CF FAMILY ISSUES ---READ AND ASSIST Kingston Ontario CANADA other CANADIANS

January 21, 2004

Hi everyone

Let me introduce myself. I am Ted a single father taking care of my son with

CF he is 5.

He is great and I love him dearly. We have worked out well together managing

his health and getting along through life.

Recently there have been some significant changes with about everything.

I kept him out of Junior Kindergarden to minimize illness and keep him pretty

healthy. I use to work in the country so this pretty much kept us both away

from the bugs---- viruses

Anyhow Senior Kindergarden I am obligated to put him in. He likes it and has

been coping well.

We just relocated to the Kingston area with a different financial situation

Since I did everything myself before and paid for every thing I needed before I

was in for a shock when I thought I would be able to get help when I needed it.

Figure this my son and I were technically homeless on November 10, 2003

I figured out a plan for the moment but financially heading in the wrong

direction.

So I apply for E.I and well they turn me down

I had to appeal it and well I got it now but it really is not much

Anyhow the rules on EI. I gotta be able to work or be looking for work which

means my son must be with a baby sitter or daycare. Not much money here

An idea subsidized daycare ya applied for that as well.

When I applied for it I was on Ontario works in between appealing EI.

Anyway go figure that the Children's services knows I am taking care of a child

with CF. Children's services subsidizes the daycare eh. You know the darn

forms

I want EI so I do my best to ensure that he goes to daycare.

ANyway he gets sick like most CF children. Its just a bad time of the year. So

he has to miss a day here or there when it comes to daycare or school.

He had chicken pox just recently and this complicated his life a bit but

generally he did good but of course this kept him home for about a week dealing

with the itching and inflammation in the lungs. Anyway Children's services

knows my rent is like 600 dollars and the total available income for the month

is like 1000 and well he missed daycare for good reasons. They sent me a bill

for 90.90 for 3 days that he missed. Okay now this really is helping me and

him out. Thankyou very much. EI has been approved so I am waiting for

some logistical cooparation between children's services and before I know it.

It Has not happenned yet but I bet for every day that I am stuck at home with

him that EI will not pay benefits for them days. This will really help eh.

Anyway I got thinking if my son has more difficulties and picks up more bugs

then heck this is going to be crazy. I would do home schooling but after EI

runs out then there is Ontario works. Gotta look for work and he must go to

school. no home schooling allowed there for him. So hence he will get ill

and I will be financially done. Then I will live where----- as I am sure

eventually the money will run out. The mother is a dead beat so forget about

any support that way.

Hey I am doing the right things for him and he loves me dearly as I love him and

we have great adventures. Ya ya we do a lot of medicine and goofing off as

well but hey we try to fight the bugs the best we can and get him to school and

daycare. I have cooperated with about all the services. CAS, EI, Ontario

works, children's services heck even the courts. had to represent myself in

that one and still am. No worries though. I am not in trouble his mom is and

well rightfully so.

So help me out. I am not interested in money. I am interested in what

other people are doing. Are you having a tough time in Ontario Canada as

well. I think considering my economic status at the moment that all services

should be helping here to ensure my son does well and help me figure out how I

can have a flexible job that enables me to support him and care for him and deal

with illness when he gets all cranky and sticky and well you know how it goes.

Get the Bucket, thermometer etc.

I did not create this situation. Ya a little fun one night I am sure ya I

played a bit of a part.

Yes he was born and well months later he almost died and was on a machine to

survive.

Okay I got that part it was emotionally hard

Oh really a solution that could help. Oh CF really. Oh it can be

managed--great

What do I need to know. Ummmm I can do that. Okay great.

There was 2 of us then well ummm I guess I will go to work and help out.

Ummmm his mom was never interested in working okay then help him out.

Seemed to work

Now it's just me. I am stumped. Okay I will do everything.

Gosh do ya gotta be sick today. I really wanted to go to work you know. Oh

well its manageable right.

Well enough is enough. I have had my son in my care for the last 2 years. The

introduction of SK has complicated life a bit. Daycare I am forced and well it

is complicating life even more.

In time I will be done. This is wrong.

I did not create the situation. A natural event was prevented by ummmm a third

party.

Ya where are they. oh ya I visit them every 3 months or so. Pat me on the head

what a great job I am doing. ummmm

Well I guess they gotta follow rules set by the Canadian government. Just doing

their job really

So what the heck is the government investing all this money into my son just to

let him in the end live in poverty. This a bit odd. Is there money to be

made by having people live in poverty or something I have not figured this out

yet.

