers

Beatte Illek and Pamela Zeitlin. was able to turn around the

health of her daughter's CF by using crataegus. One of the first and

immediate benefits you see is normalization of bowel movements, which

helps the body come into homeostasis.

Dawn, if you want to know more about genistein, search the Crataegus

archives. I know Roe was using it for her son instead of crataegus

since he carries that mutation.

Kim

> I have read that Genestein (sp?) helps with the G551d gene,. Has

anyone

> ever used it? Is it in medicine or tablet. Does anyone know what

it

> does and how you buy it i.e. pharmacy etc.

>

> Thanks

>

> (Australia)

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

February 28, 2004

Dawn,

I'm trying to remember because I know this has previoulsy been

discussed on the Crataegus list. But I think what I'm remembering is

that you don't take crataegus along with silymarin (another herb)

because they cancel each other out. Silymarin is beneficial for liver

issues, and I think it has genistein in it. Crataegus doesn't have

genistein but is a rich source of quercitin and other flavonoids.

The one to ask is Roe; she has lots of genistein research. I know she

lurks on CF Parents time to time, but you're more apt to get her

attention on Crataegus or Sharktank.

Kim

> > I have read that Genestein (sp?) helps with the G551d gene,.

Has

> anyone

> > ever used it? Is it in medicine or tablet. Does anyone know

what

> it

> > does and how you buy it i.e. pharmacy etc.

> >

> > Thanks

> >

> > (Australia)

February 28, 2004

Kim,

Sorry to jump in here, Eilish also takes a liver tablet as her bile was

not emptying quick enough. So is Silymarin helpful for that? If so is

that obtained through a health food shop?