I think someone has an obligation here and is not living up to it.

Ummm thinking--- okay this might require the courts to fix. Okay I am smart in

that respect. ummm who are the parties

well the child with CF is one

the parent ummm number two

the medical institution ummm number three

The canadian population represented by the canadian government. Oh I think I

found them ummm number 4

Okay I figure this to be like this

Okay-----ummmm Canadian government makes a rule that the medical institution

must use technology to prevent a natural event. Okay must be a reason ----oh ya

life is valuable.. I agree ya the people of canada are like that. We value

life.

Okay ----ummmm they use this technology on the child to safe him and create a

situation where he will need it for ever and well its not perfect or the sure

solution because he still gets ill and heck the parents will be busy managing

the illness and meds and well okay it seems like we are doing the right thing.

okay okay I think I got it.

If that action was never taken I would of been sad for some time but I would not

be living in poverty.

I would not have to sometimes sit back and let a tear go down my face as I feel

for him.

My arms would not be so sore at times.

I would of moved on in life.

But the canadian government did take an action for the right reasons.

Now my arms will be sore

A tear will fall as I feel for him.

I will live in poverty.

maybe even live on the street

we will not have much

But we will fight the bugs and live like a bug on very little.

Is this what they want. Was this there great intention.

as my standard of living decreases this only makes him more ill.

As I am forced to follow these rules for money it will only make him ill.

Surely it is much more cost effective to ensure the family has a basic standard

of living and is able to invest the time into the child to ensure he succeeds.

Not that we would or really could. But do I gotta start thinking about robbing

banks or something.

My son with CF and his dad. we could be a great team. Hey I thought of it.

Give him some time in poverty maybe he will think of it too.

I just gotta know what else is going on here. What am I missing because this

seems all wrong.

I am serious here and ya I know I presented this in a crazy way but trust me I

do good legal work when I have too.

Do I need to bring this third party to a table to do the right thing for my son?

If so I will.

He is 5 now and I am not letting him go anywhere. They saved him. They did

it. Emotional attachment. chapter eight in the introduction book for CF--The

future I expect him around. I will sue for misleading me if they think

withdrawing medicines is the answer.

Okay third party now that you created a situation that I had no control in.

What ya going to do to ensure my son succeeds and can have a normal life. I

know ----I know---

have a nurse baby sit him and I can work. Ummm I guess I would have to make

more than her to make this idea a good one as it would be cheaper to pay me

less. ummmm Well I guess I got a basic income then. Sure we could work

something out. A nurses wages for 5 days 8 hours a day. A job that pays me

more so there is a positive contribution to the economy might be better to get

the taxes. .

Hey wait a minute. Okay okay

ummm 8 hours.

Well when he gets ill. meds twice a day is norm. 4 times when things get

ummm worried. 6 times a day when we are deep in the pits fighting the bugs.

We usually come out winning with this one. but heck I could go for that. A

nurse then 5 days a week no bills for that.

Ya I think that is a good way to create some jobs for the nurses. good jobs

I can work and be happy

My son would be happy

This third party ummmm ya you the population of canada. We need to sit down

at the table as I have some issues and you have some obligations here.

I never agreed to live in poverty with a child with CF

I did agree to help my son with CF on the basis that I would be helped if need

be.

Ummm where is that help. typical

TELL ME WHAT YOU THINK FOLKS I NEED COMPLAINTS---CANADA ONLY----

YOU KNOW SOLUTIONS OR SOMETHING I HAVE MISSED THEN MAYBE I WON " T NEED TO GO TO

THE COURTS

I AM PUZZLED HERE SO STOP ME NOW OR HELP ME DO WHAT IS RIGHT FOR MY SON AND

EVERY CHILD WITH NEEDS OUT THERE IN CANADA>

Let me remind you folks. We live in the second largest country in the world

with a significant amount of resources for a relatively small population. who

is making the money--- go figure--- People on the streets ummmm how can that

be---- Children living in poverty--- we should be ashamed of that one.

We make the rules. we decide, we can have anything we want. We can build

anything, do anything. We really can. we can make this work for every one

including a 5 year old child forced into daycare so his dad can get EI. He

gets sick and well dad gets a bill. funny eh. I guess I get billed for when

he is sick. really now this is too much. I would scrap EI but i spent many

years putting that money there. Trust me Ontario works is really a sad shape.

Ted a father --- The good guy--- The fighter--- learning how to squeak real loud

Seems like the squeaky wheel gets the oil.

Ummm Promo idea. I got the perfect one. Gotta talk with my son see what he

thinks.

Get this a perfect picture for the media. A dad and son on the street cuddled

down on a cold day.

An extension cord coming out of a business or from the side of a building.

Child doing the nebulizer then therapy right there. Canadian Government think

that is acceptable ummm I wonder right in your face. Think big, think media,

Trust me I usually do a good job at diplomatic fights. I love the smell of a

court room. Argue with tenderness And drive my point home like a sword.

Now lets hope that I have really missed something here cause I really do not

want to practice my professional speaking to get this fight going unless I have

too. I all ready practice enough for current legal issues that have little to

do with me. Reminds me oh ya I gotta go to court today. Unmmm anything

important not really. Just burning my time there. Hey that is another

thing. If I was the bad guy and she the angel here I bet I would of got nailed

with all the legal fees of these proceeding with CAS. Ummm a bet it don't work

the other way around.

Oh ya do not worry I am a protective parent and CAS knows it and leaves me

alone. They tangled with me in the past when the mother was very ummmm what ya

say. IN need of some special help. I am protecting him but heck its not my

fault things are like this. I am keeping up my end of the deal and no one can

take him away because I am doing nothing wrong. So get back to me personally

or through this list

Ted

jthere@...

Funny thing I thought----- I was abused as a child by a stepmother

My son was abused by his actual mother

MY dad was a pacifist---don't rock the boat

I am not like him

I protected my son

I will rock the boat

January 22, 2004

TED,

I am not from Canada , so I guess I shouldn't be posting to yours right

now,---- BUT I did want to say I am proud of you for " fighting " for your

sons needs & caring for him with so much love. I do hold you in my special

thoughts & wish you all the best for each of you

LOVE & HUGS, GrandmomBEV

CF FAMILY ISSUES ---READ AND ASSIST Kingston

Ontario CANADA other CANADIANS

Hi everyone

Let me introduce myself. I am Ted a single father taking care of my son

with CF he is 5.

He is great and I love him dearly. We have worked out well together

managing his health and getting along through life.

Recently there have been some significant changes with about everything.

I kept him out of Junior Kindergarden to minimize illness and keep him

pretty healthy. I use to work in the country so this pretty much kept us

both away from the bugs---- viruses

Anyhow Senior Kindergarden I am obligated to put him in. He likes it and

has been coping well.

We just relocated to the Kingston area with a different financial situation

Since I did everything myself before and paid for every thing I needed

before I was in for a shock when I thought I would be able to get help when

I needed it.

Figure this my son and I were technically homeless on November 10, 2003

I figured out a plan for the moment but financially heading in the wrong

direction.

So I apply for E.I and well they turn me down

I had to appeal it and well I got it now but it really is not much

Anyhow the rules on EI. I gotta be able to work or be looking for work

which means my son must be with a baby sitter or daycare. Not much money

here

An idea subsidized daycare ya applied for that as well.

When I applied for it I was on Ontario works in between appealing EI.

Anyway go figure that the Children's services knows I am taking care of a

child with CF. Children's services subsidizes the daycare eh. You know the

darn forms

I want EI so I do my best to ensure that he goes to daycare.

ANyway he gets sick like most CF children. Its just a bad time of the year.

So he has to miss a day here or there when it comes to daycare or school.

He had chicken pox just recently and this complicated his life a bit but

generally he did good but of course this kept him home for about a week

dealing with the itching and inflammation in the lungs. Anyway Children's

services knows my rent is like 600 dollars and the total available income

for the month is like 1000 and well he missed daycare for good reasons.

They sent me a bill for 90.90 for 3 days that he missed. Okay now this

really is helping me and him out. Thankyou very much. EI has been

approved so I am waiting for some logistical cooparation between children's

services and before I know it. It Has not happenned yet but I bet for

every day that I am stuck at home with him that EI will not pay benefits for

them days. This will really help eh.

Anyway I got thinking if my son has more difficulties and picks up more

bugs then heck this is going to be crazy. I would do home schooling but

after EI runs out then there is Ontario works. Gotta look for work and he

must go to school. no home schooling allowed there for him. So hence he

will get ill and I will be financially done. Then I will live where----- as

I am sure eventually the money will run out. The mother is a dead beat so

forget about any support that way.

Hey I am doing the right things for him and he loves me dearly as I love him

and we have great adventures. Ya ya we do a lot of medicine and goofing

off as well but hey we try to fight the bugs the best we can and get him to

school and daycare. I have cooperated with about all the services. CAS,

EI, Ontario works, children's services heck even the courts. had to

represent myself in that one and still am. No worries though. I am not in

trouble his mom is and well rightfully so.

So help me out. I am not interested in money. I am interested in what

other people are doing. Are you having a tough time in Ontario Canada as

well. I think considering my economic status at the moment that all

services should be helping here to ensure my son does well and help me

figure out how I can have a flexible job that enables me to support him and

care for him and deal with illness when he gets all cranky and sticky and

well you know how it goes. Get the Bucket, thermometer etc.

I did not create this situation. Ya a little fun one night I am sure ya I

played a bit of a part.

Yes he was born and well months later he almost died and was on a machine to

survive.

Okay I got that part it was emotionally hard

Oh really a solution that could help. Oh CF really. Oh it can be

managed--great

What do I need to know. Ummmm I can do that. Okay great.

There was 2 of us then well ummm I guess I will go to work and help out.

Ummmm his mom was never interested in working okay then help him out.

Seemed to work

Now it's just me. I am stumped. Okay I will do everything.

Gosh do ya gotta be sick today. I really wanted to go to work you know. Oh

well its manageable right.

Well enough is enough. I have had my son in my care for the last 2 years.

The introduction of SK has complicated life a bit. Daycare I am forced and

well it is complicating life even more.

In time I will be done. This is wrong.

I did not create the situation. A natural event was prevented by ummmm a

third party.

Ya where are they. oh ya I visit them every 3 months or so. Pat me on the

head what a great job I am doing. ummmm

Well I guess they gotta follow rules set by the Canadian government. Just

doing their job really

So what the heck is the government investing all this money into my son just

to let him in the end live in poverty. This a bit odd. Is there money

to be made by having people live in poverty or something I have not figured

this out yet.

I think someone has an obligation here and is not living up to it.

Ummm thinking--- okay this might require the courts to fix. Okay I am smart

in that respect. ummm who are the parties

well the child with CF is one

the parent ummm number two

the medical institution ummm number three

The canadian population represented by the canadian government. Oh I think I

found them ummm number 4

Okay I figure this to be like this

Okay-----ummmm Canadian government makes a rule that the medical institution

must use technology to prevent a natural event. Okay must be a

reason ----oh ya life is valuable.. I agree ya the people of canada are

like that. We value life.

Okay ----ummmm they use this technology on the child to safe him and create

a situation where he will need it for ever and well its not perfect or the

sure solution because he still gets ill and heck the parents will be busy

managing the illness and meds and well okay it seems like we are doing the

right thing.

okay okay I think I got it.

If that action was never taken I would of been sad for some time but I would

not be living in poverty.

I would not have to sometimes sit back and let a tear go down my face as I

feel for him.

My arms would not be so sore at times.

I would of moved on in life.

But the canadian government did take an action for the right reasons.

Now my arms will be sore

A tear will fall as I feel for him.

I will live in poverty.

maybe even live on the street

we will not have much

But we will fight the bugs and live like a bug on very little.

Is this what they want. Was this there great intention.

as my standard of living decreases this only makes him more ill.

As I am forced to follow these rules for money it will only make him ill.

Surely it is much more cost effective to ensure the family has a basic

standard of living and is able to invest the time into the child to ensure

he succeeds.

Not that we would or really could. But do I gotta start thinking about

robbing banks or something.

My son with CF and his dad. we could be a great team. Hey I thought of it.

Give him some time in poverty maybe he will think of it too.

I just gotta know what else is going on here. What am I missing because this

seems all wrong.

I am serious here and ya I know I presented this in a crazy way but trust me

I do good legal work when I have too.

Do I need to bring this third party to a table to do the right thing for my

son? If so I will.

He is 5 now and I am not letting him go anywhere. They saved him. They

did it. Emotional attachment. chapter eight in the introduction book for

CF--The future I expect him around. I will sue for misleading me if they

think withdrawing medicines is the answer.

Okay third party now that you created a situation that I had no control in.

What ya going to do to ensure my son succeeds and can have a normal life.

I know ----I know---

have a nurse baby sit him and I can work. Ummm I guess I would have to

make more than her to make this idea a good one as it would be cheaper to

pay me less. ummmm Well I guess I got a basic income then. Sure we could

work something out. A nurses wages for 5 days 8 hours a day. A job that

pays me more so there is a positive contribution to the economy might be

better to get the taxes. .

Hey wait a minute. Okay okay

ummm 8 hours.

Well when he gets ill. meds twice a day is norm. 4 times when things get

ummm worried. 6 times a day when we are deep in the pits fighting the bugs.

We usually come out winning with this one. but heck I could go for that. A

nurse then 5 days a week no bills for that.

Ya I think that is a good way to create some jobs for the nurses. good jobs

I can work and be happy

My son would be happy

This third party ummmm ya you the population of canada. We need to sit

down at the table as I have some issues and you have some obligations here.

I never agreed to live in poverty with a child with CF

I did agree to help my son with CF on the basis that I would be helped if

need be.

Ummm where is that help. typical

TELL ME WHAT YOU THINK FOLKS I NEED COMPLAINTS---CANADA ONLY----

YOU KNOW SOLUTIONS OR SOMETHING I HAVE MISSED THEN MAYBE I WON " T NEED TO GO

TO THE COURTS

I AM PUZZLED HERE SO STOP ME NOW OR HELP ME DO WHAT IS RIGHT FOR MY SON AND

EVERY CHILD WITH NEEDS OUT THERE IN CANADA>

Let me remind you folks. We live in the second largest country in the world

with a significant amount of resources for a relatively small population.

who is making the money--- go figure--- People on the streets ummmm how can

that be---- Children living in poverty--- we should be ashamed of that one.

We make the rules. we decide, we can have anything we want. We can build

anything, do anything. We really can. we can make this work for every one

including a 5 year old child forced into daycare so his dad can get EI. He

gets sick and well dad gets a bill. funny eh. I guess I get billed for

when he is sick. really now this is too much. I would scrap EI but i

spent many years putting that money there. Trust me Ontario works is really

a sad shape.

Ted a father --- The good guy--- The fighter--- learning how to squeak real

loud

Seems like the squeaky wheel gets the oil.

Ummm Promo idea. I got the perfect one. Gotta talk with my son see what he

thinks.

Get this a perfect picture for the media. A dad and son on the street

cuddled down on a cold day.

An extension cord coming out of a business or from the side of a building.

Child doing the nebulizer then therapy right there. Canadian Government

think that is acceptable ummm I wonder right in your face. Think big,

think media, Trust me I usually do a good job at diplomatic fights. I

love the smell of a court room. Argue with tenderness And drive my point

home like a sword.

Now lets hope that I have really missed something here cause I really do not

want to practice my professional speaking to get this fight going unless I

have too. I all ready practice enough for current legal issues that have

little to do with me. Reminds me oh ya I gotta go to court today. Unmmm

anything important not really. Just burning my time there. Hey that is

another thing. If I was the bad guy and she the angel here I bet I would

of got nailed with all the legal fees of these proceeding with CAS. Ummm a

bet it don't work the other way around.

Oh ya do not worry I am a protective parent and CAS knows it and leaves

me alone. They tangled with me in the past when the mother was very ummmm

what ya say. IN need of some special help. I am protecting him but heck

its not my fault things are like this. I am keeping up my end of the deal

and no one can take him away because I am doing nothing wrong. So get back

to me personally or through this list

Ted

jthere@...

Funny thing I thought----- I was abused as a child by a stepmother

My son was abused by his actual mother

MY dad was a pacifist---don't rock the boat

I am not like him

I protected my son

I will rock the boat

January 22, 2004

Sad as it is to hear of yet another cf diagnosis, this whole saga sounds

all too much like a large country to the south of you in which I live. My

rather enlarged heart goes out to you and your son. There are other

Canadians on the list who may have more constructive ideas than I

can possibly have. Welcome aboard, however, and thank you for just

diving right in--this IS the best cf place in cyberspace--good moderators,

too. Just wanted to welcome you. I yield to the Canadians for the rest.

Love your way, n Rojas, wcf, mom of 3 wild adults (very), the youngest of

whom has cf also--all still kicking!

CF FAMILY ISSUES ---READ AND ASSIST Kingston Ontario

CANADA other CANADIANS

Hi everyone

Let me introduce myself. I am Ted a single father taking care of my son with

CF he is 5.

He is great and I love him dearly. We have worked out well together managing

his health and getting along through life.

Recently there have been some significant changes with about everything.

I kept him out of Junior Kindergarden to minimize illness and keep him pretty

healthy. I use to work in the country so this pretty much kept us both away

from the bugs---- viruses

Anyhow Senior Kindergarden I am obligated to put him in. He likes it and has

been coping well.

We just relocated to the Kingston area with a different financial situation

Since I did everything myself before and paid for every thing I needed before

I was in for a shock when I thought I would be able to get help when I needed

it.